Looking For Some Help Wth Ci

[ChrisN]

I got an implant in 2014 and haven't been able to use it as I am getting sounds like morse code that gives me headaches. I have been to my audiologist and they don't seem to understand, does anyone else have the same problem? If so did you resolve it and if so how?
Thank you

 

[ambrosia]

Have you tried another audiologist? Or maybe asking if a company rep, what brand do you have? Can sit in on the session to trouble shoot?

 

[whatdidyousay!]

I agree find another audi , you can check out reviews people made about audiologists before going to one . I think it's getting harder to find good audiologists today.

 

[hoichi]

you need ot get your audiologist and or specialist to address what is happening.

best thing is to have then remove it.
and live your life no wires attached...

those headaches may be permanent..
they prob didn't much tell you about that and stuff.
welcome

 

[ambrosia]

Hoichi. Hi!!!! I've been to CI evaluation. Lemme tell ya......The doctors are required, by law, to inform you of any and all side effects, no matter how rare. They also try to set the bar for expectations low. If someone has been deaf for most of their life they might even have to have a physiological exam to make sure the patient doesn't have too high expectations.

They used to have higher fail rates because, well now they have better technology and procedures, but also because they were implanting people that shouldn't have been implanted, people that weren't really good candidates. Older children and adults that are prelingually deaf are not good candidates. People that have never had effective hearing aid usage are not good candidates. Current diagnostics are better at checking the viability of the auditory nerve. They implanted people that their nerve had atrophied.

 

[Foxrac]

Hoichi. Hi!!!! I've been to CI evaluation. Lemme tell ya......The doctors are required, by law, to inform you of any and all side effects, no matter how rare. They also try to set the bar for expectations low. If someone has been deaf for most of their life they might even have to have a physiological exam to make sure the patient doesn't have too high expectations.

They used to have higher fail rates because, well now they have better technology and procedures, but also because they were implanting people that shouldn't have been implanted, people that weren't really good candidates. Older children and adults that are prelingually deaf are not good candidates. People that have never had effective hearing aid usage are not good candidates. Current diagnostics are better at checking the viability of the auditory nerve. They implanted people that their nerve had atrophied.

I'm disappointed after I learned that I can't have ECT and Transcranial Magnetic Stimulation (TMS) because of CI in my head so there isn't much option to treat the depression after therapies failed.

I'm sorry if it is off topic.

 

[Foxrac]

I got an implant in 2014 and haven't been able to use it as I am getting sounds like morse code that gives me headaches. I have been to my audiologist and they don't seem to understand, does anyone else have the same problem? If so did you resolve it and if so how?
Thank you

Are your audiologist served by private, for profit hospitals or clinic? I'm suggesting you to find different audiologist in #1 rank or popular hospital (like UAB in Alabama) so I don't know about where are you from.

Also, make sure to see ENT that specialized in CI.

 

[ambrosia]

I'm disappointed after I learned that I can't have ECT and Transcranial Magnetic Stimulation (TMS) because of CI in my head so there isn't much option to treat the depression after therapies failed.

I'm sorry if it is off topic.

Off topic is ok. That sucks. Insurance usually won't approve a CI removal because it's generally not medically necessary. They generally won't approve a surgery just because you want one. But have you tried appealing? It seems you could make the case that it IS medically necessary now.

 

[hoichi]

Hoichi. Hi!!!! I've been to CI evaluation. Lemme tell ya......The doctors are required, by law, to inform you of any and all side effects, no matter how rare. They also try to set the bar for expectations low. If someone has been deaf for most of their life they might even have to have a physiological exam to make sure the patient doesn't have too high expectations.

They used to have higher fail rates because, well now they have better technology and procedures, but also because they were implanting people that shouldn't have been implanted, people that weren't really good candidates. Older children and adults that are prelingually deaf are not good candidates. People that have never had effective hearing aid usage are not good candidates. Current diagnostics are better at checking the viability of the auditory nerve. They implanted people that their nerve had atrophied.

Hi ambrosia..'-

i am aware of that.
but laws are well laws.. so meh..

yes they were implanting people that shouldn't of been and they still do...

 

[Foxrac]

Off topic is ok. That sucks. Insurance usually won't approve a CI removal because it's generally not medically necessary. They generally won't approve a surgery just because you want one. But have you tried appealing? It seems you could make the case that it IS medically necessary now.

I will going find out when I'm going to meet new ENT doctor that specialize in CI and will try to find out, but I need to get settle with Stretta first.

My insurance (BCBS) won't cover on Stretta because it is considered as investigational but FDA approved Stretta, so my families and I are going fighting for that right now.

 

[ambrosia]

I will going find out when I'm going to meet new ENT doctor that specialize in CI and will try to find out, but I need to get settle with Stretta first.

My insurance (BCBS) won't cover on Stretta because it is considered as investigational but FDA approved Stretta, so my families and I are going fighting for that right now.

Good! And good luck!!