Why - Why the Medical Society constantly pressure on the Parents?

Status
Not open for further replies.
jillio said:
If your children can understand everything said if their backs are turned, why was it again that they needed CART to understand the students' sitting behind them?

My son can have a complete conversation on a cell phone, too. He uses a feature known as "text messaging". And, he can have a complete conversation using a land line, as well. He simply connects a TTY to the land line.[/QUOTE]

Right...it is still communication happening..
Click to expand...
 
jackiesolorzano said:
Listen, my daughter was implanted in 2001. She does not have a short array. She has a N24. My daughter was 11 years old when implanted she was a child. She had many hearings tests afterwards and all prove that she did not lose her hearing. Hey have you talked to an ENT that does implants lately to ask them for accurate updated information. I have in the past 2 weeks talked to 2 different doctors, 3 different children audiologist.
I believe that what you are talking about is the BAHA that is now approved for children 5 and above.
Click to expand...

No,jackie, I am not talking about the BAHA. I am talking about short array. My information is constantly updated and kept current.
 
jackiesolorzano said:
OK so you say you said perhaps and I am telling you and everyone else. I was not then nor now trying to fix my children. My children are deaf, they will always be deaf and that is who they are. I was trying to give them access to sound.
Click to expand...

And doesn't giving them access to sound mean that the fact that they did not have access to sound has been fixed in some way?
 
jillio said:
If your children can understand everything said if their backs are turned, why was it again that they needed CART to understand the students' sitting behind them?

My son can have a complete conversation on a cell phone, too. He uses a feature known as "text messaging". And, he can have a complete conversation using a land line, as well. He simply connects a TTY to the land line.
Click to expand...

The reason they need CART is because there are about 40 kids in a class. There is background noise that yes makes it hard for them to hear everything. But if they are in a room with about 3 people behind them they will hear everything they say. Now with each additional person and the more background noise it is harder for them to hear. Since my children have the right to full access, I will do everything in my power to make sure that their rights are being met.
My children have more options then your son. They can text or talk on the cell phone. They can talk using a land line or also use the TTY we have and if they want they can also use the VRS they have. The more options the better.
 
jackiesolorzano said:
Do you know get what the implant does. It does not fix anything it gives access to sound. Get it.
Click to expand...

And again, jackie, I do get it. By providing access to sound it fixes the condition of not having access to sound.
 
jillio said:
Perhaps it is not that they are implanting them too late, but are simply refraining from implanting them too early.
Click to expand...

No your wrong. The good implant center I am talking about has as an excellent doctor, pediatric audiologist, education liason, and social worker and has been implanting for over 20 years. The not good implant center has a doctor and an audiologist that has very little experienced with children.
 
jillio said:
Once again, you are taking responses out of context in order to inflame.

Let me ask you this: if there is nothing to "fix", why a CI?
Click to expand...

I have explained this over and over again. The reason to implant is to give access to sound. It is not fixing anything it is giving access to sound.
 
jackiesolorzano said:
The reason they need CART is because there are about 40 kids in a class. There is background noise that yes makes it hard for them to hear everything. But if they are in a room with about 3 people behind them they will hear everything they say. Now with each additional person and the more background noise it is harder for them to hear. Since my children have the right to full access, I will do everything in my power to make sure that their rights are being met.
My children have more options then your son. They can text or talk on the cell phone. They can talk using a land line or also use the TTY we have and if they want they can also use the VRS they have. The more options the better.
Click to expand...

That comment is insulting to many deaf people. It is that kind of view we are against and fighting against. Just like how AGBell portrayed in the letter to Pepsi. Why do u think some people in the Deaf community are angry and using that anger against CIs? Maybe it is cuz people like u make these kinds of comments.

Come on...that is wrong.

"Children who can hear have more options" that is a dangerous message to potential parents, to those children who dont qualify for implants nor benefit from them, those who were unable to develop oral language.

Yes, I believe in providing both but if for some reason some children are unable to benefit from their CIs, develop spoken language..the most important thing is that they are NOT language deprived. Chidlren who are language delayed are the ones who have less options ..doesnt matter if they can hear or not.
 
jackiesolorzano said:
The reason they need CART is because there are about 40 kids in a class. There is background noise that yes makes it hard for them to hear everything. But if they are in a room with about 3 people behind them they will hear everything they say. Now with each additional person and the more background noise it is harder for them to hear. Since my children have the right to full access, I will do everything in my power to make sure that their rights are being met.
My children have more options then your son. They can text or talk on the cell phone. They can talk using a land line or also use the TTY we have and if they want they can also use the VRS they have. The more options the better.
Click to expand...

I'm going to have to disagree with you on that one, jackie. My son has every opportunity available to him that your children have. The fact that you even suggest that he is more limited because he is not implanted is te\he very attitude that people find so distasteful.

And, if your children are having difficulty understanding in some situations due to background noise, then I would suggest that their ability to understand spoken telephone conversations would also vary dependent upon conditions.
 
shel90 said:
That comment is insulting to many deaf people? It is that kind of view we are against and fighting against. Just like how AGBell portrayed in the letter to Pepsi.

Come on...that is wrong.

"Children who can hear have more options" that is a dangerous message to potential parents, to those children who dont qualify for implants nor benefit from them, those who were unable to develop oral language.

Yes, I believe in providing both but if for some reason some children are unable to benefit from their CIs, develop spoken language..the most important thing is that they are NOT language deprived. Chidlren who are language delayed are the ones who have less options ..doesnt matter if they can hear or not.
Click to expand...

Exactly.
 
shel90 said:
differences in speech skills? I said that many people have been fooled cuz I have good speech skills so they think I am hearing sometimes.

How would you know that my speech skills are different from your children?

If u wanted to compare differences, that would be receptive skills, not speech skills.

I am happy for your children. If it makes them happy great. However, I work with kids who have CIs who cant even engage in spoken conversations.
Click to expand...

You are right I do not know for sure if my children's speech skills are better then yours but I do know that they are able to understand people better then you because they can understand people who's back is turned to them.
 
jackiesolorzano said:
No your wrong. The good implant center I am talking about has as an excellent doctor, pediatric audiologist, education liason, and social worker and has been implanting for over 20 years. The not good implant center has a doctor and an audiologist that has very little experienced with children.
Click to expand...

Very little experience with childen is hardly a criterion for deciding if an implant center is "good" or "bad". Perhaps they choose to work with the adult population. Not all doctors and audis choose to work with a pediatric population.

Could you please clarify what you mean by "implanting too late?"
 
jackiesolorzano said:
You are right I do not know for sure if my children's speech skills are better then yours but I do know that they are able to understand people better then you because they can understand people who's back is turned to them.
Click to expand...

Only in quiet conditions, and no more than 3 people. You just said so.
 
jackiesolorzano said:
You are right I do not know for sure if my children's speech skills are better then yours but I do know that they are able to understand people better then you because they can understand people who's back is turned to them.
Click to expand...

Maybe, but that problem can be solved if hearing people would just take the time to meet me halfway and not turn around. That is all is needed from them but if they are not willing to do that, then they are not worth my time of the day. I am not going get an implant just for that only.

I can carry on conversations with hearing people face to face pretty good with my HAs.

I sat with my bank's rep for 2 hours a month ago without a terp and we got my problems solved. He was shocked that after an hour of talking to me to discover that I am deaf.

If one has the innate ability to develop spoken language, one will whether they have implants or not.
 
shel90 said:
That comment is insulting to many deaf people. It is that kind of view we are against and fighting against. Just like how AGBell portrayed in the letter to Pepsi. Why do u think some people in the Deaf community are angry and using that anger against CIs? Maybe it is cuz people like u make these kinds of comments.

Come on...that is wrong.

"Children who can hear have more options" that is a dangerous message to potential parents, to those children who dont qualify for implants nor benefit from them, those who were unable to develop oral language.

Yes, I believe in providing both but if for some reason some children are unable to benefit from their CIs, develop spoken language..the most important thing is that they are NOT language deprived. Chidlren who are language delayed are the ones who have less options ..doesnt matter if they can hear or not.
Click to expand...


I am sorry if I insulted. The truth is that my children do have more options in communicating. It is not meant to insult it is just a fact.
 
jillio said:
Only in quiet conditions, and no more than 3 people. You just said so.
Click to expand...

It goes the same for me...can handle 3 people ..I go out with my husband and his friends so as long as it is in ideal conditions, I do fine without sign language.

The reason I prefer to be in signing environments is cuz ASL is just so much easier for me.
 
loml said:
I realise that shel90.

Still waiting to see a copy. :)
Click to expand...

Obviously, you did not realize it, or you would not have made the post that shel was correcting. And you will not see the whole paper. I've already stated why that is so. You will, however, learn who the author is as soon as I have been given permission to make her name public.
 
Last edited by a moderator:
Status
Not open for further replies.
Back
Top