Eva

A

Addie's Mom

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Hi everyone,

My name is Shannon Barksdale and my daughter Addison has EVA. She is 14 months old and we are looking to get a second opinion. We live in Mississippi - please let me know the best place in the US to take her and the best place in the South to take her. Also, ANY information would be greatly appreciated.

Thank you so much!
 
Lissa said:
Enlarged Vestibular Aqueduct Syndrome or LVAS- Large Vestibular Aqueduct sydrome. Hearing can detoirate after a bang to the head

Here's a link about EVAS/LVAS

Large Vestibular Aqueduct Syndrome (LVAS)
Click to expand...

:ty: It was very informative and was a great help.

It's amazing the different things I am learning in the last few weeks here on AllDeaf. Thanks everyone!!
 
What's her hearing loss now? EVA isn't too unusual. You might just need to take her to the ENT hospital that serves to treat kids with while they're not super rare, a typical doc wouldn't see them.
I would also contact the Mississippi School for the Deaf, for any resources, help, info etc.
B/c she's at risk for more severe hearing loss, I would see about her learning ASL (in addition to speech therapy and hearing aids/CI of course!)
 
Lissa,
Thank you so much for the link to the article - very informative!

Her hearing loss now is 35 to 40. She has had hearing aides since she was 3 months old and we have had her in speech therapy since then as well with University Medical Center through her ENT and with the Magnolia Speech School. She had a sedated hearing test when she was a year and her hearing levels have remained the same, so her hearing loss should progress at a slower rate. Of course it could drop at any time.

We have an appointment with the Shea Clinic in Memphis, TN in two weeks. Have y'all heard anything about this clinic?

Thanks again for the info. I'm so glad to find a forum and meet new friends so we can help Addie!
 
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