Why - Why the Medical Society constantly pressure on the Parents?

[jackiesolorzano]

From your descriptions, your children have less communication options than many other bilingual bimodal deaf people I know. That's a fact. Hope I did not insult you?

No Flip you did not insult me. Could you explain to me what a bilingual bimodal deaf person is. I know bilingual but I have hear do that term with bimodal.

 

[jackiesolorzano]

Jackie - You asked to name a child that was "deaf" when he/she was born then later became hearing. SkyPorkie's grandchild was that way. The doctors thought that he/she was deaf, until a few years later, another test was done. The child is hearing. I would NEVER rely on a test that's done at 2 weeks, 2 months old baby. You say that your child have more options available for them. How would *you* know? You cannot, and do not dare, to compare your children to EVERYONE elses'. I had a lot of options available for me, and I think I did pretty well. I have fluent English skills, fluent spoken language, fluent sign language, and 3 college degrees. Learning all that my dear, I did not have CI. Does that make *me* better than you or your children? NO. Knock off your high horse about having your child being better than everyone elses'. I'm glad that your children have good education because that is all that's matters. It has NOTHING to do with the fact that your child was implanted! It all has to do with the education that you provided your child. (Although, I'm against oral-only environment, but I hope you know what I mean).
It sucks that Jillio was banned. He had the right for an opinion, just like Jackie's. While I disagree with some of the posts that both of them did, I just let it go. It's an OPINION. However, Jackie hit a sore nerve when she says that her children has more options.

I am really sorry if I offend you or anyone else. I really didn't mean too. What I was trying to tell Jillo was that my children had more options while communcating through phone services.

And I completely understand what you mean. It is OK that you do not believe in the oral method, I do. And I know that my children would have been successful either way because like you said my children are very successful orally because of what I do, because I am very involved, because I always on top of their educaton making sure that the school system does what they are suppose to do.

Please understand that I think my children brilliant, amazing children not because they are oral but because they are mine children. And I would do anything in this world to help them be successful in whatever they want to do in life.

I am so sorry to everyone on this post if I insulted you. When I get upset at people who are insulting my children, I respond faster then I should. And I should have taken the time to read and reread my posts especially when I am upset. Just a side note, I have been away from home for 2 weeks at a cochlear implant training. The only reason I mention this is that I have missed my chidlren so much, it just affected me more.

I do not think my children are better then other deaf children because they have CI and are oral. I have met many successful deaf children that are not oral.

I have met many many deaf students that are not oral and are doing great in school. As you said it is because

 

[jackiesolorzano]

I want to share a story with you. A friend of mine who picked a Deaf girl in the school bus. Her magnet fell off from the coclear implant. Not sure what exactly equipment was? Anyway, she looked for a mgnet in the school bus but can't find it. She can't hear all the day. The wire was loose off from her head, looked unpleasant. Poor this little girl, she does not deserve this.

Hearing aid is better than cochlear implant.

Kalista a hearing aide is not better then a cochlear implant if a person has a profound hearing loss. It just is not. And what should have happen is that the little girl should have extra parts in her backpack and at school.

 

[jackiesolorzano]

I am going by personal experience - I wore a hearing aid for 27 years and CIs for 6 months. HA served me well for a long time. I love the sound from my CI much better.

Also for children, they can make ear molds like a hearing aid. That way it does not come off easily. That is an option. My CIs have not fallen off or become lose.

At this training I have been at for 2 weeks, I am finally home. But anyway, there is now a sort of huggie for implants. I saw them they are really cool and stay in place.

 

[jackiesolorzano]

Have you ever have CI? If not, do not say, "HA is better than CI" if you never had it.

I had my HA for 27 years, and CI for 1 week. And I guarantee you, from my personal experience, that it's a heaps load better than my most powerful digital hearing aid. I can hear my cat purring from a distance. I can hear the upstairs floors creaking. I can hear hamburgers sizzling. I can hear 'S', 'sc', 't' sounds. I can hear my cat poop. I can hear the keys going into the doorknob. I can hear the microwave beep. Can you? All of these sounds I heard within ONE WEEK of activation.

Have you ever seen a CI up close? First of all the magnet does NOT come off the processor. It would have to be pulled off from the processor. Magnet comes off WITH the coil that's attached to the processor. Magnet is screwed on to the coil. Coil can easily come off, but for a magnet to be separated from the coil, it would have to be unscrewed. I'm suspicious of your story. It would make sense that they took off the processor and broke the coil off, but that takes a lot of strength to do that.

Do not state something that you think is a fact because it's not.

BTW - I never said CI is better than HA. For MY situation and many others, it's better. For few people it didn't work for them, and that's okay.

A month after my daughter got her implant, she was standing by the window and asked mom what is that noise I heard. It was the bird in our tree, she never heard birds before and in her better hearing ear, she has a severe to profound to severe hearing loss and was never able to hear birds.

 

[VamPyroX]

That would definately be a good place to start. But I think that face to face, personal contact with people has more impact. And the doctors are the first contact most of these people have.

If the doctors are too busy, they should establish a new position or a proper referral for those who get cochlear implants.

 

[VamPyroX]

If your children can understand everything said if their backs are turned, why was it again that they needed CART to understand the students' sitting behind them?

My son can have a complete conversation on a cell phone, too. He uses a feature known as "text messaging". And, he can have a complete conversation using a land line, as well. He simply connects a TTY to the land line.

I agree with you.

I think that some students are getting too lazy to use other methods of communication.

I've had to deal with some students like that at RIT. I had one class where there were 7 deaf students. 3 of us were hard-of-hearing (including me) and can understand face-to-face communication. All 7 of us can sign fluently and understand the interpreter. However, one of the 3 hard-of-hearing students was too stubborn that he had to know EVERYTHING that was being said by the professor. So, he requested CART. He hardly paid attention to the monitor in front of him and spent most of his time doing other things like homework or whatever. He was one of those overachievers who was abusing the support system in order to get everything. :roll:

There was one student in another class with me. She knew sign language enough to sign it, but not understand it fluently. With an interpreter, she couldn't catch up with what was being said. So, she used CART. She grew up using Chinese Sign Language and had a very difficult time catching up with ASL. So, CART was the best option for her. That's good use of support services.

 

[LadySekhmet]

I am really sorry if I offend you or anyone else. I really didn't mean too. \ What I was trying to tell Jillo was that my children had more options while communcating through phone services.

Jackie - I accept your apology, I totally understand that you will get defensive when it comes to your children, that's what every parent do, but it's just the comments that you make that turn people off or they get defensive because they're defensive about their children. It's a never ending loop.

Again, you said, "more options while communicating through phone services". That's not true, it's DIFFERENT methods of communicating through phone services.

Hearing people - cell phone, land lines
Deaf people (all, no matter what background) - Using TTY, Using relay service on sidekick, using relay service through AIM, using relay service on computer, using VCO on VP, using VP relay, using direct VP to VP. Some deaf people have the capability to hear through the phone.

Your children does not have "more options", they have the same options just like everyone else. They merely have different methods of communicating through phone services. I much rather you use that wordings, because it's not an insult, and it's neutral, and a lot better than saying, "My children have more options" nyah nyah. Make sense?

 

[LadySekhmet]

Im not convinced that this particular sound would make it into an implant manufacturers advertising material...but I am happy for you nevertheless.

*snickers* Well, it *does* make a sound when the poop hits the litter! *PLOP*, then the sandpaper sound (scratching the litter to cover the poop). That was an enjoyable experience, just because it's a new sound to me!

I'm waiting to see what happens when I go to a public toilet and listen for all the other women...especially when they open up their sanitary "stuff", now THAT would be an interesting experience.

 

[jackiesolorzano]

Jackie - I accept your apology, I totally understand that you will get defensive when it comes to your children, that's what every parent do, but it's just the comments that you make that turn people off or they get defensive because they're defensive about their children. It's a never ending loop.

Again, you said, "more options while communicating through phone services". That's not true, it's DIFFERENT methods of communicating through phone services.

Hearing people - cell phone, land lines
Deaf people (all, no matter what background) - Using TTY, Using relay service on sidekick, using relay service through AIM, using relay service on computer, using VCO on VP, using VP relay, using direct VP to VP. Some deaf people have the capability to hear through the phone.

Your children does not have "more options", they have the same options just like everyone else. They merely have different methods of communicating through phone services. I much rather you use that wordings, because it's not an insult, and it's neutral, and a lot better than saying, "My children have more options" nyah nyah. Make sense?

OK, I can see your reasoning. Yes, the way you stated would be more neutral and not insult other people, which is a good thing. Although I am an oralist, I do understand how deaf people who were raised orally more then 15 years ago, how hard it was for them. How mean oral teachers of the deaf were to their students when it was way too hard for them to be oral. Just today I was speaking to a director of a good oral school, we were having lunch with some TC teachers that came from several different states. These TC teachers were very open and after spending 2 weeks together, they were able to understand how oral educate has changed, how we do not think that oral education is the best or that all deaf children should be educated in oral methods. It was so hard for me to be away from my children for 2 weeks but I learned a lot about cochlear implants, about TC programs, and how to best help my students so it was worth it.

Again I am sorry and I will try really hard to not offend you and other the other deaf members here.

 

[jackiesolorzano]

*snickers* Well, it *does* make a sound when the poop hits the litter! *PLOP*, then the sandpaper sound (scratching the litter to cover the poop). That was an enjoyable experience, just because it's a new sound to me!

I'm waiting to see what happens when I go to a public toilet and listen for all the other women...especially when they open up their sanitary "stuff", now THAT would be an interesting experience.

I met an adult CI user this past week. She was telling us about her experiences with her CI, she said that for the first couple of months after her implant, she would slap off her implant when she heard a toilet flush.

 

[jackiesolorzano]

If the doctors are too busy, they should establish a new position or a proper referral for those who get cochlear implants.

You are right doctors should create a position like that. There is an implant center by me that does not do a good job of informing parents of everything they need to know so I am going to contact that doctor and tell him that I would be more then happy to help parents and not charge for my services.

 

[deafdyke]

However, one of the 3 hard-of-hearing students was too stubborn that he had to know EVERYTHING that was being said by the professor. So, he requested CART. He hardly paid attention to the monitor in front of him and spent most of his time doing other things like homework or whatever. He was one of those overachievers who was abusing the support system in order to get everything.

Right on Vampy!

 

[Kalista]

I agree with you.

I think that some students are getting too lazy to use other methods of communication.

I've had to deal with some students like that at RIT. I had one class where there were 7 deaf students. 3 of us were hard-of-hearing (including me) and can understand face-to-face communication. All 7 of us can sign fluently and understand the interpreter. However, one of the 3 hard-of-hearing students was too stubborn that he had to know EVERYTHING that was being said by the professor. So, he requested CART. He hardly paid attention to the monitor in front of him and spent most of his time doing other things like homework or whatever. He was one of those overachievers who was abusing the support system in order to get everything. :roll:

There was one student in another class with me. She knew sign language enough to sign it, but not understand it fluently. With an interpreter, she couldn't catch up with what was being said. So, she used CART. She grew up using Chinese Sign Language and had a very difficult time catching up with ASL. So, CART was the best option for her. That's good use of support services.

That is very interesting various communication method. I have seen several children with cochlear implant with an interpreter during the performance. One interpreter (oral) and (ASL). They look at ASL interpreter. Poor oral interpreter worked so hard to keep her mouth movement for 2 hours. No one watched her, most of audience watch ASL interpreter. What a waste money to spend on oral interpreter, they are useless !

 

[Angel]

That is very interesting various communication method. I have seen several children with cochlear implant with an interpreter during the performance. One interpreter (oral) and (ASL). They look at ASL interpreter. Poor oral interpreter worked so hard to keep her mouth movement for 2 hours. No one watched her, most of audience watch ASL interpreter. What a waste money to spend on oral interpreter, they are useless !

I really don't understand what you're saying here about an interpreter that use both oral (mouth movements ) and sign, all my interpreters are like that, but they only voice out as speaking if the deaf person cannot use her/his voice clearly. While I do understand that some interpreters do signs and use less mouth movements.

 

[Angel]

Jackie - I accept your apology, I totally understand that you will get defensive when it comes to your children, that's what every parent do, but it's just the comments that you make that turn people off or they get defensive because they're defensive about their children. It's a never ending loop.

Again, you said, "more options while communicating through phone services". That's not true, it's DIFFERENT methods of communicating through phone services.

Hearing people - cell phone, land lines
Deaf people (all, no matter what background) - Using TTY, Using relay service on sidekick, using relay service through AIM, using relay service on computer, using VCO on VP, using VP relay, using direct VP to VP. Some deaf people have the capability to hear through the phone.

Your children does not have "more options", they have the same options just like everyone else. They merely have different methods of communicating through phone services. I much rather you use that wordings, because it's not an insult, and it's neutral, and a lot better than saying, "My children have more options" nyah nyah. Make sense?

Good suggestion there and I absolutely agree!


Jackie- I accept your apology as well too.

 

[Kalista]

I really don't understand what you're saying here about an interpreter that use both oral (mouth movements ) and sign, all my interpreters are like that, but they only voice out as speaking if the deaf person cannot use her/his voice clearly. While I do understand that some interpreters do signs and use less mouth movements.

Sorry, I typed too quickly. Hope, this is clarify at this time. There are two separate interpreters. One is for ASL and one is for oral. Some of audience people choice ASL or Oral interpreter either one during the performance or presentate.

I notice, high percent cochlear implant audience looked at ASL interpreters not the oral interpreters.

 

[LadySekhmet]

I notice, high percent cochlear implant audience looked at ASL interpreters not the oral interpreters.

Maybe because they know ASL and they depend on ASL interpreter regardless if they can understand oral language?

 

[Angel]

Sorry, I typed too quickly. Hope, this is clarify at this time. There are two separate interpreters. One is for ASL and one is for oral. Some of audience people choice ASL or Oral interpreter either one during the performance or presentate.

I notice, high percent cochlear implant audience looked at ASL interpreters not the oral interpreters.

Ah, Thank you for explaining this clearly, I know oral interpreters are usually required by those who were raised orally and do not know any sign lanuage or only knew a very few signs.

They may have hired an oral interpreter in case others did not know any sign language, it's good that they did, because like you said it happened during a performing audience where many attended. I feel bad for that interpreter but at least she got paid. ( well, I hope she did )..

 

[flip]

No Flip you did not insult me. Could you explain to me what a bilingual bimodal deaf person is. I know bilingual but I have hear do that term with bimodal.

One mode of language is a spoken one, the other mode is a sign language. A bilingual deaf person can master two spoken languages, or two sign languages, while a bimodal bilingual knows at least one spoken and one sign language. Bimodal is a basic and well known term.

Bilingual bimodal deaf people seems to statstically score higher on language tests compared to monolingual deaf people, either spoken og sign language, in addition to have a larger number of people to interact with, as well as close friends. The findings are very close for both CI, HA and stone deaf people. It simply does not make sense to choose oral education. Oral TODs have said ".. but it's better now!" for 130 years, while children with newer CI implants in mainstream schools have as few friends as they had in the heydays of HA. It's so tiring for many of us in the deaf society that have to take care of all those oral failures seeking out us. Can it be you don't see the waste oral education creates as you aren't living in the deaf world?