True or False?? About CI

[Oddball]

You know, this may not even be an ASL/English issue. She may have just brain farted and left one word out that would have made anyone fit better, or she may have been typing, then decided to say something else, but didn't go back and edit what was already said so it'd fit better. I do that to myself ALL the time, and leave out important words like not, wasn't, that really leaving out negatives really sucks, because end up saying the opposite if what you mean to. And my iPhone "helps" me, and it's stupid not smart.

So anyway, it's always good to clarify, and I don't think it's rude to ask for clarification. But TODtobe, you may have noticed that this is a little touchy spot for the Deaf.

Anyway, if I remember right, I think oddball has a CI. There are only a couple members that are really anti CI. In general, you'll find that implanting children is still a touchy subject and you'll find a lot more opposition there. But CI for adults? And implants in general, you won't see a lot of negativity. At least that's been my observation here.

Quite a few members have decided that a CI is not for them, but I have never seen any of them question or criticize another posters decision to get implanted. I've only seen support and well wishes.

Nope, you are mistaken. I don't have a CI even though I was told I am qualified for CI. I declined because I knew that CI is not for me anyway.

 

[Oddball]

I would agree with you, that is if that is what oddball meant, yes it's just as rude. But things can get tricky here. ASL is the first language of a lot if the posters here, and yes its different from English.....so sometimes we get misunderstandings. It's probably not what she meant.

Ok, I realized that I confuse some people with my statement regarding to CIs. It is not my intention to be rude to everyone. I just want to make a point that CIs can be beneficial to SOME people and CIs can not be beneficial to some other people. I hope my statements make clear. My apologies if my posts are considered as rude to you.

 

[ambrosia]

Ok, I realized that I confuse some people with my statement regarding to CIs. It is not my intention to be rude to everyone. I just want to make a point that CIs can be beneficial to SOME people and CIs can not be beneficial to some other people. I hope my statements make clear. My apologies if my posts are considered as rude to you.

Why would you think I thought it was rude? I didn't say anything derogatory about it, just explained how it might have happened. I'm fairly certain I didn't start the discussion about the confusion and certainly wasn't the only person who said something. Hell I thought I was pretty nice about the whole thing.

Ahh I think I'm thinking of southpaw, he's got a tiger in as avatar as well.

 

[katz4life]

Hey Ecp, FF, JClarke, and others who answered my OP:

The fact is that I did already knew the true answer on CI whether it works or not on Deaf individuals. I knew about it way long time ago that it does not work or benefit to everyone regarding their hearing loss. My point of the reason in making OP post so that the commenter learn the facts by reading this information (she's Deaf herself and non-CI user) being answered to her in case she may be just stubborn/ignorant not to listen and to whom posted on my Facebook status the other night that she said CI would help me, the post I made was which I removed in order to avoid the escalating drama. Then I made the OP question because I felt more comfortable in here than Facebook...

The first comment the same person made who said CI would help me, I was like *facepalm* I was not referring to myself but my friend who was being helpless when there were nothing else to help him with his deafness.


And as for some posters here who might did not read one of my post, that the fact I was not candidate for having CI (of course I never wanted it but if I did and still will not get any benefit from CI at all.) Because of auditory nerve damage. Also, of course Jiro was right all the way about the same subject from two years ago. The audiologist told me the same thing last year after the update hearing evalution test in order to receive a new pair of hearing aids that was covered and paid by VESID (now changed to ACCES-VR).

 

[drphil]

The above comment does make sense RE: who is "suitable for Cochlear Implant". Further if a DEAF person doesn't want to be considered -why would they even consider going to an ENT doctor for consideration?

Aside: factual-Sunnybrook/Toronto-since 1984-till a couple of months ago- they have examined 3000 referrred persons for consideration of an Implant. Only 1000 were acceptable. Of that number 18 didn't benefit from the Implant.
aside: I am one of the 1000.

What the actual situation at other Cochlear Implant centres-unknown to me.

Seems obvious-not everyone is acceptable.

Glib computer talk-notwithstanding!

 

[TODtobe]

Idiot. You are really a Tod to be?

The statement meant, everyone can't use CI.

Not nobody.

Why not just shut up until you speak deaf?

Yes. I am a junior. I start my student teaching next semester and have already done 3 practicums in classrooms.

I am an idiot for reading and believeing exactly what the person wrote? God forbid! I thought we were all using written English.

 

[Bottesini]

Yes. I am a junior. I start my student teaching next semester and have already done 3 practicums in classrooms.

I am an idiot for reading and believeing exactly what the person wrote? God forbid! I thought we were all using written English.

 

[katz4life]

yes. I am a junior. I start my student teaching next semester and have already done 3 practicums in classrooms.

I am an idiot for reading and believeing exactly what the person wrote? God forbid! I thought we were all using written english.

wtf??

 

[westernirish]

I am in the same hot seat looking into CI.. I spent enough time find what all about.. the audio said I am good cad for the right side.. but she don't know me well enough. the right side haven't wore aid since I was 5 yrs old.. so the ci may not work for that ear due to missing the sounds etc. sums up pretty much dead ear there. the left.. still wearing the aid until point where not doing any good.. then I go in the quiet life world.. I wont do the ci.. for many reasons..
the bottom line is this.. not all CI are 100% good. some may get something out of in vary % wise. some don't.. once you yank it out.. might as well forget it.. total loss. The thing I hate.. when I ask certain people who have ci.. they giving me 100% that works well for them but not telling me there are problems they went thru etc.. like a sale pitch sounds too true. took me awhile to uncover some risk and problems that effect the ci.

 

[JClarke]

Hey Ecp, FF, JClarke, and others who answered my OP:

The fact is that I did already knew the true answer on CI whether it works or not on Deaf individuals. I knew about it way long time ago that it does not work or benefit to everyone regarding their hearing loss. My point of the reason in making OP post so that the commenter learn the facts by reading this information (she's Deaf herself and non-CI user) being answered to her in case she may be just stubborn/ignorant not to listen and to whom posted on my Facebook status the other night that she said CI would help me, the post I made was which I removed in order to avoid the escalating drama. Then I made the OP question because I felt more comfortable in here than Facebook...

The first comment the same person made who said CI would help me, I was like *facepalm* I was not referring to myself but my friend who was being helpless when there were nothing else to help him with his deafness.


And as for some posters here who might did not read one of my post, that the fact I was not candidate for having CI (of course I never wanted it but if I did and still will not get any benefit from CI at all.) Because of auditory nerve damage. Also, of course Jiro was right all the way about the same subject from two years ago. The audiologist told me the same thing last year after the update hearing evalution test in order to receive a new pair of hearing aids that was covered and paid by VESID (now changed to ACCES-VR).

The friend of yours, may be overrreacting from the information she reads. That applies to the people who is against of CI. That's a shame, really.

People just needs to read the facts. You did make a good move, to post it here instead than facebook, everyone would end up in an escalated drama, where a lot of people wouldn't want to see. /facepalm.

Facts are facts. End of story.

 

[Smithtr]

Yes. I am a junior. I start my student teaching next semester and have already done 3 practicums in classrooms.

I am an idiot for reading and believeing exactly what the person wrote? God forbid! I thought we were all using written English.

if suppose why you imply or not truth? do you know imply you are shame? you are inside you feeling shame why you avoid! imply. respect to Cochlear implant fair enough you should be. Don't be bash!

 

[Granna]

More from Granna

I have read some of the comments here on this thread about my post. There was no where in my post where I stated that all deaf people should have a Cochlear Implant. I was just giving an example of my journey with the CI. Yes, I was late deafen and wore hearing aids until they no longer helped me. I went through 5 sets of hearing aids, each one strong than the one before. Before my CI, I had to communicate by writing notes. I did not know sign language and my hands were not limber enough to do sign. I tried. I did the CI as a last resort. I am glad I had it done. It works for me. When my CI was first turned on I did not start off hearing & understanding everything, and I still have trouble with some tones. I have to ask people to repeat what they say if they don't have my attention when they start talking. It hasn't been an easy road for me and I had complications during surgery and where it usually takes about 45 minutes to 90 minutes my surgery was 5 hours. I was fortunate to have the head of cochlear implants at Vanderbilt as my doctor. You do not start hearing and understanding when you first get your implant turned on. I have had mine for 8 years and still have to ask what a noise I hear is. If I am by myself and hear something that I don't know what it is scares me. I get very nervous. Don't judge me because I got an implant. That was my decision and I'm glad I chose to have it done. Will I have my other ear done? No. Even though my insurance will pay for another CI I will not go through the surgery again because of my complications. You may not have any complications. I wasn't trying to judge anyone and I was only trying to answer the question as best I could from my personal experience. I still have to use closed caption on TV but I can talk on the phone to most people. Some I can't understand. I can understand one of my daughters but not the other one. I can't understand my granddaughter on the phone. When I am talking face to face with my granddaughter I still have problems and I have to ask her to spell the word to see if I can figure it out. I also put in my first post that my friend had a child that had an implant when he was 2 years old or so and it worked for him. You shouldn't judge a person if they have a CI and I don't judge a person who can't, or choose not to, have a CI.

If you want a cochlear implant and qualify I say go for it. If you get one and don't like it there is a on/off switch. If you don't qualify or do not want on then that is fine too.

 

[Granna]

Granna replies

My response is for Granna. She thinks she knows everything, but she does not. She felt that this group is rude, but she turned first OP off in the first place. From what I understand, Granna lost her hearing later in her life. She thought CIs is beneficial to ALL Deaf people which is not true.

I NEVER said CI was for everyone. I was giving example of what I went through and Katz something jumped down my throat saying I said all deaf people were a candidate. I know they are not all a candidate. I had the CI in my left ear, which was my bad ear. I had 6% hearing in my good ear. So, I was deaf and I am still deaf. If my processor is turned off I hear nothing.

 

[Granna]

My response is for Granna. She thinks she knows everything, but she does not. She felt that this group is rude, but she turned first OP off in the first place. From what I understand, Granna lost her hearing later in her life. She thought CIs is beneficial to ALL Deaf people which is not true.

No where in my post did I say all deaf people benefit from a CI. I said I benefited from getting a CI. I was deaf in left ear and only 6% in right ear. I had to communicate by writing notes. I do not know sign language and my fingers are to stiff to learn so my, and I stress MY, option was to have the CI. I didn't not have an easy time with the CI, but I was determined to be able to try to learn to hear again. Most people do not know I have hearing loss now unless I tell them. I lost my hearing in my 50's and I've had CI for 8 years. I don't know why everyone thinks I know everything. I don't know anything except as it applies to me and I was just sharing my journey with the CI.

 

[Phoenix23]

Oh now she's back and dishing it out... I thought this group was rude? If we were so rude, " which you for some reason think being rude is interjecting opinions" you returned why? Obviously, we were not as rude as you had deemed us if you are logged back in snipping at everyone's comments. I wish you had not edited what you had originally written, because what you originally posted, was rude and offensive, hence the backlash you received from the deaf community. Maybe it was just the way you worded it, but either way it was poorly worded. We were simply conveying our feelings and then we were rude and you wouldn't be back... Now you're back... Hmmm...

 

[zajko]

Phoenix, people can change their minds after cooling down. That isn't anything new. Do you really want to force her to leave again?

She said her opinion, you said your opinions. She might have been too pro-CI for you. You might have misinterpreted it. I don't know. But don't argue about nonsenses. And as far as I can see, the original "problem" was solved. No point in attacking each other anymore.

CI is OK for some people and isn't OK for some other people. We all agree with it, right? So..

 

[Frisky Feline]

 

[Smithtr]

I don't want to hear argument to your misinterpreter you minsinformation or professional.. whom is very misunderstand you misleading to conflict. it is very conflict. It is very clear to understand. I understand really research.. CI professional is true. up to your thought to. I recognized to label CI false no sense improper avoid on I confused to. I am hand off.

Don't be misunderstand to wrong me. Okay Don't be blame us or people okay

I advise to counsellor or specialist to audiologist simply Don't be ask me!

you worry on about to CI? so what up to you think so worry!

 

[JMH]

I am in the same hot seat looking into CI.. I spent enough time find what all about.. the audio said I am good cad for the right side.. but she don't know me well enough. the right side haven't wore aid since I was 5 yrs old.. so the ci may not work for that ear due to missing the sounds etc. sums up pretty much dead ear there. the left.. still wearing the aid until point where not doing any good.. then I go in the quiet life world.. I wont do the ci.. for many reasons..
the bottom line is this.. not all CI are 100% good. some may get something out of in vary % wise. some don't.. once you yank it out.. might as well forget it.. total loss. The thing I hate.. when I ask certain people who have ci.. they giving me 100% that works well for them but not telling me there are problems they went thru etc.. like a sale pitch sounds too true. took me awhile to uncover some risk and problems that effect the ci.

Well, I don't blame them for not telling you everything. I think it has something to do trying to be positive and not to be negative - remember what I said about 100% committed. I could be wrong since I didn't talk to them.

 

[Oddball]

whatever. Get over it already.