Something to think about re oral only/mainstreaming

shel90 said:
Iam happy for you Sheila, Daredevel, and Kokonut...however that doesn't eliminate the fact that many of us have suffered and still are especially those who end up with language delays and deficits. It seems like as long there are people like those 3, the rest of us who have suffered don't matter. It makes me really sad that nobody seems to take it seriously. Just laugh at us who are f@#cked up for real. Yea, it is funny to you guys but to us, it was a lifetime of pain and suffering and for those who end up with language delays or deficits will contunie to pay the price for the rest of their lives.

Pls do not tell me about that the child should be monitored closely..the real truth is that most mianstremed teachers don't really bother and most parents usually don't want to admit that their child doesn't fit mainstreaming until it becomes way too late. I have seen too much not to believe the rosy picture that is being painted.
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:gpost:
 
faire_jour said:
Really? Do you actually believe that they don't have a right to be ok with who they are? They don't have the right to say that they turned out just fine? Talk about calling a deaf person's experience invalid! I have never seen a bigger demonstration of one person saying that their experience was "right" and anyone who disagrees is "wrong"! I can't believe that you actually said that because they made a joke it proves that oral people have social issues :shock:
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FJ, You have a habit of jumping in and speaking your own opinions, before the person who is addressed can comment. Let people speak for themselves.
 
deafgal001 said:
did you go to public school from beginning to end without any deaf program? Most deaf people I know seem to had AVT or oral school or even self-contained class for the deaf even for a short while. I had none of that. It was literally "slap on a hearing aid (phonic ear FM, actually) and send her to public school"

anyway, yes, kids with Cochlear implant will experience it:

Socioeconomic status not associated with access to cochlear implants

Denial isn't helping.
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Yep - I had that too. Give me a hearing aid, and send me on my way. The school district had nothing for any deaf or hoh students since I was the only one. I went 3 times a year for adjustments to the hearing aid and to get news testing done. Other than that, if it wasn't for my parents, I would not be where I am now. My mother worked with me on my speech, my oldest brother helped me with schoolwork and my father and oldest brother taught me to drive without being able to hear the motor.

I had a janitor at the school then throw away my hearing aid (took it off as per the rules for recess/PE) thinking it was a radio. Never got another until I was an adult due to money. I had very few friends and still have very few friends.
 
deafgal001 said:
did you go to public school from beginning to end without any deaf program? Most deaf people I know seem to had AVT or oral school or even self-contained class for the deaf even for a short while. I had none of that. It was literally "slap on a hearing aid (phonic ear FM, actually) and send her to public school"

anyway, yes, kids with Cochlear implant will experience it:

Socioeconomic status not associated with access to cochlear implants

Denial isn't helping.
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What does the link have to do with what you are talking about?

Also, in this post you are saying that most kids do get better services than you experienced, so isn't that a good thing?
 
<<<<<<Poor children with hearing loss appear to have equal access to cochlear implantation, but have more complications and worse compliance with follow-up regimens than children with higher socioeconomic status, according to a report in the July issue of Archives of Otolaryngology-Head & Neck Surgery. >>>>

So what does this mean? it means they are more likely to suffer in school. I don't care how great this technology is (at one time, hearing aids were great technology) . It's the poor decisions made behind it for deaf children that cause them to suffer.
 
deafgal001 said:
<<<<<<Poor children with hearing loss appear to have equal access to cochlear implantation, but have more complications and worse compliance with follow-up regimens than children with higher socioeconomic status, according to a report in the July issue of Archives of Otolaryngology-Head & Neck Surgery. >>>>

So what does this mean? it means they are more likely to suffer in school. I don't care how great this technology is (at one time, hearing aids were great technology) . It's the poor decision made behind it for deaf children that cause them to suffer.
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It means that poverty is linked to undereducated parents who are less likely to follow up.
 
deafgal001 said:
duh! and you thought my parents were cruel for not fixing my hearing aids.
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As a parent whose child is on Medicaid, I know for a fact that it's doesn't have to be that way. Just because we don't make much money does not mean that I will not bust my ass to get educated, and provide every opportunity to my daughter that a wealthy child would have. It is a choice.

For example, we do into debt every year to provide aural rehab services for my daughter. Medicaid doesn't cover it, so we pay. I took a job that has summers off, so that we can use that time to see better professionals. I attend professional development conferences, rather than those aimed at parents, because they have better information and less sugar coating, and because they cost less.
 
They deserve access to communication no matter what their socioeconomic is. Their parents have no rights to implant their child, forced them to rely on it only and don't bother keeping it up. But we can't go marching in people homes either. All we can do is give them knowledge like sign language.
 
deafgal001 said:
They deserve access to communication no matter what their socioeconomic is. Their parents have no rights to implant their child, forced them to rely on it only and don't bother keeping it up. But we can't go marching in people homes either. All we can do is give them knowledge like sign language.
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Yes, my daughter does have the right to communication. And you know what? We paid waaaaaaaaaaayyyyyyyyyyy more to learn ASL then we have for her CI.
 
deafgal001 said:
When I mention my parents are poor, everyone was too busy saying they were abusive.
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I'm showing you that poor parents CAN do follow up. It has nothing to do with money, it has to do with commitment to their child. So, yeah, I think, no matter how much money you make, you better do what you kid needs, there is no excuse.
 
deafgal001 said:
When I mention my parents are poor, everyone was too busy saying they were abusive.
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I remember that well. You told how they left you with no hearing or communication for a whole summer.

That is abusive. My parents were not well off when I was young either. They were very tough with me, but the would not have done something like that.

You have to expect that reaction if you tell of a situation that is abusive.

They could take and extra job, or sell a wedding ring or valuable possession. Lots of things .
 
faire_jour said:
Yes, my daughter does have the right to communication. And you know what? We paid waaaaaaaaaaayyyyyyyyyyy more to learn ASL then we have for her CI.
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This is off topic I know, but have you looked into government reimbursement for that? It may help and help keep things going should you need it.
 
faire_jour said:
I'm showing you that poor parents CAN do follow up. It has nothing to do with money, it has to do with commitment to their child. So, yeah, I think, no matter how much money you make, you better do what you kid needs, there is no excuse.
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I have news for you, not every parents are going to do this.
 
deafgal001 said:
you have one kid, my mom have 5 kids, 2 are oral deaf.
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She made that choice, and I made mine. I chose to only have one child. I chose to work two part-time jobs and my husband works two as well. We have only one car, a 12 year old tv, a computer that was a gift when I enrolled in school. We don't have nice things, but we have happiness and we work our butts off to make sure Miss Kat gets her needs met. We are very lucky that we get SSDI, and that is how we pay for her therapy, and every year we spend our tax return on her educational opportunities. I can be done, it happens every day.

So, yeah, I think it is cruel to require a child to be oral only and not give them the tools to hear. I agree with oral schools that require a child to have appropriate amplification to attend. You can't require a child to use a language that they can't access, and by not giving the child hearing aids (or a CI in another instance), that is cruel.
 
deafgal001 said:
I have news for you, not every parents are going to do this.
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And I have news for you, those are bad parents.

(I wrote a whole blog about the difference between bad parents and oral parents. There is a TREMENDOUS difference, but unfortunately, people lump them together unfairly.)
 
AlleyCat said:
This is off topic I know, but have you looked into government reimbursement for that? It may help and help keep things going should you need it.
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For what? For ASL classes? They were college courses, so they cost a lot, but education is always worth paying for! :D
 
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