DizzyDon62
New Member
- Joined
- Aug 18, 2007
- Messages
- 87
- Reaction score
- 0
Hello my name is Don I have Bilateral Meniere's Disease since 2002 and in Feb 05 I had a labyrinthectomy done on my right ear to cure the vertigo it was so bad. Three months after that the vertigo started in my left ear amost as bad but as time went on it was almost 24/7 so this past April I had sac decompression surgery. My hearing has not been the greatest with this disease I wore a hearing aid for a yar in my left year but it was not doing much good in the end. April 13 just after the surgery I lost all hearing the only thin I have left in both ears is 24/7 tinnitus I live way out in a small farming town hours from any major cities. With that in mind I am learning lipreading from a set of DVDs I bought and I think im doing well with the aid of finger spelling and the odd note. I have accepted being deaf its who I am I was prepared for this having this disease and I will always be deaf even when I get the CI. My biggest problem is family and friends I go see them and its like hi how are you this must be hard on you and thats it poof im invisible. I feel like im in my own little world being ignored like that ,they say you find out who your friends really are in life well it seem as though im dead to them. Being a hearing person all of my life sure I miss things but its not the end of the world its this god awfull meniere's that has taken the most from me I have not driven a car in 5 yrs and will never again with no vestubular function. I wont be able to swim with out a life jacket because I only have my eyes for balance. This weekend im going to give my daughter a book on how to sign I went out and bought 3 so my girlfriend my daughter and I can learn togeher. I wish I could drive 2 1/2 hrs twice a week for classes but its to much on my girlfriend and im on disability so money is tight to lol. So do any of you get treated like your not there at family or friends get togethers cause they started to treat me that way the last few months while wearing my hearing aid.
Don
Don