Most Moms Not Getting Information About How Deaf Children Can Learn to Listen & Talk

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http://biz.yahoo.com/prnews/060624/dcf004a.html?.v=2

Children with even profound deafness can learn to listen and talk as well as their hearing peers, thanks to advances in technology and education. But nearly 70 percent of mothers and expectant mothers in a new survey said they were not sufficiently informed about spoken language as an option.

However, 98 percent of the mothers surveyed said that if hearing loss affected their own child, they would be inclined to explore spoken language, according to the survey, released today by the Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell).

The poll results underscore the need to better educate both parents and professionals about available interventions for childhood hearing loss -- and AG Bell is embarking on a multi-year campaign to fill that educational gap. The campaign, called Hear from the Start, Talk for a Lifetime, kicked off today at the association's biennial convention.

"Today, children who are deaf or hard of hearing have the same opportunities to listen and talk as hearing children," said K. Todd Houston, Ph.D., executive director & CEO of AG Bell. "But early diagnosis and intervention are critical to their success -- and if parents aren't aware of their options from the beginning, they could miss this important window of opportunity."

Early diagnosis and intervention are key

Hearing loss affects 12,000 children born in the United States each year - - 33 babies a day -- making it the most common birth defect. Thanks to recent advances, however, most children with hearing loss can learn to listen and talk.

But the earlier parents get all the facts about childhood hearing loss, the better. Experts recommend beginning family-centered early intervention programs before a baby is 6 months old to take advantage of the critical time window for learning language.

According to the new parent survey, however, a third of respondents (33 percent) were unaware of the importance of early intervention when it comes to helping children with hearing loss learn to listen and talk. The survey also showed that:


* The majority of new and expectant mothers (56 percent) reported being
"not too familiar" or "not at all familiar" with the issue of hearing
loss in infants and children.

* As many as 63 percent of new mothers and 72 percent of expectant mothers
said that before the survey, they had not been provided with sufficient
information about spoken language as an option for children with hearing
loss.

* Only 2 percent of the survey respondents volunteered cochlear implant
surgery as an option for children with hearing loss, and only 5 percent
suggested hearing aids.

Hear from the Start, Talk for a Lifetime: A multi-faceted campaign
AG Bell's new initiative, Hear from the Start, Talk for a Lifetime, is designed to help parents get the information they need. The campaign raises awareness of the benefits of early diagnosis and intervention for children who are deaf or hard of hearing, including the ability to use spoken language to communicate. AG Bell will develop parent and professional educational materials, drive advocacy efforts at national and grassroots levels, broadly disseminate the latest research and engage media through public service announcements and other efforts to spread information on hearing loss and the options for addressing it.

At the same time, AG Bell will offer continuing education programs and training to hearing-health and education professionals and provide certification to professionals through the AG Bell Academy for Listening and Spoken Language®. The goal: to ensure that spoken language -- and the vast opportunities it offers -- become a well-known option for children with hearing loss.

"By launching this campaign, we're opening the door to life-changing possibilities for children who are deaf or hard of hearing," Houston said. "Technologies such as cochlear implants, digital hearing aids and other interventions can help children with hearing loss learn to listen and talk. Now it's time to make people aware of the lasting difference these resources can make."

More information about the campaign is available at http://www.agbell.org.

About the Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

The Alexander Graham Bell Association for the Deaf and Hard of Hearing is a lifelong resource, support network and advocate for listening, learning, talking and living independently with hearing loss. Through publications, advocacy, training, scholarships and financial aid, AG Bell promotes the use of spoken language and hearing technology. Headquartered in Washington, D.C., with chapters in the United States and a network of international affiliates, AG Bell's global presence provides its members and the public with the support they need -- close to home.

About the survey

In April and May 2006, AG Bell worked with the research firm StrategyOne to conduct a 15-minute telephone survey of 816 expectant and new mothers nationwide, including both first-time mothers and those who have other children. Half of those surveyed were expectant mothers, and half were mothers who have a child age 1 or younger. The margin of error for the sample size was +/-3.4 percentage points at the 95% level of confidence.
 
That's very sad that 98% of the moms would opt for speech......but on the other hand, did they have a question about Sign usage? I know many young moms want their dhh kid to speak, but I have seen more and more moms being openminded about Sign and deaf culture.....it's no longer an either or thing.
Oh, and what demographic did they poll? Rich and middle class suburbanites?
Yes, EI is important, but getting hearing aids and CI the second of dx shouldn't be a priorty! I didn't get aided til I was three (born with my loss) and I got 660 on the SATs!
 
Most parents want their kids to learn to talk so they can communicate with their kids...its a natural desire even though its not always in the child's best interest.

I don't know how better technology will help the profoundly deaf childern...those with 100 db hearing loss. They can't hear sounds at all, even with hearing aids. But the hard of hearing kids would benefit from hearing aids, etc.
 
my son

my son was born with a mild to moderate loss thank God for the newborn hearing test. we knew at 2 days old he had a loss... technology has come a long way. i knew nothing about hearing loss in babies,but I learned alot really fast..when he had is abr hte hospital gave my info and more info. I get early intervention, regional infant hearing program they came right after cam was identified.even more info. I wanted my child to have the best advantages out there .He was aided at 6 weeks.. lost most of his hearing and got implant at 16 months. i am learning more and more everyday about the deaf, implants, theropys... I had no idea the info out there.I have taken it all in ... In the beginning you are bombarded with info... I am so glad the info is out there.it needs to be info in all newborn packets....especially if its the 1# birth defect
 
my son

:) :) my son was born with a mild to moderate loss thank God for the newborn hearing test. we knew at 2 days old he had a loss... technology has come a long way. i knew nothing about hearing loss in babies,but I learned alot really fast..when he had is abr hte hospital gave my info and more info. I get early intervention, regional infant hearing program they came right after cam was identified.even more info. I wanted my child to have the best advantages out there .He was aided at 6 weeks.. lost most of his hearing and got implant at 16 months. i am learning more and more everyday about the deaf, implants, theropys... I had no idea the info out there.I have taken it all in ... In the beginning you are bombarded with info... I am so glad the info is out there.it needs to be info in all newborn packets....especially if its the 1# birth defect
 
deafdyke said:
That's very sad that 98% of the moms would opt for speech......but on the other hand, did they have a question about Sign usage? I know many young moms want their dhh kid to speak, but I have seen more and more moms being openminded about Sign and deaf culture.....it's no longer an either or thing.
Oh, and what demographic did they poll? Rich and middle class suburbanites?
Yes, EI is important, but getting hearing aids and CI the second of dx shouldn't be a priorty! I didn't get aided til I was three (born with my loss) and I got 660 on the SATs!

I haven't really taken much of a stand on Hearing aids and stuff like that, but why should a person who is deaf not learn ASL? The majority of the friends a deaf person will be able to make are deaf people and interpreters. The easiest way to communicate with those who are like you is to learn to at least speak like them. I know I have a hard time speaking to people who have gone through regular school because I was homeschooled. I am confused by all the lingo they use. It may be a dialect of English, but it still confuses me. As a result, most of my friends turned out to be homeschooled or honors students. We have that in common. I don't know what it would be like to be deaf and not be able to speak to other deaf people. It sounds like being spanish and not being able to speak to spaniards.
Edit: perhaps the reason I am so interested in deaf culture is the fact that I will most likely need hearing aids to hear by the time I am in my late 20s or early 30s.
 
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