Wally Lewis urges CI (Australia)

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Lewis urges deaf to consider implants
07:56 AEST Fri May 28 2004


The man known to rugby league fans as The King still chokes back tears when he talks about the most important day in his life - and it has nothing to do with sport.

For former Brisbane Bronco and State of Origin player Wally Lewis, the day his profoundly deaf daughter was able to hear is his most memorable.

Doctors discovered Jamie-Lee Lewis was deaf when she was just a year old.

The option of a cochlear implant was presented to the Lewis family and they decided to go ahead with the operation three years later, despite some criticism that their child was too young.

But 13 years on, Jamie-Lee is like any other teenager playing her music too loud - but not because she can't hear.

And her dad has now become the face of a new campaign, Break the Silence, which aims to convince older Australians to have the implant.

Lewis said his family had no regrets about Jamie-Lee's operation.

"It might be nearly 13 years ago, but I'll never, ever forget it," Lewis told reporters at the campaign launch.

"I shed tears at that time and I don't care how many times I tell the story, I nearly shed them every time."

Professor Graeme Clark, who invented the implant, said he was surprised to find 26,000 people over the age of 65 lived in a world of silence.

He said that if one third of those people got an implant it would return $100 million to the economy.

"We now need to let senior deaf people know that instead of joining a queue for a disability pension, they should start a queue for a cochlear implant," Prof Clark said.

"This matter is now urgent as the number of deaf people over the 65-year limit are going to double by 2051, so now is the time for us to shout for Australians to seek hearing diagnosis and treatment."

One person who did was Burnel Reeve, a retired Uniting Church minister who had been going deaf for 40 years until he got an implant in 2001.

Mr Reeve, 78, from the NSW central coast, said he found it extremely difficult to talk to his 13 grandchildren and counsel his parishioners prior to receiving the implant.

"I used to just say 'yes' or 'no' and sometimes they'd say 'look you've been wonderfully helpful' but I didn't know why," he said.
 
Deaf, hearing-impaired and hard of hearing people have THEIR own choice whether they want to get a choclear implant or remain with hearing aids.

I am profoundly deaf and I have been since birth and I have NO intentions of acquiring a choclear implant just because it would 'help me to hear' and 'cure my deafness'.

Wally Lewis was one of my rugby league idols, but now I do not know what to think of him because he is 'encouraging' us Australians with hearing loss to obtain an implant.

Wally Lewis, you should know that the choclear implant is not the CURE for deafness and hearing loss. For many people, the CI does not work effectively and therefore, those people cannot hear AT ALL and they remain DEAF.

Lewis' daughter is extremely lucky the CI works for her, but unfortunately there are many other Australians like Jamie-Lee with a CI which does not work for them.
 
I hear you, Sherrie. Although I do have a CI -- but it only works like 70% of the time for me. I do recognise spoken speech without looking directly at the speaker, but not always pick it up.
It depends on the individual who obtains a CI and how well he/she benefits from it and how much mapping and training they're willing to go through in improving their speech and auditory comphrency.

Of course, not all deaf people are able to benefit from having a CI -- it varies.
 
I think that bullshit about the economy issue. How hell can most deafies afford that kind of price? Oh come on! In usa, it cost over at least $40,000 yes in THOUSAND of DOLLARS, IF the government and hearing people want to get deafies to stop use welfare, they should pay for the cost of ci or offer JOBS that they would HIRE without turn them down.

Geez I think it ricilicious that lot of things that deafies needed to balance their life out yet still cost too high and hearing people have easy life *scoffs*

Well for my opinion, MOST I would blame government for not doing good job to enforce most of companies to hire deaf people yet that lot of deafies is on welfare. BUT keep in mind yes some deafies may be too lazy to get their ass off from couch and get to work.

for my belief, I would not put ci in young children until they are old enough to make decision for themselves to go through that. I dont mind get ci myself but not right now. I would not discrimate against any deafies that has ci like someone i know does that. I would support them all the way as long they make their choice but not pressure them.
 
I hate how the CI is presented as working equally well for everyone.
But then again, in the past hearing aids got the same PR spin so I shouldn't be surprised. Sure there are born or early deafened kids who do well and are functionally HOH with CI....but there have always been born and early deafened kids who did well with "primative analog" aids...or even the REALLY REALLY primative aids from the '30's and '40's. (when they first became popular)
Shiva, I agree with you. I don't think that the CI is going to drasticly reduce the number of dhh people on the Disabilty rolls. (with the exception of late deafened people) Yes, dhh people now have more access to the hearing world b/c of CI....but it comes at a huge price! Meaning increased health care costs! Mappings aren't free, and neither are the batteries! Neither are a lot of the other accessories.
BUT keep in mind yes some deafies may be too lazy to get their ass off from couch and get to work.
I do think there is a small percentage of deafies who are lazy-ass, but it's like welfare....If you listen to the rantings and ravings of conservatives you'd think that most people on welfare are welfare queens or don't work hard enough to make money. Most people on welfare are on it as a sort of transistory assistance. Sure there are tons of horror stories out there (my mom can tell you stories that are enough to make you want to go Republican) but most people on welfare are on it honestly! That's probaly the same story with deafies and Disabilty!

for my belief, I would not put ci in young children until they are old enough to make decision for themselves to go through that.
I would implant my child right off the bat if they had Auditory Nereopathy (hearing aids do not help at all with this condition) or really didn't get any benifit at all from traditional hearing aids. Hey...I might even opt for a BWA since size=power is still pretty much the rule.
 
deafdyke

In fact I dont need to hear what your mom telling me, I am sure lot deafies has gone through hard times just like I have done in past. Everyone has gone through hard times. I didnt say ALL deafies, read again you will see that I say SOME being lazy bum cuz I know few of them down here.

As you said, "would put it on your child right away" which is fine with me as long you just be sure to research little bit more on that before things turn for worse. The reason I kinda of put myself in dilemma of putting ci on children is because of risks that may endure in future such as allergies or migarines. Anyone can get these no matters how old they are. I am more open mind of course as long things are doing it in right way.

I know some people who are very being "closed-minded" which they take themselves too far into being against ci and oralism. I am sure some members know who I am talking about. I hate those who take those things too serious and would take extra measurements to discrimate against those ci and oralism. I dont care if they are against ci as long they dont hurt those people's (the one with ci) feelings or ruin friendship/family over that issue.
 
I do not against any CI's at all. I am too chicken out for having a MAJOR surgery which is why I decline the CI. how sad of me. I also know that I may not get it one hundred percent.

I am not comfortable that parents make the decision for their kids by putting CI in them when they are babies or toddlers. I know they get it with better chances of hearing and speak better. I can't agrue about that one.

Mr. Lewis encourages others parents who knows nothing about deaf culture or the sound of silent. I don't blame mr lewis for doing it. I understand how he feels about his own daughter that she can hear with CI. Since he does not know much about deaf culture or so and feel bad for his daughter who is deaf, but now with CI.

CI is a hot issue right now.
 
I didnt say ALL deafies, read again you will see that I say SOME being lazy bum cuz I know few of them down here.
Yeah I know. More about this in my next post

As you said, "would put it on your child right away" which is fine with me as long you just be sure to research little bit more on that before things turn for worse. The reason I kinda of put myself in dilemma of putting ci on children is because of risks that may endure in future such as allergies or migarines. Anyone can get these no matters how old they are. I am more open mind of course as long things are doing it in right way.
Well it depends. I WOULD get my kid an implant right off the bat if they had auditory nereopathy or another condition where hearing aids weren't helping too much. If they could hear quite a bit with hearing aids(40% and above) I would wait until they were older so they could help make the decision on whether or not they wanted one. I'm very uncomfortable with the fact that kids with quite a bit of residual hearing are now being implanted. I remember over at Deafnotes a few years ago there was a mother of two boys with profound losses who were both very good hearing aid users (heard around 60% with aids) who made the decision for her boys to get implanted. (They heard about 10% without aids) and I heard about a girl who got implanted who heard 80% with aids! (now THAT is redicious seeing as that was my hearing performance with aids when I was in elementary school, and I only have a moderate-moderately severe loss) I hear about people getting implanted b/c they have trouble talking in crowds (so do many hearies!) and b/c they can't talk on the phone (umm there IS something called a TTY!) and a lot of the reasons for implantation just seem so superfical now that they've loosened the restrictions on who can get one. Also, Marlee Matlin, hit the nail on the head when she said that she'd probaly not get an implant b/c hearing all the noises and sounds would be too overwheming. She's got partial access to noises and sounds via her hearing aids.
I know some people who are very being "closed-minded" which they take themselves too far into being against ci and oralism. I am sure some members know who I am talking about. I hate those who take those things too serious and would take extra measurements to discrimate against those ci and oralism.
I think the main reason why so many Deafies are against CIs is b/c they associate it with going oral only. I understand that. But the stats indicate that CI users are split evenly between oral only and TCers. :) I think also some people get mixed up between oral skills and oralism. Many(if not most) of us deafies have SOME oral skills. Being able to talk isn't a sign of being a hearie and it doesn't mean that you've turned your back on the deaf world at all. Oral skills are a pretty valuable tool in themselves. But having them doesn't mean that you follow the mindset/philopsophy of oralism.
Oralism (as a philosophy) means that given a choice between using ASL and speech, the person always chooses speech. It also means that they may have audist attitudes. (eg ASL is "speshal needs and is only for those poor wittle helpless deafies who can't hear and talk) and subscribe to hearing world values.
I have oral skills, but am not oralist at all. I've got a lot more to say but I'm being kicked off the computer!!!
 
I really do not like this article.. First of all, Professor Graeme Clark stated that he surprised that a lot of people live in a silence world.. Oh well! If people want to get Ci then go ahead get it but that doesn't mean we all have to get one.

I came on this Earth for One reason only and that reason is to Live Life. Not to make me into someone that I am not suppose to be into. I accept who I am and What I am here for.

Ci is just an extra Bonus..Maybe I do not want one that doesn't mean I am closed mind. :crazy:
 
First of all, Professor Graeme Clark stated that he surprised that a lot of people live in a silence world.. Oh well! If people want to get Ci then go ahead get it but that doesn't mean we all have to get one.
Precisely....he's very ableist and audist. Being deaf isn't this huge tragedy...I remember someone I met at school a few years ago said "Oh it must be so horrible to be deaf" Huh? Being deaf is a state of being that is equal to being hearing.
 
deafdyke said:
Precisely....he's very ableist and audist. Being deaf isn't this huge tragedy...I remember someone I met at school a few years ago said "Oh it must be so horrible to be deaf" Huh? Being deaf is a state of being that is equal to being hearing.



Yes, I agree People do think being deaf must be Horrible because they Just feel sorry that they think we couldn't do as much as being deaf than being Hearing. Like what do they Know that we do not know? LOL.
 
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