Implanted but anti-CI?

Cloggy said:
Good thread, and great question...
Hope you get some first-hand answers.

I think it's wonderful that you are discussing it with her, but basing a decision on her opinion sounds totally wrong to me. A 5-year old is not capable of making a decision like that. The decision is completely yours.
Any doubts you might have should be dealt by you. You cannot get the answers from you daughter.

And - btw... be careful with the phrase "put to sleep".... the same is sometimes used for "killing pets" and a 5-year old might totally misinterpret the meaning....
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With all due respect, I don't think this parent is going to let the decision solely rest with her five year old. At the same time, if the child doesn't want the CI, that should be taken into consideration; as should a desire to have one. A child of her age is perfectly capable of voicing an opinion on this.

After all, it is the CHILD who will be wearing the CI; not the parent. If the child is old enough to articulate how they feel, I feel it is a parent's duty to include that child in the decision making process.

And, as for the phrasing of "being put to sleep". That's no big deal, Cloggy. A child doesn't understand any euphemisms of euthanasia. They would only understand it to mean what the parent intends for it to mean for them.
 
There just aren't that many adults out there who were implanted as young children to be able to report on this. The oldest of the 'implanted as young child' implantees (those implanted before the age of 4) are only college age now.

In my experience, it always seems like the ones I hear about who have decided not to wear their implants anymore (and frankly, these are all from hearsay since everyone I personally know with an implant is happy with it) were not implanted as young children, but as young adults, so of course their experiences will be different. These are people who have the experience of a before and after, and maybe the after wasn't all they were hoping for.

My daughter is 8 and loves her implant. Even when she had an implant failure last year and was without sound for 5 months she wore her processor EVERY DAY, all day. It is very much a part of her. I honestly could not imagine her ever taking it off and saying she wanted nothing to do with it ever again, since it IS so much a part of her life.

I think once the implanted kids of today grow up and can report for themselves, you will hear a lot less about people not wanting to wear their implants...
 
MomToDeafChild said:
There just aren't that many adults out there who were implanted as young children to be able to report on this. The oldest of the 'implanted as young child' implantees (those implanted before the age of 4) are only college age now.

In my experience, it always seems like the ones I hear about who have decided not to wear their implants anymore (and frankly, these are all from hearsay since everyone I personally know with an implant is happy with it) were not implanted as young children, but as young adults, so of course their experiences will be different. These are people who have the experience of a before and after, and maybe the after wasn't all they were hoping for.

My daughter is 8 and loves her implant. Even when she had an implant failure last year and was without sound for 5 months she wore her processor EVERY DAY, all day. It is very much a part of her. I honestly could not imagine her ever taking it off and saying she wanted nothing to do with it ever again, since it IS so much a part of her life.

I think once the implanted kids of today grow up and can report for themselves, you will hear a lot less about people not wanting to wear their implants...
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That is certainly a possibility. However, it is just as possible that we will hear of more who choose not to wear their implants. It could play out either way. I am quite certain that we will certainly continue to hear of numerous childhood implantees who opt to learn sign after being restricted to an oral only environment and relate stories of "coming home" to the deaf community.
 
MomToDeafChild said:
There just aren't that many adults out there who were implanted as young children to be able to report on this. The oldest of the 'implanted as young child' implantees (those implanted before the age of 4) are only college age now.

In my experience, it always seems like the ones I hear about who have decided not to wear their implants anymore (and frankly, these are all from hearsay since everyone I personally know with an implant is happy with it) were not implanted as young children, but as young adults, so of course their experiences will be different. These are people who have the experience of a before and after, and maybe the after wasn't all they were hoping for.

My daughter is 8 and loves her implant. Even when she had an implant failure last year and was without sound for 5 months she wore her processor EVERY DAY, all day. It is very much a part of her. I honestly could not imagine her ever taking it off and saying she wanted nothing to do with it ever again, since it IS so much a part of her life.

I think once the implanted kids of today grow up and can report for themselves, you will hear a lot less about people not wanting to wear their implants...
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MomToDeafChild,

My daughter is in that age group that you are referring to. She is 21 and was implanted at age 2 back in 1989. I can tell you that neither she nor anyone else that we know of, and that is many kids that age as they are her contemporaries in what was then a small world, have stopped using their cis. They have grown up with their cis and are now entering the adult world with them just as your daughter will.
Take care,
Rick
 
jillio said:
That is certainly a possibility. However, it is just as possible that we will hear of more who choose not to wear their implants. It could play out either way. I am quite certain that we will certainly continue to hear of numerous childhood implantees who opt to learn sign after being restricted to an oral only environment and relate stories of "coming home" to the deaf community.
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I personally think that many of those who will decide to learn sign later in life and get involved with the deaf community will continue to use their CIs, just because they are useful. Many deaf community members still wear their hearing aids for example.
 
R2D2 said:
I personally think that many of those who will decide to learn sign later in life and get involved with the deaf community will continue to use their CIs, just because they are useful. Many deaf community members still wear their hearing aids for example.
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I wouldn't doubt that at all. We just don't know which way it will play out. But that was thepoint I was making. Whether they continue to wear their CI or choose not to wear it, we will continue to see an influx from the oral only survivors into the deaf community, and we will continue to hear stories of them experiencing the feeling of coming home of both CI users and non-CI users.
 
jillio said:
I wouldn't doubt that at all. We just don't know which way it will play out. But that was thepoint I was making. Whether they continue to wear their CI or choose not to wear it, we will continue to see an influx from the oral only survivors into the deaf community, and we will continue to hear stories of them experiencing the feeling of coming home of both CI users and non-CI users.
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That's fine. I was speaking in the context of non use of the CI and I personally suspect that CI users won't be any different to hearing aid users coming later in life to deaf culture who have continued to wear them in large numbers. Especially since a growing number of people who are active within the deaf culture are themselves getting CIs.
 
No one mentioned peer-pressures as one of several factors that they stop using it.
 
Boult said:
No one mentioned peer-pressures as one of several factors that they stop using it.
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That's true. But I think that with more people within deaf culture getting CIs this will be less of a factor. We were speaking more of a personal, political decision not to wear a CI. I knew a few people who made a political decision not to wear a hearing aid despite having grown up with them but most people seem to continue wearing them or resume after a break.

If Jillio is correct and CI wearers join the deaf culture in droves as young adults and continue to wear them, it would be interesting to see what kind of changes that might bring about in deaf culture itself in the future.
 
Same here.

VamPyroX said:
I don't have CI, but I do have a lot of friends who have and had CI.

Some of them got CI, but stopped wearing them for the following reasons...

- overwhelming (born deaf, never experienced sounds)
- fragile (rough athlete; football, wrestling, mud tug, dodgeball, etc)
- harassment (by anti-CI deafies)
- lazy (replace battery, putting it on, putting it away, caring for it)
- quick taste (covered by insurance; nothing to lose)
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R2D2 said:
That's fine. I was speaking in the context of non use of the CI and I personally suspect that CI users won't be any different to hearing aid users coming later in life to deaf culture who have continued to wear them in large numbers. Especially since a growing number of people who are active within the deaf culture are themselves getting CIs.
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Can't disagree with that.
 
(sighing) I am not anti-CI! Why you guys are argue over CI for children?? I do understand that you want children to learn sign language early. Some children want to have CI for reason. But I do not support for parents don't use sign language to communicate with CI children. I can't believe that Vlog show up of children do not use sign language just use a lipreading and writing. Her parents don't use sign languages. What's wrong with children's doctors for not tell parents about sign languages?? :roll: I wish you read my thread answer my question. I need to know. Nobody comment it and just view. Just 2 person posts that all. I want more. Please check it out here http://www.alldeaf.com/sign-language-oralism/51892-my-view-sign-language-non-sign-language-ci.html

Can you answer my question please?? Thank you! :) I am so sad about my cousin isn't allow her son to learn sign languages.

If you guys are complain about hearing parents don't use the sign languages to communicate with ci children. They didn't hear from children doctor's mention about sign language. Why not make a laws for all doctor need to tell parents to learn sign language like a baby sign languages. They need to use a common senses!!! Baby sign languages isn't hard and hurt!
 
R2D2 said:
That's true. But I think that with more people within deaf culture getting CIs this will be less of a factor. We were speaking more of a personal, political decision not to wear a CI. I knew a few people who made a political decision not to wear a hearing aid despite having grown up with them but most people seem to continue wearing them or resume after a break.

If Jillio is correct and CI wearers join the deaf culture in droves as young adults and continue to wear them, it would be interesting to see what kind of changes that might bring about in deaf culture itself in the future.
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I think we have already begun to see some changes, don't you? Perhaps small and slow, but changes all the same.
 
The CI user with ASL lady on Vlog. Did you see her on video?? She said will have a CI Education at Gallaudet University.

I know you're coming from in Australia. Are you using Aussie Sign language or American Sign Language? Yeah I am sure CI people will into deaf culture to encourage for everyone to get a CI. If Deaf Adult make a decide to get CI when they are very skill at ASL. I am very good on ASL too. I am still take a CI in future. :)


R2D2 said:
That's true. But I think that with more people within deaf culture getting CIs this will be less of a factor. We were speaking more of a personal, political decision not to wear a CI. I knew a few people who made a political decision not to wear a hearing aid despite having grown up with them but most people seem to continue wearing them or resume after a break.

If Jillio is correct and CI wearers join the deaf culture in droves as young adults and continue to wear them, it would be interesting to see what kind of changes that might bring about in deaf culture itself in the future.
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No one answer my question.

Pinky678 said:
(sighing) I am not anti-CI! Why you guys are argue over CI for children?? I do understand that you want children to learn sign language early. Some children want to have CI for reason. But I do not support for parents don't use sign language to communicate with CI children. I can't believe that Vlog show up of children do not use sign language just use a lipreading and writing. Her parents don't use sign languages. What's wrong with children's doctors for not tell parents about sign languages?? :roll: I wish you read my thread answer my question. I need to know. Nobody comment it and just view. Just 2 person posts that all. I want more. Please check it out here http://www.alldeaf.com/sign-language-oralism/51892-my-view-sign-language-non-sign-language-ci.html

Can you answer my question please?? Thank you! :) I am so sad about my cousin isn't allow her son to learn sign languages.

If you guys are complain about hearing parents don't use the sign languages to communicate with ci children. They didn't hear from children doctor's mention about sign language. Why not make a laws for all doctor need to tell parents to learn sign language like a baby sign languages. They need to use a common senses!!! Baby sign languages isn't hard and hurt!
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I would never consider putting a CI implant on my kids and yes I have kids with a hearing loss. I am thankful my kids do very well with heariing aids in the mainsteam school system. And they are in college doing quite well with support services... I know a few people that quit wearing their CI, one had 2 internal implant failures, one is bitter with their parents for putting a CI in as a child... And yes, people should learn to use sign langauge with their children with a hearing loss. With or without a CI.. that child will NEVER EVER hear like a hearing person... And I have a CI myself just a few weeks ago. Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say.. I was describing to my audie how the sound was in college words !!! Fortunely, I was in the CI research group back in the
80's. I waited as long as I could for technology to catch up before getting the implant myself. And I am very glad I waited and I am very glad I only had ONE ear implanted..My heariing aid ear can still hear sound fairly well and naturally... So, parent's of deaf children, learn sign langauge and don't live in denial. Your child have a hearing loss , deal with it ..The sonner the better for the both of you...
 
Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say..
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South Fella,
GOOD POINT. That is EXACTLY why I think that ambigious cases should wait til they are a little older to be implanted. Yes, implant the kids who REALLY need it. But, again it is very difficult to tell how well a little kid hears.
 
SouthFella said:
I would never consider putting a CI implant on my kids and yes I have kids with a hearing loss. I am thankful my kids do very well with heariing aids in the mainsteam school system. And they are in college doing quite well with support services... I know a few people that quit wearing their CI, one had 2 internal implant failures, one is bitter with their parents for putting a CI in as a child... And yes, people should learn to use sign langauge with their children with a hearing loss. With or without a CI.. that child will NEVER EVER hear like a hearing person... And I have a CI myself just a few weeks ago. Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say.. I was describing to my audie how the sound was in college words !!! Fortunely, I was in the CI research group back in the
80's. I waited as long as I could for technology to catch up before getting the implant myself. And I am very glad I waited and I am very glad I only had ONE ear implanted..My heariing aid ear can still hear sound fairly well and naturally... So, parent's of deaf children, learn sign langauge and don't live in denial. Your child have a hearing loss , deal with it ..The sonner the better for the both of you...
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We need more people like u advocating the use of sign with their kids whether they have implants or not. Yep, there are times I feel like telling some of the parents of our deaf students that they need to stop wishing for the day their kid will hear and talk like hearing children and to pls start learning sign language for their sakes! Parents who are in deep denial for too long hurt their children in the long run.
 
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