Cochlear decison

[naisho]

Thinking back.. I recall my transition between normal hearing towards using hearing aids when it happened in k-6 grade school.

When I first put on the BTE HA, I remember it being different than what I normally heard and would avoid wearing it if I had to - this is back in 2nd, 3rd grade level.

As I later grew up and got newer models and HA's, I remember trying to tinker with them every time to get what I thought back then was "the right sound" - there's two philip screws on most HA models that allows you to adjust the clarity of the sound being received.

So yes, now thinking this over... even HA's are not accurate representations of the 'normal' sounds.

 

[Daredevel7]

I think the reality to this is, only the later deafened can be able to distinguish between 'quality' of HA and CI.

I agree, but even then, they still wouldn't quite understand how those who have been deaf all their lives and had the CI later on would perceive the sounds.

They also would have to compare based on the very first time they hear sounds they hear via the CI. They are able to tell the mapper how to "correct" the sounds. So after the first correction, they can't compare. People born deaf cannot "correct". It's more of a trial and error thing.

 

[Beach girl]

Well, I'm not angry. But I think what you are doing is sad, and belies a real insecurity.

I've seen some very open and varied responses from a few parents with experience making this same decision -- none telling the OP to 'go for it!' or pushing CIs as an option, just sharing what they did and found. Some responses from those with CIs themselves. And then, instead of coming in with your own example of how you are making your choice work, you went through each previous parents' response and dismissed them as not being typical, and even went to far -- in my case -- to object to test results indicating an access to sound at typical hearing levels. You haven't shown objective facts that you used to make your choice, you are quoting numbers of channels on a simulator.

Why not let each person post about making the decision or using implants or hearing aids (or neither) describe what he or she experienced without attacking or criticizing or dismissing what they say about their own experience?

This is what I'd like to see, too. I admit I have my own motives. As a long-time HA user who gets good benefits from them, I am also now approaching the "you could consider a CI" level of hearing loss. I am very interested in how CI users perceive sound, how successful they are in different situations, etc.

Obviously as a late-deafened adult I'm in a far different place than a born-deaf child. Still, it would be far more useful to me to hear about what people like or don't like with their CIs, and/or describe how well their children are or aren't doing with them, then to see the same old, same old telling Grendel that her child can't possibly be doing as well as Grendel thinks she is doing.

I take her evaluation of her own child at face value, same as I'd take anyone else's comments about their own child.

Every conversation along these lines seems to end up in a "let's tell Grendel just how WRONG she is" thread, virtually always from people who made a different choice for themselves and/or their children. Seems pointless.

 

[DeafCaroline]

Ironic it's just a large group of hearing people arguing meanly about what HA or CI hears.

I would rather hear from the kids . Or even the grown up kids who actually use them.

None of you really know.

Exactly. If I were seeking advice about what it's like to wear a CI device, I would want to learn directly from the implantees, not from hearing parents.

 

[Jiro]

This is what I'd like to see, too. I admit I have my own motives. As a long-time HA user who gets good benefits from them, I am also now approaching the "you could consider a CI" level of hearing loss. I am very interested in how CI users perceive sound, how successful they are in different situations, etc.

Obviously as a late-deafened adult I'm in a far different place than a born-deaf child. Still, it would be far more useful to me to hear about what people like or don't like with their CIs, and/or describe how well their children are or aren't doing with them, then to see the same old, same old telling Grendel that her child can't possibly be doing as well as Grendel thinks she is doing.

I take her evaluation of her own child at face value, same as I'd take anyone else's comments about their own child.

Every conversation along these lines seems to end up in a "let's tell Grendel just how WRONG she is" thread, virtually always from people who made a different choice for themselves and/or their children. Seems pointless.

The more you posts about Grendel/CSign.... the more you're proving our points.

It's best if you just stick with late-deafened side that pertains to your situation.

 

[sallylou]

I've talked to many late-deafened people who got CIs. I've been told that it's definitely not like hearing they had before.

 

[deafskeptic]

I've talked to many late-deafened people who got CIs. I've been told that it's definitely not like hearing they had before.

I remember one late deafened woman who said she could hear better with her HA than with her CI.

 

[Frisky Feline]

I remember one late deafened woman who said she could hear better with her HA than with her CI.

is it possible that the nerves being damage by the cut. the more damage the more hearing losses? interesting. Just guess.

 

[jillio]

When I use my monitors on her CIs, such sounds seem much more intrusive because some CI programming increases the volume of soft sounds bringing them 'closer.' So even though I normally wouldn't attend to the sound of my own hair or the washer in the other room, listening to her CI monitor brings them to the forefront.

You are using monitors with normal hearing.

Like I said, HAs do the same thing. They amplify all sounds at the same level. It is up to the individual to learn what sounds are to be paid attention to.

 

[jillio]

Ironic it's just a large group of hearing people arguing meanly about what HA or CI hears.

I would rather hear from the kids . Or even the grown up kids who actually use them.

None of you really know.

Okay. I'm done. The only thing I know is what the research shows and what I have been told by various deaf individuals.

 

[jillio]

Well, I'm not angry. But I think what you are doing is sad, and belies a real insecurity.

I've seen some very open and varied responses from a few parents with experience making this same decision -- none telling the OP to 'go for it!' or pushing CIs as an option, just sharing what they did and found. Some responses from those with CIs themselves. And then, instead of coming in with your own example of how you are making your choice work, you went through each previous parents' response and dismissed them as not being typical, and even went to far -- in my case -- to object to test results indicating an access to sound at typical hearing levels. You haven't shown objective facts that you used to make your choice, you are quoting numbers of channels on a simulator.

Why not let each person post about making the decision or using implants or hearing aids (or neither) describe what he or she experienced without attacking or criticizing or dismissing what they say about their own experience?

Why not let them make it on testimony from actual CI users? Why not let them make it on actual research showing any significant differences in functioning between HA using kids and CI using kids? Why not let them make their decision based on information that can be supported rather than second hand, parental anecdote?

 

[jillio]

This is what I'd like to see, too. I admit I have my own motives. As a long-time HA user who gets good benefits from them, I am also now approaching the "you could consider a CI" level of hearing loss. I am very interested in how CI users perceive sound, how successful they are in different situations, etc.

Obviously as a late-deafened adult I'm in a far different place than a born-deaf child. Still, it would be far more useful to me to hear about what people like or don't like with their CIs, and/or describe how well their children are or aren't doing with them, then to see the same old, same old telling Grendel that her child can't possibly be doing as well as Grendel thinks she is doing.

I take her evaluation of her own child at face value, same as I'd take anyone else's comments about their own child.

Every conversation along these lines seems to end up in a "let's tell Grendel just how WRONG she is" thread, virtually always from people who made a different choice for themselves and/or their children. Seems pointless.

People have made those statements all over this forum. There is always one tread or another going on in which people are relating their experiences. Problem is, hearing parents tend to jump in and take over those discussions, too...usually telling the deaf adults who have less that awesome experience that they are wrong.

You might want to keep in mind: Grendel is not a CI user. She is the parent of a CI user who is not old enough nor implanted long enough to even contribute to longitudinal data. It is still being collected. So, if you want to hear from CI users, Grendel isn't going to do you much good. She can't state anything more definatively than MM or I can.

Now deafskeptic is an adult CI user. She expresses her feelings regarding her CI experience all the time. You might want to start following some of her posts.

 

[deafskeptic]

is it possible that the nerves being damage by the cut. the more damage the more hearing losses? interesting. Just guess.

I dunno. It's a possiblity.

 

[sallylou]

I just love when hearing people tell us what it's like to be HOH/Deaf. :roll:

 

[deafskeptic]

I just love when hearing people tell us what it's like to be HOH/Deaf. :roll:

Heh, they think they know more about deafness then us deafies who have had to live with the exprience of not hearing normally.

 

[shushugah]

Yay!! Adults fighting for pages and pages and pages, when they could have used that time to bond with family, meet friendly people, perhaps help new users on AD even. These threads serve little purpose, because it's the same people every time, and no new comer is going to want to read any of these comment fights, :P

Let's all just cool it, go to a friendlier thread and or do something more meaningful other than repeating the same arguments over and over again. Everyone pretty much had a chance to say their fair exchange of words, let's just end it here, and hold hands virtually and sing/sign (love how it's same letters...) Kumbaya!!

Jilio, dunno if you can, but is there a way to Lock this thread?

 

[Beowulf]

Heh, they think they know more about deafness then us deafies who have had to live with the exprience of not hearing normally.

It is amusing when they tell us that our experiences are WRONG, and they pull out statistics to prove it.

 

[jillio]

Yay!! Adults fighting for pages and pages and pages, when they could have used that time to bond with family, meet friendly people, perhaps help new users on AD even. These threads serve little purpose, because it's the same people every time, and no new comer is going to want to read any of these comment fights, :P

Let's all just cool it, go to a friendlier thread and or do something more meaningful other than repeating the same arguments over and over again. Everyone pretty much had a chance to say their fair exchange of words, let's just end it here, and hold hands virtually and sing/sign (love how it's same letters...) Kumbaya!!

Jilio, dunno if you can, but is there a way to Lock this thread?

I can't lock it. I'm just a lowly member. The mods are the only ones with that authority. Although I have been accused of getting a few locked, lol.

 

[Beowulf]

Yay!! Adults fighting for pages and pages and pages, when they could have used that time to bond with family, meet friendly people, perhaps help new users on AD even. These threads serve little purpose, because it's the same people every time, and no new comer is going to want to read any of these comment fights, :P

Let's all just cool it, go to a friendlier thread and or do something more meaningful other than repeating the same arguments over and over again. Everyone pretty much had a chance to say their fair exchange of words, let's just end it here, and hold hands virtually and sing/sign (love how it's same letters...) Kumbaya!!

Jilio, dunno if you can, but is there a way to Lock this thread?

No, but we can get banned for "troll feeding." Ain't life grand? :roll:

 

[shushugah]

Awwww, I like them furry trolls, what if it's a deaf troll? :P No one here has ever discussed anything beyond Oral or ASL, what about TSL??? Haters gonna hate, but this sucks,