Last Hope for answers are from this forum

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deafleg

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Hello Everyone, I have been suffering for 4-5 months.
I have been having horrific symptoms. I am not even sure I have hyperacusis anymore. I would like some one here to validate this:

I have been to 3 docs, no answers

My symptoms:

Hypersensitvity: any sound is extremely painful ( even the tick from a clock)
Ear( burning sensation)
Ear palpitations
Extreme ear Pressure
Brain tremors and jolts
Cluster Headaches
Facial numbness
Tinnitus
Vertigo
Nausea
Anxiety
Depression

How it Happened: I listen to loud music, I was in the car and felt something go wrong in my ear. I also remember a bug flew in my ear the next day.

My ideas about which condition i may have:
1. Vestibulocochlear nerve damage ( sensorineural haring loss)
2. Hyperacusis
3. Lyme disease, ALS, micoplasma?
4. Ear virus
5. Otitis media
6. Cholesteatoma

Do these thing heal on their own? Or is it Game.Set.Match for me?
 
Have you been to an Ear, Nose, Throat doctor. The ENT perhaps can help you more than this forum can.

General doctors do not specialize on the ears. So perhaps is why you are not getting any answers.

Just a thought.
 
A brain tumor can cause all that cluster of problems also. You should get a thorough check up, not ask strangers on the internet.
 
Babyblue said:
Have you been to an Ear, Nose, Throat doctor. The ENT perhaps can help you more than this forum can.

General doctors do not specialize on the ears. So perhaps is why you are not getting any answers.

Just a thought.
Click to expand...


And even ENTs' area of expertise can vary widely. If you can, see if on their web site they list terms that show they have expertise in areas relating to hearing loss vs only areas that relate to nose, throat, cleft palates, plastic surgery, etc.

It's a good sign if their web site says that their medical expertise includes otology, neuro-otology (neurotology), cholesteatoma, acoustic neuromas, or really anything that shows that they have experience with the ear vs just the nose and or throat. If the doctor's office has an audiologist on staff that would probably be another good sign.


I live in a large city and I can ask my friends who they see so I don’t have to be concerned that I may accidentally see an ENT who actually knows very little about the ear. But lets say I were to move to a brand new city and I had to see an ENT immediately, I think one of the questions I would ask before making an appt would be what percentage of the doctor’s practice is concerned with ears and hearing issues vs nose, throat, plastic surgery.


ETA: I hope you get your answers soon!
 
Bottesini said:
A brain tumor can cause all that cluster of problems also. You should get a thorough check up, not ask strangers on the internet.
Click to expand...

Agreed. These symptoms sound neurological, not otolaryngological.
 
I'm very sorry that it's taking so long for you to get answers but sometimes that's how it is with medical problems. You probably need to continue with various doctors and tests to discover what's wrong and how to solve your symptoms. Keep a journal of your symptoms, when they occur, and what other circumstances are occurring at the same time.

According to your time line, I don't think the bug is the culprit. You were already having problems before that happened. But tell your doctors every detail and let them decide what is relevant.

I hope you get your answers soon.
 
I have similar issues and I haven't been able to get a diagnosis. Try another neurologist. Sometimes it takes a long time and several doctors to get answers.
 
Jazzberry said:
And even ENTs' area of expertise can vary widely. If you can, see if on their web site they list terms that show they have expertise in areas relating to hearing loss vs only areas that relate to nose, throat, cleft palates, plastic surgery, etc.

It's a good sign if their web site says that their medical expertise includes otology, neuro-otology (neurotology), cholesteatoma, acoustic neuromas, or really anything that shows that they have experience with the ear vs just the nose and or throat. If the doctor's office has an audiologist on staff that would probably be another good sign.


I live in a large city and I can ask my friends who they see so I don’t have to be concerned that I may accidentally see an ENT who actually knows very little about the ear. But lets say I were to move to a brand new city and I had to see an ENT immediately, I think one of the questions I would ask before making an appt would be what percentage of the doctor’s practice is concerned with ears and hearing issues vs nose, throat, plastic surgery.


ETA: I hope you get your answers soon!
Click to expand...

great words:laugh2:
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