This is about twin girls now 5 years old who have Alzheimer's....
Hempel Twins
Hempel Twins
I didn't know there is children's Alzheimer's...
- Thread starter Buffalo
- Start date
November Gypsy
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I saw that, but I can't make myself watch it. It's too disturbing. Poor babies.
I have heard of the children's alzheimers niemann pick before, it has been in the UK news quite recently, 2 children in the UK have been diagnosed with the worst case of niemann, it's so sad. No children should have to suffer, NOBODY should have to
Right... no children AND adults should have suffer this.
5-Year-Old Twins with Alzheimer's
Addison and Cassidy Hempel, both 5, hardly ever possess the ability to walk, talk and eat. A rare disease they both share causes their bodies to build up cholesterol, leading to debilitating physical and neurological problems. The two girls must resort to wearing diapers and lost the ability to speak months ago. There is no known cure for this disease, officially know as National Niemann-Pick Disease but referred to by doctors as Childhood Alzheimer’s. Most children with the disease die before their 20th birthday.
However; there may be hope in the experimental use of a drug called cyclodextrin. Cyclodextrin, an additive in cholesterol-free foods that studies show also might help combat the HIV virus, has not yet procured approval from the FDA for use in the treatment of Childhood’s Alzheimer’s. The Hempels now receive the treatment after their parents and doctor petitioned for the FDA’s “compassionate use” program. The program allows patients with life-threatening illness to use as-of-yet unapproved treatments if said patients find no other medicinal options available.
5-Year-Old Twins with Alzheimer's - Strollerderby
Addison and Cassidy Hempel, both 5, hardly ever possess the ability to walk, talk and eat. A rare disease they both share causes their bodies to build up cholesterol, leading to debilitating physical and neurological problems. The two girls must resort to wearing diapers and lost the ability to speak months ago. There is no known cure for this disease, officially know as National Niemann-Pick Disease but referred to by doctors as Childhood Alzheimer’s. Most children with the disease die before their 20th birthday.
However; there may be hope in the experimental use of a drug called cyclodextrin. Cyclodextrin, an additive in cholesterol-free foods that studies show also might help combat the HIV virus, has not yet procured approval from the FDA for use in the treatment of Childhood’s Alzheimer’s. The Hempels now receive the treatment after their parents and doctor petitioned for the FDA’s “compassionate use” program. The program allows patients with life-threatening illness to use as-of-yet unapproved treatments if said patients find no other medicinal options available.
5-Year-Old Twins with Alzheimer's - Strollerderby
