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hello again! i really need some advice on something...so frankie is doing pretty good, pretty much the same but we are hanging in there. so he has progressed enough that he is able to mimic a few signs now, FINALLY...it only took a few years but hes doing it. here is the issue. the school is...

frank has been diagnosed with a variant of this..finally. it explains a lot of the weirdness about his issues, but they also told me that the nerve damage cant be repaired..is this true? it really explains why he cant eat, and his hearing loss. apparently, being really delayed is kind of rare...

well, the surgery went great..but i feel so guilty! he looks pitiful when he is attached to his feeding tube/iv pole thing. it is helping though..he is sleeping through the night more and is overall more content. right now i am in a frantic search for his hearing aids because i cant remember...

yep..captain oral aversion is getting a feeding tube! the boy just wont eat..thank god hes a chub and hasnt gotten to the starved looking child stage, but it is still not good at all. we saw the geneticist..he was horribly vague and is doing a "microarray" and a test for fragile x..he said...

we took him to the developmental pediatrician this morning, and she has gone over the last 3 months of testing, and her own records, and she has diagnosed him with pervasive developmental disorder, and she says she will change that to "classic conner autism" when hes 3...i have never heard of...

They ARE reliable, arent they? someone on my facebook suggested that Frankie might not be deaf, that he could have sensory processing disorder..She is not the only one who has said that either..Usually it ends up with an armchair doctor saying my son has autism. :giggle: That aside, it looks...

Hello! I am Jamie, nothing very exciting here, really. :wave: Back in June, we found out that our 7th child, Francis, had hearing and developmental issues. I googled "deaf forum" out of desperation, and here I am! I am 36, and i have will have been married 19 years on the 11th. I enjoy...

Deaf Pride T by judys- 105465681 isnt this cute?? i am going to get him one of these. i wish it were a cotton/polyester blend though.

well, the developmental pediatrician says that he has a cognitive level of a 4-6 month old and that all of those issues are completely separate from the hearing, due to the fine motor skills/eating issues and a few other issues besides. its really not anything we werent fairly sure of anyways...

BARNES & NOBLE | Baby Signs by Joy Allen | Board Book these books are PRECIOUS! I have a question though. I have heard from various people that baby sign language books dont use "real" sign language. Is this true? I plan on grabbing a bunch of these from the bookstore tomorrow..I dont know...

i filed for ssi on my little one back in june..i have a question about that. can a child with hearing loss at the same level as my son qualify? he also has his other issues too but someone told me that hearing loss is one of the qualifiers. i am not going to be able to go back to work any time...

ok...i plan on enrolling my husband and myself/children in the sign language 1/2 classes taught by the local deaf community resource thing..but the "deaf education" lady says i should enroll in this class taught by the local community college..she said it was be a fully immersive class with no...

it was so sweet when they turned them on...he heard his father, and turned to him and just laughed! but other than that adorable moment, i am not noticing a huge difference. the really good thing is that he is tolerating them very well..hes not tried to rip them out yet, although i completely...

ok...the deaf education lady came out, and went over his audiogram. it was different than what i was told, in that his hearing loss whatever isnt in the 70 decibel range, it was 80-90. then she went full force on why we should get the implant..i explained our stance and she glossed over that and...

i am getting frankie a medical bracelet to wear for school..mainly because i want to make sure that someone doesnt try force feeding him or anything else. this is the one i am thinking of getting...

a few weeks ago, when i found out my little baby boy had hearing problems and developmental problems, i was plunged into a horrible depression..this was the first site to come up when i first started looking for answers. i have been given the most wonderful advice, and even a good dose of free...

ok..i am not trying to be rude or offensive but..the good morning sign almost looks like a rude gesture!

do they sell one that isnt mind blowing expensive?? we took him to the deaf preschool and it looks like he is in! yay! BUT they said he needs an fm system. i about had a heart attack when i saw the prices..wow!!! :shock: she said they can loan him one when he is there but he needs one at...

but it was jumbled in with a million other questions! ok..if my son does not respond well with the hearing aids..would it be wrong to skip the implants, place him in a deaf preschool, attempt to have everyone in the family learn sign language, and just adapt in any way we can, to help him...

i mentioned in my other thread that we found out today that our baby has severe hearing loss in both ears. i spoke to the audiologist that will be fitting him for hearing aids today, and she said that they will try the hearing aids for 90 days and if those arent helping, they want to go ahead...