No one in Texas wants to hire an interpreter!

dreama,

I don't want an organization speaking for me.

Mental illness, autism or any other dual disability has nothing to do with it.

Mental illness does not affect me as a blind person with the exception of how it changes my moods. Mental illness does not prevent me from getting from point A to point B. Mental illness does not prevent me from living on my own independently as a competent blind person who has been doing so since I was 18 years old.

My needs as a blind person with mental illness are no different than someone who is totally blind and does not have mental illness.

As far as you having the desire to show people how capable you are, good for you.

I don't have a need to prove myself to anyone since the sighted world will continue to believe whatever they wish about blind people.

Seeing one blind person traveling independently will not change their mind about blind people as a whole.

If sighted people want to view me as incompetent, let them. I don't base my self worth on how others see me.
 
dreama,

Let's agree to disagree as far as the NFB vs. guide dogs are concerned. You see it one way and I see it another. We will not see eye to eye on this, so let's just stop debating the subject.
 
Sometimes what an agency does well for one person just doesn't fit another person.

Since I know little about the NFB and am counting on both Hear Again's and Dreama's opinions, I can see that they may have a bit of a problem with the way they are executing their programs and being received by those who need the organization in their corner.

Do they have an input board of users? I think you both could give valuable feedback.
 
ASLGAL said:
Do they have an input board of users? I think you both could give valuable feedback.
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The NFB has state chapters that anyone can participate in. I happen to be a member of my local NFB, but do not subscribe to their philosophy regarding audible traffic lights, truncated domes or guide dogs.

However, their general stance on the capabilities of blind people is something I strongly agree with. I just don't think they have the right to dictate what accommodations are appropriate for the blind population as a whole.
 
Hear Again said:
their general stance on the capabilities of blind people is something I strongly agree with.
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I totally agree with that.

I don't agree with every single detail. All cars are silent as far as I'm concerned. As I said before tactile paving is useful for me as a blind person. Audio signals are neither here or there although being deaf I prefere the tactile ones.

As I said before I think they DO represent capapable blind people far better then any other blind organisation does. It's just some blind people are not so capable. Either because they have aditional problems that affect them more then blindness or they get the armchair treatment. Having everything done for them just because they are blind. It's understandable for them to want to raise the immage of blind people so less blind people are restricted by their families misconceptions of blindness.
 
ASLGAL said:
Do they have an input board of users? I think you both could give valuable feedback.
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I'm a member of several of their mailing lists. Since I don't live in USA I tend to support them from Afar. I just wish that there was an NFB in England.
 
dreama said:
I totally agree with that.

I don't agree with every single detail. All cars are silent as far as I'm concerned. As I said before tactile paving is useful for me as a blind person. Audio signals are neither here or there although being deaf I prefere the tactile ones.

As I said before I think they DO represent capapable blind people far better then any other blind organisation does. It's just some blind people are not so capable. Either because they have aditional problems that affect them more then blindness or they get the armchair treatment. Having everything done for them just because they are blind. It's understandable for them to want to raise the immage of blind people so less blind people are restricted by their families misconceptions of blindness.
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I agree dreama. I just don't like how the NFB claims to speak for all blind people.
 
Hi Lucia,
I'm just wondering how this problem ended? Did you ever get your health problem sorted out? with or without a terp?
 
Lucia,

I work as a disability discrimination attorney for Advocacy, Incorporated, Texas' designated protection & advocacy agency (Advocacy, Inc. - Home Page). Can you contact me at fkuo@advocacyinc.org to let me know what's been happening since your first post with your doctors? I think I might have gotten a "test" e-mail from you, but when I replied, I got an e-mail saying that there was no such e-mail address. If that was you, could you please try again?

I would like to offer help, if I can.

Faye
 
And if anyone else knows how to get in touch with Lucia, could you please let her know that I am looking to get in touch with her?

Thank you for any assistance.
 
Thanks Faye. It's nice to see you in this forum too. How are you doing with the Wells Fargo thing?
 
Thanks for checking in re WF. I haven't had anyone from this forum contact me about it. It is too early at this point to say whether we will deal with WF (or other banks in similar situations) but I am hoping we can with the right client.
 
LuciaDisturbed said:
I don't think the Texas medical board is going to care.

The attitudes that I get from the doctors I was supposed to see seem to suggest that they do not care whether they are on shaky ground or not with this. I have told them that they are breaking the law. I have told them that they could be sued for this. I have told them that I am reporting them. I have told them that they could lose their job and have their practicing licenses revoked. I use every single legal-related and ethics-related threat that I can think of to get the doctors to get an interpreter and to see me. They just don't care. They say "I'm sorry for the inconvenience but we have cancelled the appointment and the doctor does not want to see you nor get an interpreter" and after I try to make them comply they usually hang up eventually. If they act this way, I don't think a letter from an attorney at NAD would do anything. They will probably laugh at the letter, make a big joke out it and crumble it up and then toss it in the trash. That's how I feel right now. I'll try this though, but I really don't hold much hope in this right now, given the way the doctors and their receptionists act and their attitudes on the phone. I'm not holding my breath nor getting my hopes up.

EDIT: I misspelled "inconvenience", it has been corrected now.
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i am sorry but you need to do more then threat them because they are not going to do anything or complete.
 
LuciaDisturbed said:
I've been trying for the past few months to see a neurologist and a rheumologist, but NO ONE will shell out the cash for an interpreter, even though they are aware of the liability if they don't hire one. I warned them that it is a violation of the ADA laws, they tell me they don't give a flying fuck about that and that they don't want to hire an interpreter, and they won't even see me and let me write back and forth...they just can't be bothered to deal with deaf patients! I am so frustrated and I do not know what to do anymore. I seriously need a wheelchair, and I seriously need to find out what the hell is wrong with me, but no one wants to do tests and treat me. But down here in Texas they don't care about liability. They just can't be bothered. They don't care. I feel like no one cares.I think there is something worse going on with me given the symptoms I am having right now. I don't know what to do anymore and I am so frustrated and tired and pissed and sad. My fiance is worried about me. I don't know what to do. My body is waging a war on itself, and I will lose the war if no one will help me. I try to fight, but no one will help. I can't win if no one will help me. Do any one know what to do? I need some some advice and some suggestions. And no, I'm not moving out of Texas, that is completely out of the question. Do anyone have any suggestions, ideas, whatever? Moving out of Texas is OUT OF THE QUESTION. It would ease a lot of communication issues for both me and for the doctors.)

Thank you in advance. Sorry if this post sounds whiny, but I am just really frustrated at this point and would really like some good advice and suggestions.
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i have a couple of suggestions. first and formost i feel strongly that u should go online and search Lyme Disease.... Just by the very few things u mentioned it seems to me, i having Lyme myself, that it may be likely u have it as well. Also, might i suggest u bringing someone along w u on ur dr. appts to interpret for u?
In san angelo there is a nature pathic doctor that you can see. i use to work for hime. he is in san angelo tx. he treats lyme disease as well as many other diseases and cancers and such. he works out of a clinic w another specialist in mexico as well and they are having fanominal results w treating and curing of some rare illnesses and cancers and Lyme as well. just a thought. feel free to email me if ur interested.
 
deafannieboo said:
i have a couple of suggestions. first and formost i feel strongly that u should go online and search Lyme Disease.... Just by the very few things u mentioned it seems to me, i having Lyme myself, that it may be likely u have it as well. Also, might i suggest u bringing someone along w u on ur dr. appts to interpret for u?
In san angelo there is a nature pathic doctor that you can see. i use to work for hime. he is in san angelo tx. he treats lyme disease as well as many other diseases and cancers and such. he works out of a clinic w another specialist in mexico as well and they are having fanominal results w treating and curing of some rare illnesses and cancers and Lyme as well. just a thought. feel free to email me if ur interested.
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I know I do not have Lyme, because my mother had it and I know what it looks like and what the symptoms are, I remember how sick she was and everything, and I don't have the symptoms she had. Don't diagnose me over the internet, please...leave that to the doctors.
 
deafannieboo said:
i have a couple of suggestions. first and formost i feel strongly that u should go online and search Lyme Disease.... Just by the very few things u mentioned it seems to me, i having Lyme myself, that it may be likely u have it as well. Also, might i suggest u bringing someone along w u on ur dr. appts to interpret for u?
In san angelo there is a nature pathic doctor that you can see. i use to work for hime. he is in san angelo tx. he treats lyme disease as well as many other diseases and cancers and such. he works out of a clinic w another specialist in mexico as well and they are having fanominal results w treating and curing of some rare illnesses and cancers and Lyme as well. just a thought. feel free to email me if ur interested.
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LuciaDisturbed said:
I know I do not have Lyme, because my mother had it and I know what it looks like and what the symptoms are, I remember how sick she was and everything, and I don't have the symptoms she had. Don't diagnose me over the internet, please...leave that to the doctors.
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Lucia's right. You shouldn't diagnose someone via internet. In order for someone (her or anybody) to have been diagnosed with Lyme, they have to be bitten by a deer tick. She isn't in a situation that would put her at risk, so there's no need for her to be concerned about it.
 
i appoligize it i wasnt trying to diagnose her myself, it was just a thought. well good luck wish u well.
 
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