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I have NF2. So regardless of surgery or not I would have lost my hearing anyway. Ive had 3 brain surgeries and through the process of removing my tumors i have lost all hearing. But im thankful for the surgeries because i would have lost my life without them.

Yeah it sucks haha id love to beable to smile normally again.

A neurologist would be able to tell you if you have NF2 or not after a MRI. i was noticing i was having problems hearing so i went to my doctor and asked after i got directed to my neurologist we discovered thats what i had. I have facial palsy in the right half of my face too from a brain...

Hi, I would love to meet up with some fellow deaf people in the Seattle area. i have been deaf for a little over 2 years and have yet to learn much sign language past the basics. i think being around other people who sign would be good for me.

You are very strong. I honestly dont know if i could handle being completely blind on top of being completely deaf. I know people always say its not to hard to addapt but i just dont know if i honestly could.

Thats good. I may lose vision in my right eye eventually as well. Bllindness is more common than deafness from this condition so i am thankful i lost my hearing over my vision.

Neurofibromatosis Type II (or "MISME Syndrome", for "Multiple Inherited Schwannomas, Meningiomas, and Ependymomas") is an inherited disease. The main manifestation of the disease is the development of symmetric, non-malignant brain tumours in the region of the cranial nerve VIII, which is the...

How has he handled it. Is he deaf, blind from it? Hope its ok to ask

Well, thats what I have. Does anyone else also have this condition? 2.5 years ago is when I lost my hearing to this disease. I've undergone 2 brain surgeries and a spinal surgery since then to help remove some tumors and I start radiation treatment in a month or two.

:wave:

My name is Chad. Ive been deaf for 2.5 years and have never been taught ASL but i have self taught myself the basics. let me know if you want to chat on skype my name is; Sidmanbro

oh thank you very much im still new to this site so i dont know where to look lol

Does anyone Video chat on skype? I only know basic ASL im still learning but if anyone would like to chat with me on skype let me know =]

Thank you. =]

My name is Chad, Im 19 almost 20. I lost my hearing almost 2 and a half years ago due to surgery. If you would like to know more on why and the details just ask. im pretty open person and nothing you ask will offend me. Im straightedge and always will be.