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hearingaidmama said:
I saw this one but it doesn't specify between high and low frequencies. Her low frequencies normal at this point. Thank you though. I saw online the school she is recieving intervention though has simulator tapes, so I'm going to ask about it at her next home visit on Monday.
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on the website I gave you it says...
This simulation reflects a typical high frequency moderate hearing loss. People with this type of hearing loss are unable to hear soft and moderately loud sounds and have considerable difficulty understanding speech particularly in background noise.
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jillio said:
Google the simulation of hearing loss. I'm sure you can find it that way.

We have discussed the accuracy of the various testing procedures on several threads. I suggest using the search feature to pull those posts up.
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I'm sorry I must seem like I know nothing right now but we are only 3 months in on our journey and I've still got a lot to learn. I appreciate all your help!
 
hearingaidmama said:
She recieves early intervention from the Clarke School already. What I said was that it's not in a classroom setting until 3 years old. Right now she recieves auditory-verbal therapy provided in our home from the Clarke school.

The early intervention program (Philadelphia Early Intervention), like I said before, feels that the home is the best enviornment for learning until age 3. At age three she will start attending regular classes at Clarke and hopefully mainstream by kindergarten.
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Hmm...I thought you were getting services from Childlink?
 
jillio said:
Hmm...I thought you were getting services from Childlink?
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This seems to be getting confusing. I feel like I'm not being understood, so I will explain.

Early Intervention program. They set you up with services for children. They are service coordinators. They set up services, they do not actually give the child the services.



Through the program, for children with hearing loss, you are given an option of 2 schools to actually carry out the services for the child. Choices are We choose the She recieves weekly, in home, auditory verbal therapy from Clarke School.
 
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Ic Doesn't Clarke hook you up with "parents of other HOH kiddos"?

You are being understood better than you think.
 
hearingaidmama said:
This seems to be getting confusing. I feel like I'm not being understood, so I will explain.

Childlink is a Philadelphia Early Intervention program. They set you up with services for children. They are service coordinators. They set up services, they do not actually give the child the services.

Public Health Management Corporation > Children with Special Needs

Through the childlink program, for children with hearing loss, you are given an option of 2 schools to actually carry out the services for the child. Choices are Pennsylvania School for the Deaf and Clarke Schools for Hearing and Speech. We choose the Clarke School.

She recieves weekly, in home, auditory verbal therapy from Clarke School.
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Bold statement> No ASL, even in your own home? No wonder Clarke School is an oral only mainstream school with no regard to having ASL and other special accommodations for the hard of hearing and deaf children. :ugh:
 
Bebonang said:
Bold statement> No ASL, even in your own home? No wonder Clarke School is an oral only mainstream school with no regard to having ASL and other special accommodations for the hard of hearing and deaf children. :ugh:
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If the need presents itself to use ASL I would be happy to use it. For now (even before she was aided) her speech is fine with no delays. She enjoys using words and hears (not "perfect") but well without the hearing aids. She now (with bilateral aids) passes audiograms with flying colors. I am in no way against learning or teaching ASL but at this point I don't really feel there is a need for it. She is learning and speaking so well I'd rather consentrate on learning verbal spoken language at this point. I feel that learning ASL at this point may hinder her speech development.

If anything changes we would be happy to learn and use ASL as a family. I am in NO WAY against ASL. But to me, to use ASL at this point would be like someone who is moderatley near sighted getting glasses to correct heir vision and using a seeing eye dog.
 
This web site claims to gave a sample of what hearing aided speech sounds like:
Sensimetrics - HeLPS - Hearing Loss Simulator - Demo 4 - Hearing Aids

Of course since I'm HoH I can't tell if its accurate or not, you may want to ask your child's audiologist.

You might want to get familiar with what kind of assistive listening devices (ALD) there are. I would just google "assistive listening devices" -- I'm guessing it's against the rules for me to refer you to specific on-line catalogues.

Generally they fall within two groups:
Ones that make sounds louder

Ones that replace sound with another type of alert

So for example a telephone with a built-in amplifier or a box with a loud ringer that attaches to the phone are examples of the first kind.

An attachment that flashes when the telephone rings or an alarm clock that shakes a vibrator powerful enough to shake the bed are examples of the second kind.

Of course your daughter is a little younger than the target market for those kind of ALDs :) but it can give you an idea of what her future options are.

Also, if your daughter doesn't hear well in noisy rooms ETA [strike] if she doesn't [/strike] you may want to check out FM systems. People with hearing loss even when they are wearing hearing aids can't usually understand conversation from as far away as people without hearing loss. That is another reason FM systems are used.
 
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Jazzberry said:
This web site claims to gave a sample of what hearing aided speech sounds like:
Sensimetrics - HeLPS - Hearing Loss Simulator - Demo 4 - Hearing Aids

Of course since I'm HoH I can't tell if its accurate or not, you may want to ask your child's audiologist.

You might want to get familiar with what kind of assistive listening devices (ALD) there are. I would just google "assistive listening devices" -- I'm guessing it's against the rules for me to refer you to specific on-line catalogues.

Generally they fall within two groups:
Ones that make sounds louder

Ones that replace sound with another type of alert

So for example a telephone with a built-in amplifier or a box with a loud ringer that attaches to the phone are examples of the first kind.

An attachment that flashes when the telephone rings or an alarm clock that shakes a vibrator powerful enough to shake the bed are examples of the second kind.

Of course your daughter is a little younger than the target market for those kind of ALDs :) but it can give you an idea of what her future options are.

Also, if your daughter doesn't hear well in noisy rooms or if she doesn't you may want to check out FM systems. People with hearing loss even when they are wearing hearing aids can't usually understand conversation from as far away as people without hearing loss. That is another reason FM systems are used.
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We already have an FM! We haven't used it yet though. We only got her hearing aids (she has been using "loaner" hearing aids from our local children's hospital) and the FM on Monday. We haven't realy been anywhere but our home in the past few days but I'm excited to get the chance to use it!
 
hearingaidmama said:
Does anyone know the simulated hearing loss website? I've been dying to understand more of exactly what her hearing loss is like? Everything I've read would categorize her as mild-moderate.

Another quick question. She had an ABR which showed moderate high tone loss only, but the behavioral tests show an extremely slight loss in low frequencies as well. Does anyone have knowledge on ABR vs. behavioral screenings as far as accuracy? I woul like the ABR more accurate since she was sedated. I can see how being uncooperative (she just turned 2) could have an effect on the accuracy of the behavioral tests.
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I thought you already saw your doctor or audiologist about this? they're the one who can tell you the extent of hearing damage. you should not do online diagnosis. seek professionals.
 
hearingaidmama said:
If the need presents itself to use ASL I would be happy to use it. For now (even before she was aided) her speech is fine with no delays. She enjoys using words and hears (not "perfect") but well without the hearing aids. She now (with bilateral aids) passes audiograms with flying colors. I am in no way against learning or teaching ASL but at this point I don't really feel there is a need for it. She is learning and speaking so well I'd rather consentrate on learning verbal spoken language at this point. I feel that learning ASL at this point may hinder her speech development.

If anything changes we would be happy to learn and use ASL as a family. I am in NO WAY against ASL. But to me, to use ASL at this point would be like someone who is moderatley near sighted getting glasses to correct heir vision and using a seeing eye dog.
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:sure:
 
Jiro said:
I thought you already saw your doctor or audiologist about this? they're the one who can tell you the extent of hearing damage. you should not do online diagnosis. seek professionals.
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Who said anything about online diagnosis? We see her audiologist regularly. There is a discrepency between the ABR and the behavioral test so the professionals that we are seeing (and everything I've read in the paperwork and testing) and been told is that it's somewhere between mild-moderate.
 
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