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  1. C

    our story.

    i called medicaid today to see what i needed to do about getting a second opinion. to get her hearing aids. they are sending me paperwork, hopefully that will be done by the end of the month. the schools arent back in session till the 8th. im going to send her audiograms via email to the nurse...
  2. C

    our story.

    THANKYOU! granted i dont know much about how ears work, but from my understanding, the damage to the outer hair cells, wouldnt have been prevented. also, the ENT said an untreated ear infection "possibly" caused the stiffened ear drum when she was three. BUT she had strep throat every other...
  3. C

    our story.

    she IS on medicaid NOW but she Wasnt then. my cost to cover the surgery would have been about 2grand, i applied for a care credit card and wasnt approved. i had no way to come up with it. but im done talking and explaining the same thing over and over to you, apparently your lack of hearing has...
  4. C

    our story.

    so now you are calling me a liar? when she was 3, and we first found out about her MILD hearing loss, which i might mention yet again, TUBES PROBABLY WOULDNT HAVE HELPED, she had private insurance. all of the pediatric ENT's in the city were "out of network" insurance would ony have covered...
  5. C

    our story.

    I'm not sure what a low incidence disability school is. When I searched dhh schools in my area, that one came up. Its prek-grade 12, theres about 200 students, and 10% are dhh. I'm sure there is certain requirements to get in, and I'm not sure her hearing is to that level yet. I am at a...
  6. C

    our story.

    I suppose you may be right. Its a sad time we live in, when the first thought of these ladies is I made the informed decision to harm my daughter so I could raise a deaf kid. Its absolutely appalling to think someone would actually do that. I beat myself up every day with just the thought...
  7. C

    our story.

    did you miss the part when I mentioned the ent stating she PROBABLY WONT LOSE ANYMORE HEARING? Because im pretty sure ive said it several times. He simply suggested preventing future ear infections with allergy shots. which I sold my car to be able to pay for. I made the best decision I could...
  8. C

    our story.

    it does serve a wide range of kids learning and behavior disabilities. It has a small dhh program with teachers better educated for dhh kids. Ill be making calls to set up an interview.. In the mean time ill just continue my fight with her current school to make sure she stays on track...
  9. C

    our story.

    I feel like you are only taking bits and pieces of what ive said. Her hearing loss was very mild when she was 3. The doctor said it was unlikely it would get worse. She has not gotten an ear infection in over a year and has not shown any sign that her hearing was deteriorating until late...
  10. C

    our story.

    I didnt think to call the deaf school since its nearly 6 hours away, there is a special needs charter school in our district, ill give them a call after break. but if we have to move to austin to be sure she gets the right help and treatments, thats what we'll do. Posted from Alldeaf.com App...
  11. C

    our story.

    I live in texas, about two hours from dallas. I haven't been here very long. Im not sure if it you are intending to imply that I'm being neglectful but I can assure you, I have done everything in my means to get her needs met. I had her at the audiologist less than ten days after I had the...
  12. C

    our story.

    we live in texas. about two hours outside of the dfw metroplex. and do you think if i had the money to take her to another doctor i would do it. i would take her to every doctor in the state until i found one that i was satisfied with.. im not sure if its your intention to imply that i...
  13. C

    our story.

    we live in texas. about two hours outside of the dfw metroplex. and do you think if i had the money to take her to another doctor i would do it. i would take her to every doctor in the state until i found one that i was satisfied with.. im not sure if its your intention to imply that i have...
  14. C

    our story.

    she does have a pediatrician, and an appointment in 2 weeks. sure the she could do a referral, but medicaid will not cover an ENT with out cronic earinfections, which shes not getting. and i plan on filing an appeal on wednesday and the school did do a hearing test, and she failed, THATS how i...
  15. C

    our story.

    she does have a primary pediatrician (and an appointment in two weeks) however she CANT do the referral until shes "chronic recurring" ear infections. which shes not getting. and even if she did do the referral anyway, medicaid will not cover it. when she was younger, she had private...
  16. C

    our story.

    Im sure as angry and as hurt it makes you, im about 100times more upset. yes she is on medicaid. and if youve ever been on/hadkids on medicaid you know how difficult it is to get anything accomplished. she needs to have 6 ear infections in 6 months to get a referral to an ENT, but shes not...
  17. C

    where to start

    my daughter is 6years old and HOH, just got diagnosed this week. her loss is progressive and may or may not get worse. shes only at "moderate" loss now, so she can hear if shes yelled to, so communicating is getting difficult. i want to offer her another option. As of right now her audi didnt...
  18. C

    our story.

    as hurt and angry as it makes you, im probably 100 times more upset. but she is infact on medicaid, and if any of you have ever had experience with it, theres alot of red tape making it very difficult to get anything done. i lost my job last year (where i had her covered on private insurance)...
  19. C

    our story.

    I honestly have NO idea why the audiologist didnt recommend hearing aids. he was a bit of a condescending prick and im going to find another audiologist next week. he spoke to me like i was an idiot, and made me feel like crap. he wouldnt answer my questions and said i needed to take her to our...
  20. C

    our story.

    hi guys! my story is kinda long. My daughter is now 6 years old and has been losing her hearing since she was 3. no doctors, ENT or audiologist seems to be able to tell me why or if she will eventually loose all of her hearing. she first saw an ENT when she was almost 3 years old,(for...
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