hopefully good news about ABI

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tigersharkdude

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After a number of months of talking with the NF foundation (my mother talks to them), I may be getting my ABI :D through a donation from the NF foundation. That makes me happy to know that I may soon (within a year) be getting a portion of my hearing back :D

Just thought I would share the good news
 
DeafDavidsMom said:
Congratulations, that is awesome! What is NF?
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Neurofibromatosis (commonly abbreviated NF, also known as von Reklinghausen disease) is a genetically-inherited disorder in which the nerve tissue grows tumors (i.e., neurofibromas) that may be benign or may cause serious damage by compressing nerves and other tissues. The disorder affects all neural crest cells (Schwann cells, melanocytes, endoneurial fibroblasts). Cellular elements from these cell types proliferate excessively throughout the body forming tumors

Neurofibromatosis - Wikipedia, the free encyclopedia

Type 2 runs in my husband's family.
 
tigersharkdude said:
After a number of months of talking with the NF foundation (my mother talks to them), I may be getting my ABI :D through a donation from the NF foundation. That makes me happy to know that I may soon (within a year) be getting a portion of my hearing back :D

Just thought I would share the good news
Click to expand...

I'm learning about the ABI now. Keep us posted. Good luck with everything.
 
DeafDavidsMom said:
Congratulations, that is awesome! What is NF?
Click to expand...

Bottesini said:
Neurofibromatosis

Neurofibromatosis - Wikipedia, the free encyclopedia

Type 2 runs in my husband's family.
Click to expand...

I have type 2 also.

Thanks for all of the support peeps.

And for those of you wondering why I cant use the CI. The CI works with a "living" organ. I need an ABI because...when the tumor is removed it will "kill" the organ, therefore a CI would be uselss. An ABI bypasses the cochlea and goes directly to the brainstem (auditory brainstem implant--ABI)

If anybody has any info. about the ABI that would be great
 
UPDATE:

Got a call last week. The woman that spoke with my mom told us to be at Vanderbilt on that friday. Good news. I will be having my surgery to remove the tumor from my left audio nerve around the end of april, and a month or two after I will be having the second surgery to implant the ABI. Really hoping for the best here. Hoping to get some of my hearing back.
 
Your gonna love the harmony, I am loving my left, my right... err well the ABI recently broke lol. But I loved it when it was working!

Good luck dud
 
Also got some REALLY good news today. The surgeon who will be implanting the ABI is a specialist from California (he is supposed to have done more ABI implants than any other doctor). At least it eased me to know that I will have a very knowledgeable doctor doing the surgery and not someone who has never placed one of the implants
 
tigersharkdude said:
Also got some REALLY good news today. The surgeon who will be implanting the ABI is a specialist from California (he is supposed to have done more ABI implants than any other doctor). At least it eased me to know that I will have a very knowledgeable doctor doing the surgery and not someone who has never placed one of the implants
Click to expand...

I am really interested what you will think of it when it is turned on. My husband's cousin with NF2 decided not to do it, but I wonder if you will think it is really great.
 
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