Cochlear Implant Patients.

[zebadee2010]

Tomorrow is supposed to be my implant date. and we got about 15 inches of snow yesterday. I'm worried now that they are gonna cancel my operation. And if they do then everything is gonna change for me... My out of pocket expense is paid in full for the rest of this year and if i have to wait till the beginning of next year, I'll have to come up with 5 thousand out of pocket expenses to pay which I don't have... So now i don't know what I'm gonna do... i hope this snow melts.

I would say that most likely as long as you can make it to the hospital they will still perform the surgery! Best of luck

 

[zebadee2010]

Dont worry about pfh.. he's purrfectly fine where he is at.

I honestly can't imagine how anybody is perfectly fine in hell?!

 

[rick48]

Tomorrow is supposed to be my implant date. and we got about 15 inches of snow yesterday. I'm worried now that they are gonna cancel my operation. And if they do then everything is gonna change for me... My out of pocket expense is paid in full for the rest of this year and if i have to wait till the beginning of next year, I'll have to come up with 5 thousand out of pocket expenses to pay which I don't have... So now i don't know what I'm gonna do... i hope this snow melts.

Hope you were either able to have your surgery or to reschedule it for this week. Wishing you good luck!
Rick

 

[Frisky Feline]

pontifcating? Poontifcating? Do I see a subliminal desire to do something there? You sly guy you.

But in all of seriousness, stop typing like you know your stuff and type like everyone else please, I'm TRYING hard to read your posts. Which I feel like I'm doing you a favor that I shouldn't be doing.

ha please process what you should be doing.

I honestly can't imagine how anybody is perfectly fine in hell?!

I guess yeah.

 

[jillio]

Well if you knew more than 35 people with cochlear implants and were truly the "expert" you proclaim yourself to be then you would be aware of the fact that there are people who were reimplanted due to device failures.

Having an implant for the rest of one's life is indeed the reality for the overwhelming majority of implant users.

Rick

Yep. Knew that. Which means that you cannot count on having the implant you have now for the rest of your life, as you implied. Often times, reimplantation is necessary. Which means more surgery, more risk of less benefit, and more surgical risk. Maybe you are willing to place those risks and all of that pain on a small child simply for the sake of sound; I'm not. Deafness doesn't risk a life.

 

[jillio]

She didnt blow it. Comments like that are very audist.

I didn't blow it. I made a conscious choice not to place those risks and that pain on my child when there were just as effective and non-invasive ways to live a complete and full life without having sound forced on him.

I'd say the one that blew it was the one that decided those risks were more important the child, had their child implanted prior to them even being approved for pediatric use, and then had to have the kid go through it all again due to devise failure. Oh, yeah, hearing is that important.

 

[jillio]

WOW just WOW! With a statement like that then you are against reconstructive knee surgery for your child as well,because well walking is just that important right? I dont see that as sarcasm I see that as sadistic!

Reconstructive surgery is a completely different issue. So, allowing a child to function holistically and without medical intervention for something that does not need medical intervention is sadistic?

I'd like you to tell that to my son's father, as he was a physician, and agreed that medical intervention was not needed.

 

[jillio]

Eh? I've had reconstructive surgery done in my right knee, but I do not consider that to be a part of my identity. I do, however, consider my deafness to be a part of it.

There you go. Not to mention which, issues with the knee joint not only limit mobility, they also create a great deal of constant pain. Deafness doesn't hurt. At least not until you try to cut it out.

 

[jillio]

Just be aware this can get ugly very quickly...(not by me)

While I can understand your sentiments, there are aspects you need to be mindful of. Many deaf see their deafness as a badge of identity (Beowulf later said this) and it doesn't need "fixing". Jillio and others have seen too often that just "slapping" a CI into a child doesn't solve the problem where that child is concerned. It gets real complicated, controversial and emotional.

Thank you. Far too often, the CI is used as an excuse to limit a child to an oral only environment. That is a complete misuse of implantation.

As far as adults are concerned, they can make those choices for themselves. I have no problem with that. I do have a problem, however, when a child is seen as ears and a mouth primarily.

 

[drphil]

A minor point for Mister Potts: my use of the word "pontification"-check the dictionary. Not to pontificate, of course.
Since you seem to be source of PFH assertions re complete healing/hearing within one day of implanting.To ask specifically: within 24 hours of operation you were " healed" Implant activated and could "hear" completely. You left the hospital in great shape. How you recovered so quickly VS most of us over a period of weeks- 2 to 6 is unexplained. Has your doctor passed this "revised surgical procedure" via medical journals to other doctors to emulate? As I remember back at my operation -July 12. 2007 I could go swimming after 2 weeks but had to wait an additional 2 weeks to be activated by mapping. That is when they removed the "stitches". I understand that the external processor HAS TO BE MAPPED in order one to hear which of course is based on you say you are hearing. For most of us seems to take a few-5 to 10?- separate sessions. I guess you are singularly lucky-only one needed.
I am aware this a computer screen and anyone can key "anything" - yeah it looks "real".
Is this now standard procedure at the medical centre that you were implanted-ONE DAY COMPLETE RECOVERY?
Enough for the moment Mister Potts as I await with interest your response.

Implanted Advanced Bionics-Harmony activated Aug/07

 

[drphil]

Jillio: this is short. You have a deaf son not a daughter. You decided that he should have not an Implant. That is your choice as I have said many times-no comment.
Is your multiple comments re Implants- signifying something? I am not a therapist.



Implanted Advanced Bionics-Harmony activated Aug/07

 

[jillio]

Dude, you have really got to STOP with the double submissions of your posts. We can get everything you have to say with one submission.

 

[LoveBlue]

A minor point for Mister Potts: my use of the word "pontification"-check the dictionary. Not to pontificate, of course.
Since you seem to be source of PFH assertions re complete healing/hearing within one day of implanting.To ask specifically: within 24 hours of operation you were " healed" Implant activated and could "hear" completely. You left the hospital in great shape. How you recovered so quickly VS most of us over a period of weeks- 2 to 6 is unexplained. Has your doctor passed this "revised surgical procedure" via medical journals to other doctors to emulate? As I remember back at my operation -July 12. 2007 I could go swimming after 2 weeks but had to wait an additional 2 weeks to be activated by mapping. That is when they removed the "stitches". I understand that the external processor HAS TO BE MAPPED in order one to hear which of course is based on you say you are hearing. For most of us seems to take a few-5 to 10?- separate sessions. I guess you are singularly lucky-only one needed.
I am aware this a computer screen and anyone can key "anything" - yeah it looks "real".
Is this now standard procedure at the medical centre that you were implanted-ONE DAY COMPLETE RECOVERY?
Enough for the moment Mister Potts as I await with interest your response.

Implanted Advanced Bionics-Harmony activated Aug/07

Where does PFH say his friend had "complete healing/hearing within one day of implanting"? He said his friend was ACTIVATED within one day.

 

[Deaffy]

There you go. Not to mention which, issues with the knee joint not only limit mobility, they also create a great deal of constant pain. Deafness doesn't hurt. At least not until you try to cut it out.

Deafness does'nt hurt? ahhhh love it a non deaf individual that never felt the isolation that a deaf person does and can feel from the outside world thats not pain? may not be of physical proportion's but it's still pain non the less.. walk a mile in ones shoes jillio.

 

[jillio]

Deafness does'nt hurt? ahhhh love it a non deaf individual that never felt the isolation that a deaf person does and can feel from the outside world thats not pain? may not be of physical proportion's but it's still pain non the less.. walk a mile in ones shoes jillio.

I'm talking about physical pain. The pain you feel from isolation is not a direct result of the deafness, but of the way hearing society treats those who are deaf.

I have spent 24 years learning to walk in the shoes of the deaf, both from direct and indirect experience. And everything I have learned shows me that deafness is not the culprit. One can lead a perfectly productive, happy, satisfying life with no hearing. It is the way one perceives themselves as a result of that deafness, and the obstacles that society places in the way. There are still many more deaf in this world without CI than with CI. Are you possibly suggesting that their lives have no meaning, or that they are not capable of maintaining a job, or relationships? Are you suggesting that they must submit themselves to the risk of surgery, or that they must willingly place their child in a surgeon's arms to suffer pain they will not be able to understand in order to be functioning human beings?

 

[jillio]

Where does PFH say his friend had "complete healing/hearing within one day of implanting"? He said his friend was ACTIVATED within one day.

Evidently, drphil has a bit of trouble understanding the difference between being activated, and actually hearing with the devise.

 

[Banjo]

I'm talking about physical pain. The pain you feel from isolation is not a direct result of the deafness, but of the way hearing society treats those who are deaf.

I have spent 24 years learning to walk in the shoes of the deaf, both from direct and indirect experience. And everything I have learned shows me that deafness is not the culprit. One can lead a perfectly productive, happy, satisfying life with no hearing. It is the way one perceives themselves as a result of that deafness, and the obstacles that society places in the way.

Bingo.

 

[Deaffy]

Wow so. CI is bad bad bad... Well I function quite well with my CI and would be thrilled if every child could do what I do with my implant. Since you never experienced what some of us actually do. Then all you can go by is what you hear and not what you feel! I have no qualms with people choosing to remain deaf without assistance. Furthermore I think a parent who looks at ALL options for their child be it CI or asl or speech reading is a far better approach than a parent that sit's idle and does fk all for their child and then belittles the child for not functioning well within society.

 

[jillio]

Wow so. CI is bad bad bad... Well I function quite well with my CI and would be thrilled if every child could do what I do with my implant. Since you never experienced what some of us actually do. Then all you can go by is what you hear and not what you feel! I have no qualms with people choosing to remain deaf without assistance. Furthermore I think a parent who looks at ALL options for their child be it CI or asl or speech reading is a far better approach than a parent that sit's idle and does fk all for their child and then belittles the child for not functioning well within society.

Who said CI is bad, bad, bad?

You are incorrect. I go by what I feel. Empathy for those that are constantly told they are "less than" simply because they do not see a CI as necessary to improve their lives.

If it was the right decision for you, then that's great. As for every child....can't agree. I chose not to have my son implanted, and as an adult, he sees no need for it, either. He is a graduate student at a well known hearing college, and is perfectly productive and happy. In fact, I know plenty of hearing folks that aren't as productive and happy as he is stone cold deaf.

I checked out all options. I decided to take the one that left my son medically unaltered. The risk and the pain was not worth it, when everything I investigated indicated to me that he did not have to have hearing in order to be a whole person. And, for what is to be 25 years next month, he agrees with me.

 

[Deaffy]

kudo's for you to make that decision for YOUR child. But some of these parent's on the board are making decision's for THEIR child not your's. Where do you have the right to tell them their decision is wrong? When I or some of the others here never said anything about your decision. Not everyone has the same views as you do. This is what gets me. These parents are doing what they feel is right for their child. Mind you that child will always be deaf regardless of CI or not and that child will also have the ability to learn ASL if he/she so chooses.