Just curious.. anyone with night blindness?

Babyblue

Babyblue

New Member
Joined
Dec 19, 2007
Messages
12,187
Reaction score
5
I have Night blindness been suffering from for a long time now. It is hard for me to see at night. much less, I have a tendency to bump into things at night/day and I do not drive at night because I know better. I am already Deaf and I feel like I may end up having tunnel vision or lose it all together. It is becoming very stressful to me. I will set up an appointment with an eye specialist to find out what my actual diagnosis is. I kind of have an idea what it is but, don't want to say anything until I find out for sure.


Anyone else that suffers from night blindness?
 
Since you mentioned "tunnel vision"... do you have Usher Syndrome (if you don't mind my asking)?

There are various levels of Usher Syndrome and varies on the individual. I have a friend who has Usher Syndrome. He wears glasses when reading, but does fine without glasses on other things. He grew up with it and learned to be very alert with things around him.

If someone tapped his shoulder, he would look towards the direction of that tap. If that person was taller or shorter, he would look at that direction... then look up and down.

I know some people who have Usher Syndrome and haven't really adapted to it well. So, if someone taps their shoulder... the look quickly and in all directions as if they can't find anything. It's like someone touching my right shoulder and I look up-right, then behind me, then down, then shake my head, and after looking like a panicking idiot for 30 seconds... I finally find the person who was tapping my shoulder.

Anyway, his does have problem at night... but it's fine when he wears glasses. Without glasses, he has to keep his eyes directly in front of him to see well. With glasses, he can drive calmly and look in all directions fine.

Do you wear glasses? It could be your vision, not blindness. :dunno:
 
VamPyroX said:
Since you mentioned "tunnel vision"... do you have Usher Syndrome (if you don't mind my asking)?

There are various levels of Usher Syndrome and varies on the individual. I have a friend who has Usher Syndrome. He wears glasses when reading, but does fine without glasses on other things. He grew up with it and learned to be very alert with things around him.

If someone tapped his shoulder, he would look towards the direction of that tap. If that person was taller or shorter, he would look at that direction... then look up and down.

I know some people who have Usher Syndrome and haven't really adapted to it well. So, if someone taps their shoulder... the look quickly and in all directions as if they can't find anything. It's like someone touching my right shoulder and I look up-right, then behind me, then down, then shake my head, and after looking like a panicking idiot for 30 seconds... I finally find the person who was tapping my shoulder.

Anyway, his does have problem at night... but it's fine when he wears glasses. Without glasses, he has to keep his eyes directly in front of him to see well. With glasses, he can drive calmly and look in all directions fine.

Do you wear glasses? It could be your vision, not blindness. :dunno:
Click to expand...



Usher syndrome progress rapidly attacks vision or hearing. (so it is not that)

When I went to get new glasses I told my optometrists that I can't see well at night, and since then he told me he can't give me a diagnosis due to he is not a medical Dr. gave me a referral to a specialist to test me for retina pigmatosia. I noticed I didn't have night vision around the age of 14 one night when we were out watching fireworks. I kept bumping into things thinking. OMG what is going on. People were laughing thinking I was joking around but it was a sick feeling. Just seems like it gets worse over time.
 
I am blind due to genetics and Deaf from antibiotics (tobramycin)

Unlike you, I have severe day blindness(hemeralopia)

--

Some individuals with usher syndrome are born only mildly hoh and only start to feel the effects of RP in mid/late adulthood. There are three different subtypes of Usher syndrome, the first and most severe of which can lead to complete deafness and blindness in adolescence, to the last which is a much milder and slower progressing form.

The course of RP is generally pretty slow, regardless of whether or not the individual has usher syndrome or not. Some individuals with RP can be severely predisposed to retinal detatchment, which WOULD lead to sudden vision loss, although this cannot be considered a normal course of the disease.

Statistically, it's somewhat uncommon for someone with hearing loss and vision loss to not have usher syndrome. It is pretty much unheard of for someone with hearing loss and retinitis pigmentosa especially to not have Usher Syndrome.

That said, I strongly suggest visiting a low vision specialist in your area, who can talk to you about the different wavelength filters that might benefit someone who has nyctalopia. I also strongly suggest with getting in touch with organizations dealing with vision loss in your area- losing your vision is doubtless scary and being around positive "role models" who cope with blindness or deafblindness can make things easier, as vision loss is the inevitable course of RP.

Hope that helps.
 
Thanks for the information. I did some reaerach on line to look up usher syndrome. Seems like it could be the type 2.
 
VamPyroX said:
Since you mentioned "tunnel vision"... do you have Usher Syndrome (if you don't mind my asking)?

There are various levels of Usher Syndrome and varies on the individual. I have a friend who has Usher Syndrome. He wears glasses when reading, but does fine without glasses on other things. He grew up with it and learned to be very alert with things around him.

If someone tapped his shoulder, he would look towards the direction of that tap. If that person was taller or shorter, he would look at that direction... then look up and down.

I know some people who have Usher Syndrome and haven't really adapted to it well. So, if someone taps their shoulder... the look quickly and in all directions as if they can't find anything. It's like someone touching my right shoulder and I look up-right, then behind me, then down, then shake my head, and after looking like a panicking idiot for 30 seconds... I finally find the person who was tapping my shoulder.

Anyway, his does have problem at night... but it's fine when he wears glasses. Without glasses, he has to keep his eyes directly in front of him to see well. With glasses, he can drive calmly and look in all directions fine.

Do you wear glasses? It could be your vision, not blindness. :dunno:
Click to expand...



Could be Usher Syndrome type 2. I guess I was just in denial, Thanks for the suggestions. Will have a specialist confirm or deny what I may have.
 
Thanks for the alert on Usher syndrome, VamPyroX.

I have late deafness, some minor balance problems, and trouble driving at night when meeting headlights of oncoming cars.

I'll mention type III Usher syndrome to both my physician and eye doctor.
 
Wow me too, I also have trouble driving and reading the closed caption on TV during night time, the lights bothers my eyes, I do have glasses but they're old since high school, I only wear them during the evenings, is plan on going back to see an eye doctor for new pair.
 
I have the reverse! I can see better at night without my
glasses...weird!! I wear glasses during the day as im near
sighted but i dont need them at night so i dont wear them
especially when i drive! I told my eye doctor that and he said
thats normal for some people like me and he said he could
prescribe glasses made for night but it would cost more money
so he suggest that i just take off my glasses when i go out
at night...so i do that, heh.

Babyblue, i would go to a eye specialist and see what he says
about the night blindness problem...maybe there is help for that,
i dont know as i dont know anything about night blindness.
 
I can see better at night without my glasses...weird!! I wear glasses during the day as im near sighted but i dont need them at night so i dont wear them especially when i drive! I told my eye doctor that and he said thats normal for some people like me and he said he could prescribe glasses made for night but it would cost more money so he suggest that i just take off my glasses when i go out at night...so i do that, heh.

Babyblue, i would go to a eye specialist and see what he says
about the night blindness problem...maybe there is help for that,
i dont know as i dont know anything about night blindness.
 
Oh, my! I'm going to the eye doctor right away. I tried to read Defee's post, and I'm suddenly seeing double!
 
Chase said:
Oh, my! I'm going to the eye doctor right away. I tried to read Defee's post, and I'm suddenly seeing double!
Click to expand...



hahahahaha!!!!, actually she did posted double you goofyie, you made me choke on my icetea here, but thanks for the laugh, that was a good one!!


:bowlol:
 
It is no big deal.. I have Usher sydrome... i also have night blindness...
 
SxyPorkie said:
It is no big deal.. I have Usher sydrome... i also have night blindness...
Click to expand...

How bad is your night blindness and usher syndrome? I'm going on 34 yrs old in Feb and I can not see at all at night. Like I have said before I don't even dare to drive at night due to I Can Not see. My husband has to guide me in dark areas at the movies, restaurants that are dimmed for the evening dinners and much more. I walk through stores broad daylight with wet floors signs up, and I run right into them. then I try to be comical about it and say "I need a sign to warn me about the wet floor signs"

In other words, it is a big deal to me.
 
_rotfman.gif


Chase said:
Oh, my! I'm going to the eye doctor right away. I tried to read Defee's post, and I'm suddenly seeing double!
Click to expand...
 
Babyblue said:
Like I have said before I don't even dare to drive at night due to I Can Not see. My husband has to guide me in dark areas at the movies, restaurants that are dimmed for the evening dinners and much more. I walk through stores broad daylight with wet floors signs up, and I run right into them. then I try to be comical about it and say "I need a sign to warn me about the wet floor signs"
Click to expand...

While there isn't much you can do about the problems driving at night (certain glasses may help, but not often/aways to the extent of safe driving at night) you should be able to get alot of help in the other departments. Orientation and Mobility specialists are generally used to clients with vision ranging anywhere from 20/50 to 20/1300 or worse, so asking for a referral from the specialist you're visiting would be a great idea.

In regards to vision loss being a big deal... yeah, it is at first, but with proper coping mechanisms, it can and will be reduced to just "another thing" in your life. That is not to say that it's unacceptable to be upset- it's quite normal, and it's supposed to feel like a big deal at first. It wont always, though.

:hug:
 
Chase said:
Oh, my! I'm going to the eye doctor right away. I tried to read Defee's post, and I'm suddenly seeing double!
Click to expand...

Ohhhhh, im sooooo sorrrrrry, forrrr theeee double pooosssting...LOL!
i tried to change the wording but for some reason, the alldeaf system
would not let me delete it..mmmm...not my fault...heh!


Sorrrry! Angel you nearly choked on your iced tea.....hahaha...
not my fault!!
 
Back
Top