Baby's reactions to their with cochlear implant

sallylou said:
They don't post on other threads either. No socializing or chatting.
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Well, they are not interested in the other things here. They are parents of implanted children, and that is their interest.
 
Very good point, Botts. It is why I read certain threads and categories. I suppose others do the same. :)

And, unfortunately, some of those same parents have been the subject of unrelenting nitpicking here. I mean, we are deaf, yes, but we're not dumb. We are capable of seeing through the agenda that some posters have. I suspect many have picked up on this as well, and don't bother socializing. I wouldn't, either. :(
 
AlleyCat said:
Very good point, Botts. It is why I read certain threads and categories. I suppose others do the same. :)

And, unfortunately, some of those same parents have been the subject of unrelenting nitpicking here. I mean, we are deaf, yes, but we're not dumb. We are capable of seeing through the agenda that some posters have. I suspect many have picked up on this as well, and don't bother socializing. I wouldn't, either. :(
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Ah, wisdom beyond the years. So true.
 
That is why you aid them and then test them again and again.
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yes I know. On the other hand, how do you tell how severe the loss is with just ABR? Behavoiral testing with babies would be really hard to do. There ARE kids who would qualify right off the bat, I know that, as there have ALWAYS been babies who don't respond well to aiding at ALL.
 
deafdyke said:
yes I know. On the other hand, how do you tell how severe the loss is with just ABR? Behavoiral testing with babies would be really hard to do. There ARE kids who would qualify right off the bat, I know that, as there have ALWAYS been babies who don't respond well to aiding at ALL.
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Yes, they can tell the severity of a loss with an ABR up to 90 db with an ABR and 110 db with a ASSR (I think those are the right numbers with the right tests). And no, a goog pediatric audiologist they can get a good booth test by about 4-6 months old.
 
Severity of loss is a miniscule point. Actually tells very, very little about functional performance.
 
faire_jour said:
Right, you don't know, because you are not a member of ci circle. I am. I am upset because you are trying to disparage an entire group of people, most of whom you have never spoken to, and I value ci circle as a resource for myself and other parents. Why do you make broad, blanket statements about people you don't know? It isn't the first time you have said things about ci circle, a group with whom you have no experience at all.
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FJ,

Sorry, I missed the "bat signal" but I have been on a self-imposed exile the last few weeks as its been a whirlwind of activity for my younger daughter: proms, award ceremonies, an amazing run with her high school softball team through the playoffs that left them one game shy of the States and graduation!

What you have written about the ci circle is so very true.* It is and has been for many years a unique and wonderful resource for parents of cochlear implanted children or those parents considering the implant for their child. While there are many strong personalities and people with passionate views on the ci circle what has made it truly unique is that, unlike this forum, arguing is not allowed and people actually discuss and offer assistance to one another.

I do not follow the ci forum as much as I used to but my wife does and we have never seen any "rallying cry" for members to go to the assistance of another member on another forum.* The fact that there are only a handful of ci-circlers on All Deaf is the best rebuttal to that nonsense.

Rick
 
iowa boy, we have PM here but you don't have enough posts to use it yet. When you have more posts, PM me if you want to know more about AIM and Skype.
 
Someone once made another excellent point re: implanting their children.
Someone asked the deaf against implanting very young children "and why would your choice be better than mine"?

Indeed, I wondered, why would YOUR choices be better than mine, I wondered.
All anyone is trying to do, is the best for their children.

What I found especially disgusting about the deaf community is how the parents of CI-ed children who are proud of their children achievements are in reply told "that's not good enough", are constantly put down, humiliated, belittled and told they know nothing.


How different would that be if there was some genuine interest and modicum of real partnership on the part of the deaf community in how the CI-ed children are doing, how it can benefit them (the deaf) and how it can be incorporated into the deaf culture (the CI). (yes, it CAN, just as HAs did)

Fuzzy
 
Some like to do their own self-flagellation thing while everybody looks at them like they're nuts. They can't keep their mouths shut.
 
Audiofuzzy said:
Someone once made another excellent point re: implanting their children.
Someone asked the deaf against implanting very young children "and why would your choice be better than mine"?

Indeed, I wondered, why would YOUR choices be better than mine, I wondered.
All anyone is trying to do, is the best for their children.

What I found especially disgusting about the deaf community is how the parents of CI-ed children who are proud of their children achievements are in reply told "that's not good enough", are constantly put down, humiliated, belittled and told they know nothing.


How different would that be if there was some genuine interest and modicum of real partnership on the part of the deaf community in how the CI-ed children are doing, how it can benefit them (the deaf) and how it can be incorporated into the deaf culture (the CI). (yes, it CAN, just as HAs did)

Fuzzy
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All outstanding points. Truth is that nobody can say that one choice is better than the other. Every situation is different and should be taken on a case by case basis. In one scenario it may be better to implant and in others not. My crystal ball is in the shop because the damn thing never works.
 
Audiofuzzy said:
Someone once made another excellent point re: implanting their children.
Someone asked the deaf against implanting very young children "and why would your choice be better than mine"?

Indeed, I wondered, why would YOUR choices be better than mine, I wondered.
All anyone is trying to do, is the best for their children.

What I found especially disgusting about the deaf community is how the parents of CI-ed children who are proud of their children achievements are in reply told "that's not good enough", are constantly put down, humiliated, belittled and told they know nothing.


How different would that be if there was some genuine interest and modicum of real partnership on the part of the deaf community in how the CI-ed children are doing, how it can benefit them (the deaf) and how it can be incorporated into the deaf culture (the CI). (yes, it CAN, just as HAs did)

Fuzzy
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Great post Fuzzy, glad to have you back. Gosh if only Cloggy would return!

Often wondered about the make-up of those people who keep constantly telling us that the choices we made for our child were destructive but yet they have never met us or more importantly, our child. There is so much more to parenting than being a slave to the latest "research" or "study", its about your child, recognizing them as a unique individual, meeting their needs and giving them the opportunity to be all that they can be.

I have always maintained that one of the tremendous unexpected benefits of giving our child the benefits of a cochlear implant was becoming a part of the ci community. The most helpful and supportive people we met along the way, especially at the start, were the many deaf adults with cis who shared their experiences with us.

Once again, welcome back!
Rick
 
What I found especially disgusting about the deaf community is how the parents of CI-ed children who are proud of their children achievements are in reply told "that's not good enough", are constantly put down, humiliated, belittled and told they know nothing.
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Who is doing that? The only thing I see is people using other's children achievements in debates to discredit deaf people's experiences. Plus, people sometimes use CI achievements to advocate CI especially in blogs because CI companies tell clients to talk to other CI clients/parents about their concerns --

We had "achievements" growing up too with HA, you know.

as far as deaf community, well, I've already seen most them have their own circle of friends and have no interests in ASL so far.

But anyway, I do had enough because I don't feel comfortable to express how I feel. debating and decrediting our achievements because of stupid evolution of techologies is just not me anymore.
 
Who is doing that? The only thing I see is people using other's children achievements in debates to discredit deaf people's experiences. Plus, people sometimes use CI achievements to advocate CI especially in blogs because CI companies tell clients to talk to other CI clients/parents about their concerns --

We had "achievements" growing up too with HA, you know.

as far as deaf community, well, I've already seen most them have their own circle of friends and have no interests in ASL so far.
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Yes.
Exactly. ALL we are saying is that JUST as with hearing aids CIs do not 100% equalize a dhh kid. We support CIs, and think they give people SOME access to the hearing world... There's very little bashing of CIs here. CIs ARE compatible with dhh culture.
 
A said:
Who is doing that? The only thing I see is people using other's children achievements in debates to discredit deaf people's experiences. Plus, people sometimes use CI achievements to advocate CI especially in blogs because CI companies tell clients to talk to other CI clients/parents about their concerns --

We had "achievements" growing up too with HA, you know.

as far as deaf community, well, I've already seen most them have their own circle of friends and have no interests in ASL so far.

But anyway, I do had enough because I don't feel comfortable to express how I feel. debating and decrediting our achievements because of stupid evolution of techologies is just not me anymore.
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Where do you see that?

Parents often relate experiences about their ci children and others that they personally know to disprove the constant misrepresentations about cochlear implants such as:

They cannot play sports
Their lives are nothing but constant speech therapy sessions.
They have educational, social, psychological issues or if they do not have them now they will develop them later.
They are not a part of the deaf community.
Their parents do not love them, accept them for who they are, cannot come to grips with the fact they are deaf.
Yes, your child may be successful but he/she is an exception or his/her success is tied directly to the parents' social economic standing.

What parents considering cochlear implants often want to know and learn about are the real life experiences of our kids.

Could go on and on but hopefully you get the point.
Rick
 
Some of it is true. Maybe not for you. So what, deal with it
 
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