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Tootsie

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It is worth to anyone have a children should have CI ? I need to know what all of your opinion ? Thank you
 
Welcome aboard, Tootsie! My 5-year old grandson just had his CI turned on (last Tuesday and he got implanted the last of July) -- I really do think it is worth while from what I have been reading on this forum. There are parents posting on here and I have already met Lillys dad and Lilly herself and she is making great progress and I'm anxious to drive to my son's house so we can see our grandson over the long holiday weekend. Curious to see close-up and personal at our grandson!
Do you have deaf children? How old? (by the way I am first generation deaf)
 
Tootsie said:
It is worth to anyone have a children should have CI ? I need to know what all of your opinion ? Thank you
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Do you mean to ask if the parent is deaf, should they get a CI?
 
greema said:
Welcome aboard, Tootsie! My 5-year old grandson just had his CI turned on (last Tuesday and he got implanted the last of July) -- I really do think it is worth while from what I have been reading on this forum. There are parents posting on here and I have already met Lillys dad and Lilly herself and she is making great progress and I'm anxious to drive to my son's house so we can see our grandson over the long holiday weekend. Curious to see close-up and personal at our grandson!
Do you have deaf children? How old? (by the way I am first generation deaf)
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Yes, all my three daughter deaf and 6 yrs old, 3.5 yrs old and 3 months old. Hard for me and my husband want CI or not. Since long time when My oldest daughter 6 yrs old since the baby almost CI then change mind back and forth. STILL confuse as not sure what we want. Yes our first generation deaf :)
 
Hi Tootsie -- again, welcome to this forum! You are first generation deaf? Then you are in my shoes, only we have two deaf adult children and three deaf/hoh grandchildren. Our son, Fragmenter, and his wife decided on having their 5-year old son implanted with a CI ONLY after finding out that the best digital HAs (hearing aids) has not benefited him for over a year.
I really think that you should have your daughters (they're gorgeous by the way) tested and see if they could benefit from wearing HAs first -- the CI should be considered only as a last resort if the HAs won't help. Fragmenter's son Marshall is profoundly deaf and his daughter Mallory is very hoh like her mother, Fragmenter's wife and both wife and daughter wear HAs and they both can hear and speak very well.
For example if his wife and daughter get CIs, they would lose what hearing they have left in the implanted ear. Which is why your girls should be tested first.
Maybe you could read up on Cloggy's, Fragmenter's and Lillys dad's threads -- they are good ones and of course the others are good to get all the information you need. You could always PM (private message) if you prefer.
And good luck! And a happy Labor Day weekend!
 
Hello Tootsie,
I don't know what to tell you. I am a hearing parent of a deaf child and what brought us to the decision to implant Isaac probably are different circumstances than yours. It is your decision. I'm sure you will do what is best for your children. They are so beautiful! God Bless you!
 
Hi Tootsie! Welcome to AD. The hearing aids are always the first step. If the child gets enough benifit from them, then that settles the issue of a CI. If the child does not benifit from HA, them the CI is usually the next step.

As others said, the CI decision is a very personal one. I am the hearing father of a deaf 2 year old. She was implanted on 9-8-05. She is doing wonderful. She was recently tested on her speech comprehension. She was at the comprehension level of a 4 year old. With her CI she hears at 20 db across the board, she litterally hears better than I do. She is still behind on speaking, but she is catching up very fast. My daughter is one of the many successes with a CI. There are some that may not benifit from CI. My advice is to research the topic to death.

Here is my opinion on implanting a child. No matter how successful a CI is in a person, they will always be deaf. So due to this, we are teaching her ASL. It is very important to me that she is raised with a sense of who and what she is. A CI does not steal her identity as a deaf person, it merely allows her the opportunity to exist in the hearing world in a functional manner. The CI is a tool that she can use to make her life easier. Like any other tool, it is there for her to use, or not. When she gets older, if she choses to take her CI off and use ASL as her primary source of communication, thats fine. But in the mean time, she wears it so she can learn to listen and speak. If she decides to only use ASL, I am learning it so I will still be able to be involved in her life.
Everyone has thier own opinions, beliefs and thoughts about CI and thier place within the deaf community. My advice is research, research, research. I have read so many false statements and outright lies about ci on this and several other web pages that it is almost sickening. Please, before you make a decision on implanting your child, be sure that you have the facts.

Once again, welcome to AD!
 
She was at the comprehension level of a 4 year old. She is still behind on speaking, but she is catching up very fast.
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OT, but that is good news. Are her expressive speech skills more at the level of a hoh kid? I think actually that the gross majority of orally trained deaf kids, may just have "survival" or OK spoken language skills. Only a small percentage of orally trained dhh kids ever totally make up the delay in their spoken language. You might want to have her evaluted for a nereological disabilty called apraxia. It's very common in dhh kids.....and is the reason why there are a lot of "oral failures" Also, please please don't expect her to start talking like a Harvard grad....She'll improve, but will probaly always have a spoken language delay and or significent articualtion/pitch/volume issues.
 
Tootsie said:
It is worth to anyone have a children should have CI ? I need to know what all of your opinion ? Thank you
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No way !!! It effects them too much medical problem. They do not use their cochlear implants when they become teenagers.
 
Kalista said:
No way !!! It effects them too much medical problem. They do not use their cochlear implants when they become teenagers.
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misleading remarks.. it is not "They" It is "Some" :P (influenced by peer pressure or lack of motivation or such )

Why? you may ask... . because it seems that you may imply that "They" = "ALL"
 
Fragmenter said:
Proof?
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Probably from her observation in her neck of woods. From a statistical point of view I imagine people for whom CIs didn't work out for whatever pre-implantation or post implantation reason are more likely to attend deaf schools, deaf clubs etc. To people that frequent those places it may appear that CIs don't work based on their skewed population sample. However if they were to be exposed to a representative sample of children with CIs across the board then they may formulate a more balanced picture.

I remember a hearing friend of mine who worked in a signing unit was very negative about CIs. And the reason why this was the case was because he had only been exposed to the CI failures, who came through the unit. Those for whom CIs were useful were generally mainstreamed.
 
D/D, she is behind on speech, and catching up. Her speech therapist/pathologist is very, very happy with her progress. I dont suspect any neuro disabilities. But I will research what you mentioned.
 
R2D2 said:
Probably from her observation in her neck of woods. From a statistical point of view I imagine people for whom CIs didn't work out for whatever pre-implantation or post implantation reason are more likely to attend deaf schools, deaf clubs etc. To people that frequent those places it may appear that CIs don't work based on their skewed population sample. However if they were to be exposed to a representative sample of children with CIs across the board then they may formulate a more balanced picture.

I remember a hearing friend of mine who worked in a signing unit was very negative about CIs. And the reason why this was the case was because he had only been exposed to the CI failures, who came through the unit. Those for whom CIs were useful were generally mainstreamed.
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Artoo, that strikes a nerve for me -- actually I think that was why I was anti-CI -- didn't know any successful Ciborgs, only know the failed one and heard other stories. Now I know better to do my research first and not take anyone's word.
:ty:
 
Kalista said:
No way !!! It effects them too much medical problem. They do not use their cochlear implants when they become teenagers.
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:pissed: I use mine. I better! It costs 35,000 American for the operation and the inital hook-up, and has cost my family a small fortune over the years!

:ugh3: My CI has really been benefical for me, but every case is different. My speech skills just jumped during my first two years of using it. It's best to implant CIs when they're kids--their brains are more elastic than adults'.
 
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Fyborg, first off "welcome" from a neighbor of yours. It only cost 35 thousand? Thats cheap! My daughter was implanted 1 year ago. The actual CI cost around 40thousand. thats without the cost of surgery and hospitalization.
Check your private messages.
 
Lillys dad said:
It only cost 35 thousand? Thats cheap! My daughter was implanted 1 year ago. The actual CI cost around 40thousand. thats without the cost of surgery and hospitalization.
QUOTE]

What kind of implant does your daughter have? I was implanted in '96 and the price was arrived at after some legal threats from my mom, bless her. I only have 22 channels (yes, I know I'm oboslete :) ) but at least I have a BTE now.
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fyborg said:
Lillys dad said:
It only cost 35 thousand? Thats cheap! My daughter was implanted 1 year ago. The actual CI cost around 40thousand. thats without the cost of surgery and hospitalization.
QUOTE]

What kind of implant does your daughter have? I was implanted in '96 and the price was arrived at after some legal threats from my mom, bless her. I only have 22 channels (yes, I know I'm oboslete :) ) but at least I have a BTE now.
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yeah that's cheap.. mine cost almost 3 times more than 35,000 for everything including the surgery. :eek:
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