Need your opinions ci user

I went to a "class" last night that was about vertigo, dizziness & balance. There are many things that can cause problems, and not all are ear related.
There are 3 ways we keep balanced - ears, eyes & positional awareness.
Have your husband go to an ENT & ask to be tested for the various causes of balance problems. I'd suggest he not even mention the CI/CI surgery so the ENT will hopefully treat him as s/he would treat anyone who comes into the office with balance issues.
Is the tinnitus a low roar like a train maybe? This was mentioned last night, but I can't remember why.
 
LoveBlue said:
I went to a "class" last night that was about vertigo, dizziness & balance. There are many things that can cause problems, and not all are ear related.
There are 3 ways we keep balanced - ears, eyes & positional awareness.
Have your husband go to an ENT & ask to be tested for the various causes of balance problems. I'd suggest he not even mention the CI/CI surgery so the ENT will hopefully treat him as s/he would treat anyone who comes into the office with balance issues.
Is the tinnitus a low roar like a train maybe? This was mentioned last night, but I can't remember why.
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Sorry if i didnt make it clearly. Yes He went to ENT many times since he was a toddler. When he was young adult and he was OK with tinnius and balance, and vertigo and dizziness got much less. Until He got CI, then everything that changed all over again for him. Before He got CI, He has been seeing ENT about two years before CI, and they strongly suggested him to get CI and he wasnt sure for couple fo years and being pressured by doctors, and his parents. So he went for it, and now he regretted of getting CI due to many reasons, and health reasons. SO he just wonders if he have CI to be removed, and will his symtoms get less as before he got CI. That is all.
 
Speaking of balance issues....I don't have a CI....but when I had a double surgery on both ears (and nerves were damaged)...I had balance problems....over the years it progressed....After this last surgery (5th) for the infection...seemed my balance worsened....hence, I went into Rehab....2 and 1/2 weeks....twice a day....and my balance issues have improved, but not gone away....You could perhaps speak with ur ENT about this. I still do all the "exercises" that was taught to me for the issue I'm having.
 
rockin'robin said:
Speaking of balance issues....I don't have a CI....but when I had a double surgery on both ears (and nerves were damaged)...I had balance problems....over the years it progressed....After this last surgery (5th) for the infection...seemed my balance worsened....hence, I went into Rehab....2 and 1/2 weeks....twice a day....and my balance issues have improved, but not gone away....You could perhaps speak with ur ENT about this. I still do all the "exercises" that was taught to me for the issue I'm having.
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They talked about rehab for balance issues last night.

FF, I was just saying that he may have developed new issues that have not been tested for, plus the fact that there are new ways of testing, I believe.

I'm not saying the CI operation did not have anything to do with it. I suspect that not wearing it will make no difference, but that is just my uneducated opinion.

Hope he finds someone who can help him make the decision and get help with the balance and tinnitus.
 
rockin'robin said:
Speaking of balance issues....I don't have a CI....but when I had a double surgery on both ears (and nerves were damaged)...I had balance problems....over the years it progressed....After this last surgery (5th) for the infection...seemed my balance worsened....hence, I went into Rehab....2 and 1/2 weeks....twice a day....and my balance issues have improved, but not gone away....You could perhaps speak with ur ENT about this. I still do all the "exercises" that was taught to me for the issue I'm having.
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I'll tell him that. Thanks. I think he had rehab but I'll tell him to try that again.



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LoveBlue said:
They talked about rehab for balance issues last night.



FF, I was just saying that he may have developed new issues that have not been tested for, plus the fact that there are new ways of testing, I believe.



I'm not saying the CI operation did not have anything to do with it. I suspect that not wearing it will make no difference, but that is just my uneducated opinion.



Hope he finds someone who can help him make the decision and get help with the balance and tinnitus.
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Yeah i know his doctor did error with CI on someone else and he re fixed on someone else for four years. She's okay now. I'm worried if he did error with my hub. Eh


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Maybe he needs to see another ENT, fresh eyes on the problem. I don't think that the CI is to blame for his issues, rather something else is going on and maybe the CI made it worse or maybe he would have been in this same spot either way. Removing his CI is just going to make it so he can't hear on top of being dizzy. He could have any number of conditions from Menere's to a brain tumor. He needs to see someone willing to investigate what is going on.
 
I know sometimes CI surgery can cause balance issues to worsen. That is why, if you get given a 2nd CI here you HAVE to go through balance testing...no idea why they don't do it for the first one.
 
Lissa said:
I know sometimes CI surgery can cause balance issues to worsen. That is why, if you get given a 2nd CI here you HAVE to go through balance testing...no idea why they don't do it for the first one.
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Thank you for sharing your opinion here.
what will they do with balance testing??
 
HOH-ME said:
Maybe he needs to see another ENT, fresh eyes on the problem. I don't think that the CI is to blame for his issues, rather something else is going on and maybe the CI made it worse or maybe he would have been in this same spot either way. Removing his CI is just going to make it so he can't hear on top of being dizzy. He could have any number of conditions from Menere's to a brain tumor. He needs to see someone willing to investigate what is going on.
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He has been seeing doctor for many years. They suggested him to get a CI in reducing his tinnius. Good enough, Tinnius and his balance got worsen when he obtained a CI. Thats why I need to collect the information from actual CI users so i want to speak out for doctors to PAY ATTENTION TO balance and tinnius issue FIRST before they decide for giving them the CI. Nothing else. Of course, Doctors could have performed mistakely. so doctors are not perfect.
 
Frisky Feline said:
He has been seeing doctor for many years. They suggested him to get a CI in reducing his tinnius. Good enough, Tinnius and his balance got worsen when he obtained a CI. Thats why I need to collect the information from actual CI users so i want to speak out for doctors to PAY ATTENTION TO balance and tinnius issue FIRST before they decide for giving them the CI. Nothing else. Of course, Doctors could have performed mistakely. so doctors are not perfect.
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Hi Frisky, I'm a CI user. One ear implanted the other ear completely deaf unaided. My tinnitus is non stop, super loud, regardless if I have my CI on or not. Most of my tinnitus comes from my non implanted ear. I think everyone's situation is so different. In my case, any doctor I have seen about my tinnitus and balance issues automatically assume it is due to being deaf. In my uneducated opinion, if he keeps getting worse, he definitely should get a CT scan or MRI to make sure there is nothing else going on. I really hope he gets some help and starts feeling better soon. Tinnitus and balance issues can make you totally miserable and depressed.

One thing I have done...I keep a written journal of what I ate, drank, did that day. Nothing fancy but write everything down for a week or two. Maybe there is some connection with a food or beverage that is causing his issues. If nothing shows up, at least you can take all that information to a new doctor so they know he is very serious.
 
I am lucky 1 years ago It is safer no metal is because I permission Otology is said no metal I got to MRI I relieft is very alots of lucky. It is seriously . I ask to Otology what is exactly electeric. I research electeric. Otology said you said allow remove implant everything all. I not sure. It is wholes my implant. it is seriously.. It is very health normal how do know mastraird nerve some... they said normal health. It is very fine. However to remove implant CI. I am not sure however to implant.. it is very figure out electeric inside cochlear I am not sure specific some small. I don't know never heard kind of electeric some small... cochlear. I am not sure specific. Dr didn't tell me. . how know me. they functions rare some sparsm risk muscle loss my system health.
 
What are you saying?
Vertigo and hearing loss often go hand in hand because the same or similar types of hair cells that are involved with hearing in the cochela are involved with balance in the semicircular canals and sacculae.

I don't know what the hell smithtr is trying to say. It would be helpful if smithtr either posted videos of him signing and/or the actual reports from his doctor because I'm damned sure his doctor didn't say "allow I plant remove everything all"
 
ecp said:
What are you saying?
Vertigo and hearing loss often go hand in hand because the same or similar types of hair cells that are involved with hearing in the cochela are involved with balance in the semicircular canals and sacculae.

I don't know what the hell smithtr is trying to say. It would be helpful if smithtr either posted videos of him signing and/or the actual reports from his doctor because I'm damned sure his doctor didn't say "allow I plant remove everything all"
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He said he got some spasms from electrical stimulations from the CI. That's not uncommon. Lissa has to have her MAP reduced due to spasms in her eye caused by the CI .

He also said he feels lucky the doctor agreed to explant 1 year ago, and that he feels his health is better now.
Oh and as for the metal reference, they stopped his MRI last year because they thought a piece of metal from the CI was left after explant, but it turned out to be something innocent that the tech saw.
 
ecp said:
What are you saying?
Vertigo and hearing loss often go hand in hand because the same or similar types of hair cells that are involved with hearing in the cochela are involved with balance in the semicircular canals and sacculae.

I don't know [what the!?] smithtr is trying to say. It would be helpful if smithtr either posted videos of him signing and/or the actual reports from his doctor because I'm [dang]ed sure his doctor didn't say "allow I plant remove everything all"
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I had some healthy normal but I had sparsm twitch understand. I had sparsm. I have some probleem with dizzy. I don't have issues sparsm. I have sparsm and. I have sparsm some loss my leg and arm is some twitch eye twitch. I don't understand. It is seriously last ago my gp is don't understand. it is very riskly cochlear damage to my head but MRI. I am not sure However electeric is inside head is very dangerous. unfornately. i think so magnet so rate electeric 22 or 25. Doctor didn't tell me. I permission to Dr. Otologoloy engineer expertisement to remove implant. can possible to treatment..

Bottesini said:
He said he got some spasms from electrical stimulations from the CI. That's not uncommon. Lissa has to have her MAP reduced due to spasms in her eye caused by the CI .

He also said he feels lucky the doctor agreed to explant 1 year ago, and that he feels his health is better now.
Oh and as for the metal reference, they stopped his MRI last year because they thought a piece of metal from the CI was left after explant, but it turned out to be something innocent that the tech saw.
Click to expand...

Thank advise point. I am doesn't understand however to how feeling sparsm is very loss my muscle on my eye twitch and leg sparsm some twitch seriously really body system not good. it I disappointment with cochlear implant is it is very alots of cochlear implant riskly for health highly. I avoid cochlear implant. It is very will destory my health.

ago year MRI is very something. caregiving said relief something I told seriously. it is very something. Yes. that is right I had trauma some than I was some serious cochlear implant very happened dont know when recovery. it is very seriously cochlear implant is very highly.

Caregiving knew everything specialize trust to MRI, neurogist and doctor, nurse wholes. caregiver is very trust expert specialist wholes everything I do patient better coming I am working better improve. I am lucky.
 
Frisky I was implanted in 2009 it did affect my balance for a few weeks after surgery and seemed worse at times and I used a cane when needed but it cleared up on its own after awhile. That and I had a slight metallic taste on the implanted side but that went away over time too. I've had tinnitus as long as I can remember and the CI surgery didn't worsen or make it better either one and its in both my ears not just the implanted side. Another thought I had, not sure what brand of CI your hubby has but mine is Cochlear and the internal part has a 10 year warranty on it. If his has is similar I'd try to find a dr to figure it out soon so if it is a bad implant it'll be covered and they should replace it at no charge but the hospital would probably charge for the surgery itself. Hope it gets better.
 
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