Baby has rare skin condition that makes her untouchable

I've known about this for some time and it's always sad to read that we're still no closer to a cure. Living in pain every moment of your life is not something any child should have to endure. I pray for strength for this family and a cure for all those affected by this horrible disease.

Poor little thing. :(

I know what kind of life is the poor child going to have , how do they bath her ?
I had clients that were very elderly and they had paper thin skin , I had to be very careful giving them a sponge bath , I could not rub their skin at all. This is a lot worst what the poor baby has . :(