Wanna be a part of a book on Deaf/ HOH?

[RonJaxon]

Some of you might have read a post I made not long ago about Understanding Late Deafened. You can check it out here - Understanding Late Deafened (An Excerpt). I'm so glad it was well received and helped a few people.

Well, under the advice of a friend who has published a number of books. I'd like to ask you all if you might be able to contribute to this project.

First let me tell you that this project is not for the money. Once it's completed it's going to be given to anyone who might find it helpful or interesting. It's purpose is to compile experiences, advice and suggestions to help those who could benefit from it. It's mainly intended for people who has lost their hearing or people who are close to someone with profound hearing loss.

In fact every word I've written so far is on line and free to all and you'll be able to see it at it progresses. You can go to the below link and watch it progress. I'm using google documents to share what I've written so far. You can check it out here:

Late Deafened Google Docs

So what I'm asking all of you is to imagine you are talking to someone who has lost their hearing, or someone who is close to someone who lost or is loosing their hearing. What would you tell them? What experiences would you share? What advice and tips would you give them?

If you can take the time to do this. Feel free to post them here or post a google document like I did above and link to it. My plan is to break them down into the right structure once enough is compiled. For example when I write about lip reading and if you write something about that. What you wrote might be included in that section and so forth. Of course your name, if you want it there, will be included as it's source.

I'm sure we all have something to contribute. Even if you are one of the member of AD who isn't deaf but are close to or related to someone who is. The idea is to help people like you who might now or will be going through something similar. You can read some of what I've written above for some examples.

Thanks for your time.

Ron Jaxon

 

[RonJaxon]

I figured I'll clarify this thread by just being more direct.

If you where asked to talk to someone who is making the adjustment from being hearing and becoming deaf or profoundly HOH. What would you tell them to be helpful?

If you where talking to a friend, spouse, family member, parent ,etc... of someone who has become deaf or HOH. What would you tell them to be helpful?

It can be anything that you think might help them. You can share experiences such as situations you, as a deaf person or a person who to someone who is, that where somehow connected to their hearing loss.

Maybe you have advice on some aspect. For example when ordering food at a restaurant. What would you tell them that might make this easier for the person with hearing loss or the person close to them?

What makes things easier for you to communicate or what annoys you sometimes?

Let me share some examples of different topics that might end up in this essay/book.

-What is it like to be deaf or HOH?
-How to better communicate.
-Funny stories
-Dealing with hearing loss denial
-Coming to terms with hearing loss
-Never do this (Things that annoy us who are deaf or HOH
-Therapy
-Inspirational stories or people who are deaf/HOH
-Humor about hearing loss or deafness (A way to deal with situation)

There can be more. It'll all be structured later and please share any suggestions. This is focused on being something to give to people who might benefit from it and tell them that they aren't alone, there are ways to make things easier and people who can help.

So please share anything you feel is worth saying about this. It will be worth the time if just a few people find it helpful in some way. There are plenty or pamphlets and books out there on this subject. But I feel people like us, who are or have gone through it, will be better to share advice then doctors who just study it. We live it and can give real world advice and experiences.

Ron Jaxon