Profoundly deaf - anyone like me, have CI?

Hohtopics said:
Some of it could be the localization of the sound. Assuming you drive on your left?
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Nope, right side. I drive the opposite as the americans do. Remember, I am located in australia.

UPDATE: Unless I am confusing myself, I drive in a car on a left side road... if you are asking road-wise.
 
Anyway - I have a question I would like to find out.
It might be tinnitus related.
I am starting to notice that I get tinntitus more from my left ear than my right.
(as if I assumed it was from both of my ears but no)

For these people who got CI, was your ear which was implanted got the highest pitch of tinntitus before it was implanted or excatly the opposite (The other ear)?


update: I am finding something interesting when I take off my left hearing aid, and the tinntitus goes down and I can hear random sounds ranging from my computermouse thudding down when I drop it to the table, to my keyboard clacking - but when I have my left HA back on - the tinntius gets worse. I remember, my mum saying that I have little bit of hearing and I thought it was my left, perhaps that would be my right?
 
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Interesting posts. Speaking of Tinntitus. I have seen some posts somewhere on AD and some of them were saying that when people had a very bad tinntitus before CI surgery. After when they got a CI and tinntitus will go away after the operation. Im not sure if it correct.
 
Update - I have done my home work last night

My audi has asked me to ask as much questions I can to the CI users around the region which I did last night at the local deaf club and after 1000000000000 questions. I was impressed and surprised at the same time on how I have received.

As you know my hearing loss is profound. I questioned 3 - 4 CI users with the same hearing loss as mine. They have progressed so well, 1 of them was a twin, her twin is deaf as well, and has CI but was severe but the twin was the perfect example of mine - and she had CI for 15 years, she said that it will take a lot of patience to hear these sounds. At first these CI users said that sound would be a bit confusing but if the CI sits behind the ear for 3 months and you do your homework everything will become clear and the brain will start to learn what to ignore what to pick up and stuff. These CI users I interviewed, were born deaf.

I was impressed on how they progressed post -activation. One CI user had freedom CI for 3 years (next month) and she is able to understand her three daughters, and is able to recongise the voice (who is who) I asked their cons of the CI, is that a LOT of patience is required, headaches and frustrating noises but after a while, they will disappear. I asked the CI in Sydney via facebook, same loss as mine, and is progressing slowly very well.

now, this has become more clearer that my kind of hearing loss, is a candidate for CI but needs a lot of work, which I am motivated to do only need to do further testing, and gather more information as much as we can.

Will keep you all updated of my journey. :cool2:
 
You're young; you've got all the time in the world to be patient! Good luck with it.

Are you finding any different level of satisfaction between different brands or models? I understand that some of them are better at processing music than others.
 
Beach girl said:
You're young; you've got all the time in the world to be patient! Good luck with it.

Are you finding any different level of satisfaction between different brands or models? I understand that some of them are better at processing music than others.
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Yep, that's right. I got all the years to be patient therefore I am actually a patient person. :lol:

In australia we have only one model - Cochlear. No MedEl or AB. Just cochlear.
All CI Users have cochlear but the models are different, they said that N5 is much better than the Freedom, I have even asked what are the differences - they told me that Freedom can't hear very far while, N5 can. :eek:
 
There ya go, then. It's good to get all the information from people who have already gone through it, isn't it.
 
JClarke said:
I was impressed on how they progressed post -activation. One CI user had freedom CI for 3 years (next month) and she is able to understand her three daughters, and is able to recongise the voice (who is who) I asked their cons of the CI, is that a LOT of patience is required, headaches and frustrating noises but after a while, they will disappear. I asked the CI in Sydney via facebook, same loss as mine, and is progressing slowly very well.
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This sounds so like me, I am nearly 3 years post implant (ironically next month!!) I have a freedom and will be upgrading to N5 on 3rd August.
I am able to recongise all 9 of my students' voices in my class and able to reply to their simple questions like can i go to the toilet/library/reception without lipreading and they all are autisic, their voices are monotonal, mumbling, not clear at all (one or two are but they have up and downs days) etc... Yes your new friends are right patience is important and low expectations too.
Now days when people speak without me looking at them, they could be a ransom person on the street that i don't know i could pick out what they are saying by just passing them, this surprises me every day and i am amazed in how ON earth I could hear that!!! One day I had to stop a gentleman to ask him if he did say so so and he replied yes..... then looked at me if i was a complete nutter!!
I didn't expect i could reach this far, I took one day at a time. I read a lot of audio books/ watch tv following subtitles with talking (not always perfect but it's good practice for recongising missing words and catching up with the next word)
 
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overthepond said:
JClarke said:
I was impressed on how they progressed post -activation. One CI user had freedom CI for 3 years (next month) and she is able to understand her three daughters, and is able to recongise the voice (who is who) I asked their cons of the CI, is that a LOT of patience is required, headaches and frustrating noises but after a while, they will disappear. I asked the CI in Sydney via facebook, same loss as mine, and is progressing slowly very well.
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This sounds so like me, I am nearly 3 years post implant (ironically next month!!) I have a freedom and will be upgrading to N5 on 3rd August.
I am able to recongise all 9 of my students' voices in my class and able to reply to their simple questions like can i go to the toilet/library/reception without lipreading and they all are autisic, their voices are monotonal, mumbling, not clear at all (one or two are but they have up and downs days) etc... Yes your new friends are right patience is important and low expectations too.
Now days when people speak without me looking at them, they could be a ransom person on the street that i don't know i could pick out what they are saying by just passing them, this surprises me every day and i am amazed in how ON earth I could hear that!!! One day I had to stop a gentleman to ask him if he did say so so and he replied yes..... then looked at me if i was a complete nutter!!
I didn't expect i could reach this far, I took one day at a time. I read a lot of audio books/ watch tv following subtitles with talking (not always perfect but it's good practice for recongising missing words and catching up with the next word)
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You've been a great help. This helped me understand better and definitely have low expectactions! :D
 
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overthepond said:
I read a lot of audio books/ watch tv following subtitles with talking (not always perfect but it's good practice for recongising missing words and catching up with the next word)
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Sometime I find when watching a captioned program that the captions are actually printed out before the speaker says them. So what I do is first read the caption then watch the speaker to make the connection.
 
Hohtopics said:
Sometime I find when watching a captioned program that the captions are actually printed out before the speaker says them. So what I do is first read the caption then watch the speaker to make the connection.
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Yeah, I read quickly and I lipread them after reading captions. They are excellent tool in assisting to improve lipreading skills but then again, with C.I and volume at a reasonable level, a connection can be helpful, yeah?
 
Sometimes the captions are outright wrong, too. Doesn't happen often but it does sometimes. My husband will say "That's not what she said, it was .... (whatever it was)." Or sometimes the captions will leave out an important bit of the message.

However, definitely beats not having them.
 
Beach girl said:
Sometimes the captions are outright wrong, too. Doesn't happen often but it does sometimes. My husband will say "That's not what she said, it was .... (whatever it was)." Or sometimes the captions will leave out an important bit of the message.

However, definitely beats not having them.
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Yes, I've noticed that as well. That sometime what was printed on the captions is slightly different than what the speaker actually said. Doesn't happen too often, but does occasionally.
 
Q: Does the cochlear implant make a huge difference with hearing aids?

I trust, that is true.
 
Well J Clarke your "hearing journey" does seem to be very interesting in comparison to many others as detailed here. It simply brings out the human variability!

From my understanding of the history of Cochlear Implants-Michael Chorost's book-Rebuilt- seems a great deal of research was done in Australia by Cochlear Corp/Prof Clark. Perhaps Australia "helps the local cause re Cochlear Corp- products." ,
Continued good luck in your ongoing hearing journey.

Implanted Sunnybrook/Toronto Advanced Bionics-Harmony activated Aug/07
 
overthepond said:
Yes it does, it's like rich in 3D colour where as HA is in flat black and white.
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Agreed.

Oh Yeah it does!! A very big jump. About 20 times louder. CI got a nice clear and crisper sound. HA got a muffled sounds.

A cochlear implant is very different from a hearing aid. Hearing aids amplify sounds so they may be detected by damaged ears. Cochlear implants bypass damaged portions of the ear and directly stimulate the auditory nerve. Signals generated by the implant are sent by way of the auditory nerve to the brain, which recognizes the signals as sound. Hearing through a cochlear implant is different from normal hearing and takes time to learn or relearn.

However, it allows many people to recognize warning signals, understand other sounds in the environment, and enjoy a conversation in person or by telephone. Depends on person really.
 
krazykatkitty said:
Agreed.

Oh Yeah it does!! A very big jump. About 20 times louder. CI got a nice clear and crisper sound. HA got a muffled sounds.

A cochlear implant is very different from a hearing aid. Hearing aids amplify sounds so they may be detected by damaged ears. Cochlear implants bypass damaged portions of the ear and directly stimulate the auditory nerve. Signals generated by the implant are sent by way of the auditory nerve to the brain, which recognizes the signals as sound. Hearing through a cochlear implant is different from normal hearing and takes time to learn or relearn.

However, it allows many people to recognize warning signals, understand other sounds in the environment, and enjoy a conversation in person or by telephone. Depends on person really.
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Thanks for the explanation, everything makes sense, especially that you're a CI recepicent. :D
 
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