Cochlear Implants

Would you get cochlear implants today if you had the chance?

  • Yes

  • No


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sonocativo

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I had thought bout gitting the ci..had talked with the guy that does the operation ..
We talked n talked then I told him that I know I would have to have a meningitis shot ..so I asked him a question ...
I had spinal meningitis when I was a kid , hasn't come back on me ..yet..was told by a doctors years ago it could come back on me ..
Anyways I said will the meningitis shot interfere with the spinal meningitis ..
He said no one ever asked him that ..and since I'm worry bout that and it makes him worried..then said that it won't work for me ..
I thanked him for his time and left his office..
And have looked up on the internet about the cochlear .
I read more negative then the positive..
Also found that the long term risk of the cochlear implant is meningitis
-infection of the fluid around the brain-.. This is very rare and there have only been 92 cases out of 60,000 patients with cochlear implants..
However , 17 of these patients have died ..

I'm happy for those that had it done and have a deaf friend had it done , she got about 85 % hearing ..I'm glad for her ...
It's just not for me ..I read that it helped lots n also where it didn't help any ..
My late mum asked me months before she passed if I was gonna have it done ..although she never said to git it done ..but I think she wanted me look into it and I have ..I like to think she knows ...
I don't have any kids ..but if I did and kid was deaf ..I wouldn't make him/her have it done ..when they are older they can decide for themselves ..

There are hearing people that argue that denying those deaf kids cochlear implants is akin to child abuse ..wht the hell they know ...

I know that hearing people, and doctors wants make deaf having the implants ..but in my opinion they just want to money , doesn't matter if it works or not ..
Besides they have no idea wht deaf is ...

I know sign language but don't use it much , there's no one around my areas that use it ..but there one guy at Walmart I chat with ... he's deaf ..
And met two hearing people that knows a little ..
I only know the old American signs language ..1971-1976
I never learned more after that ...
If your surgeon cant answer that, you need a different surgeon...period.
I am a volunteer and there are several others who has menigitus, meneres and so much more before CI surgery and theyve had no issues. Yes the shots are required before surgery as a precaution from the surgery and thats for everyone. Ive had spinal surgery prior to CIs so I got the shot several times with no issues. The people who complain online are ill informed ( we had several here that are anti CI ) and I have pulled them over to the support groups and within weeks they had CI surgeries and very happy with it to this day . Although not for everyone, depending on their history and medical issues, a lot of people are mis informed or because they are Anti CI they will beat it down because thats what they are best at. Honestly, If I had the resources when I was younger, I would have had CIs sooner, and technology has come so far since that time as well ! Jump on the bandwagon, if you want to join these support groups and get first hand insight and answers to all your questions PM me.
 

shel90

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I used to be anti-CI until I got a job in the public schools. I was told that I was going to have paraeducators who were fluent in ASL. Turned out that they were not even ASL level 1 fluent. My boss thought by knowing a handful of sign language is fluency. *eye roll*. So, for the first time since I left the hearing world in 1999, I found myself right back in the hearing world with no ASL. At the time I hadn't worn my hearing aids for 5 years because I lost them at the beach. Yes, I was devastated and my insurance wouldnt cover for new hearing aids so I gave up on wearing them as I was in the Deaf world 24/7. So, I couldn't lipread without sound support and I was struggling to understand my colleagues. Realized that I needed my hearing aids so I made an appt for new ones. Got a hearing test and the audiologist told me that my hearing dropped significantly and I wouldn't benefit from hearing aids. That I was a candidate for a CI. I thought it was the same old BS from the pro CI groups trying to gaslight me into getting one so I said no. The audiologist let me wear loaner hearing aids for a month because my insurance wouldn't approve of them unless I went through the trial. I was upset because I felt like I had no say about what I wanted. That I was at the mercy of the insurance and CI industry. LOL. So, I agree and sure enough, I could barely hear from hearing aids. It was like the batteries were always dying and I kept trying to turn the volume up. One problem was that the volume was at the max. It was a very stressful and frustrating month trying to communicate at work and struggling with lipreading due to no sound support. Finally, I relented and said, "Let's go for it. " I was not happy about it. In fact, I was crying about this decision because I have a fear of surgery due to my bad experience with it one time. The audi asked if I wanted to get two and I said, "NO!!! Just one."

Went through it...8 years later, I have two of them and I love them. No, they do not make me hearing but definitely help with lipreading. However, music sounds so MUCH better with them than it did with hearing aids. I love that.

I take them off as soon as I get home from work because my brain gets tired from trying to process everything I hear. It gets overwhelming at times.

No, spoken English is still not natural to me like ASL is. ASL is still my preferred language.
 

sonocativo

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I used to be anti-CI until I got a job in the public schools. I was told that I was going to have paraeducators who were fluent in ASL. Turned out that they were not even ASL level 1 fluent. My boss thought by knowing a handful of sign language is fluency. *eye roll*. So, for the first time since I left the hearing world in 1999, I found myself right back in the hearing world with no ASL. At the time I hadn't worn my hearing aids for 5 years because I lost them at the beach. Yes, I was devastated and my insurance wouldnt cover for new hearing aids so I gave up on wearing them as I was in the Deaf world 24/7. So, I couldn't lipread without sound support and I was struggling to understand my colleagues. Realized that I needed my hearing aids so I made an appt for new ones. Got a hearing test and the audiologist told me that my hearing dropped significantly and I wouldn't benefit from hearing aids. That I was a candidate for a CI. I thought it was the same old BS from the pro CI groups trying to gaslight me into getting one so I said no. The audiologist let me wear loaner hearing aids for a month because my insurance wouldn't approve of them unless I went through the trial. I was upset because I felt like I had no say about what I wanted. That I was at the mercy of the insurance and CI industry. LOL. So, I agree and sure enough, I could barely hear from hearing aids. It was like the batteries were always dying and I kept trying to turn the volume up. One problem was that the volume was at the max. It was a very stressful and frustrating month trying to communicate at work and struggling with lipreading due to no sound support. Finally, I relented and said, "Let's go for it. " I was not happy about it. In fact, I was crying about this decision because I have a fear of surgery due to my bad experience with it one time. The audi asked if I wanted to get two and I said, "NO!!! Just one."

Went through it...8 years later, I have two of them and I love them. No, they do not make me hearing but definitely help with lipreading. However, music sounds so MUCH better with them than it did with hearing aids. I love that.

I take them off as soon as I get home from work because my brain gets tired from trying to process everything I hear. It gets overwhelming at times.

No, spoken English is still not natural to me like ASL is. ASL is still my preferred language.
Well said, basically same experience except in the construction/hazardous wastes fields here. had both done 3 months apart. everything sounds normal once the brain processes everything, took me about a year to figure out what sounds were ( never heard frogs, crickets...ect....) its mot a magic pill for everyone but it is amazing.
 

shel90

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Thanks for the compliment. You stated that everything sounds normal once the brain processes everything. For me, I have no idea was "normal" is as I was born with a severe profound bilateral deafness of dB levels at 120. With hearing aids, the sounds were natural and with the CIs, the sounds are not natural and I can sense that the sounds with my CI seem more robotic-like compared to whatever sounds I was able to hear from my hearing aids. Actually, I practically forgot what it is like to hear out of hearing aids now as I have had my CIs for 7 years. I just don't remember feeling the need to take my hearing aids off as soon as I get home from school or work when I wore them like I do with my CIs. According to my audiogram with my CIs, my hearing levels are at 30 dB so to hear everything that moves is very very overwhelming for me. With hearing aids, my hearing was at 90 dB. Huge difference. My husband said if I really worked hard at the speech therapy sessions I attended, maybe it wouldn't be so overwhelming. I question that because he is hearing and he has no idea what it is like to be deaf. All the experts who tell me the same thing are all hearing.

However, I am happy with them and how I wear them. I wear them when I go to non signing environments and take them off when I get home. I have no desire to listen to the TV, things moving around the house, dogs barking, sirens, and water running after a hard day at work. If I am in the mood, I will wear them to listen to music in the evenings. Even that can increase my anxiety if I am feeling on edge about something.

That's my CI journey from someone who was anti-CI. LOL!
 

LoveBlue

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Thanks for the compliment. You stated that everything sounds normal once the brain processes everything. For me, I have no idea was "normal" is as I was born with a severe profound bilateral deafness of dB levels at 120. With hearing aids, the sounds were natural and with the CIs, the sounds are not natural and I can sense that the sounds with my CI seem more robotic-like compared to whatever sounds I was able to hear from my hearing aids. Actually, I practically forgot what it is like to hear out of hearing aids now as I have had my CIs for 7 years. I just don't remember feeling the need to take my hearing aids off as soon as I get home from school or work when I wore them like I do with my CIs. According to my audiogram with my CIs, my hearing levels are at 30 dB so to hear everything that moves is very very overwhelming for me. With hearing aids, my hearing was at 90 dB. Huge difference. My husband said if I really worked hard at the speech therapy sessions I attended, maybe it wouldn't be so overwhelming. I question that because he is hearing and he has no idea what it is like to be deaf. All the experts who tell me the same thing are all hearing.

However, I am happy with them and how I wear them. I wear them when I go to non signing environments and take them off when I get home. I have no desire to listen to the TV, things moving around the house, dogs barking, sirens, and water running after a hard day at work. If I am in the mood, I will wear them to listen to music in the evenings. Even that can increase my anxiety if I am feeling on edge about something.

That's my CI journey from someone who was anti-CI. LOL!
What I love about my CIs? Being able to turn off my ears. :) And I'm late-deafened (started losing my hearing in my mid-30', got my CIs in my early 60's). It can be tiring trying to listen and understand sounds. If you're happy, and you sound like you are, then that's all that matters.
 

Banty banty

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I be gitting new hearing aid in few wks ...been going without my other hearing aid ..it was going bad anyways but do use it when I have to ..other than that I go without ..
No CI for me ...
I had told my family n friends that this is the last time I will buy hearing aid ..when it goes bad I will go without hearing aid ..won't have it fix if n when it breaks down ..
 

Barbaro

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Thanks for the compliment. You stated that everything sounds normal once the brain processes everything. For me, I have no idea was "normal" is as I was born with a severe profound bilateral deafness of dB levels at 120. With hearing aids, the sounds were natural and with the CIs, the sounds are not natural and I can sense that the sounds with my CI seem more robotic-like compared to whatever sounds I was able to hear from my hearing aids. Actually, I practically forgot what it is like to hear out of hearing aids now as I have had my CIs for 7 years. I just don't remember feeling the need to take my hearing aids off as soon as I get home from school or work when I wore them like I do with my CIs. According to my audiogram with my CIs, my hearing levels are at 30 dB so to hear everything that moves is very very overwhelming for me. With hearing aids, my hearing was at 90 dB. Huge difference. My husband said if I really worked hard at the speech therapy sessions I attended, maybe it wouldn't be so overwhelming. I question that because he is hearing and he has no idea what it is like to be deaf. All the experts who tell me the same thing are all hearing.

However, I am happy with them and how I wear them. I wear them when I go to non signing environments and take them off when I get home. I have no desire to listen to the TV, things moving around the house, dogs barking, sirens, and water running after a hard day at work. If I am in the mood, I will wear them to listen to music in the evenings. Even that can increase my anxiety if I am feeling on edge about something.

That's my CI journey from someone who was anti-CI. LOL!
Thank you for sharing your journey with us. I actually never considered you anti-CI due to the debates. You always believe in the full toolbox unless I missed something. What CI brand do you wear now? I just bought my brand-new hearing aids last year 'cause my right ear is declining. My left ear remains the same since my toddler years.

I grew up going to beach. I never ever bought my hearing aids with me to beach. I was so afraid someone will steal them or they are buried under the sand.
 
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shel90

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Thank you for sharing your journey with us. I actually never considered you anti-CI due to the debates. You always believe in the full toolbox unless I missed something. What CI brand do you wear now? I just bought my brand-new hearing aids last year 'cause my right ear is declining. My left ear remains the same since my toddler years.

I grew up going to beach. I never ever bought my hearing aids with me to beach. I was so afraid someone will steal them or they are buried under the sand.


Hello,

Tank you for the reminder. For some reason, by being all for the toolbox, I was labeled as anti-CI. I was more of against using them as the only option. Now, I am learning more and more about capitalism and the push to make profits of of our healthcare and well-being. It makes me nervous not knowing if I can trust the corporations to keep us safe. However, I think the CI companies would be too nervous to have cases of kids suffering from harm and lawsuits so I think they are careful about surgery and etc. I have Cochlear America. I forgot why I chose them. LOL! Yea, I refuse to wear them at the beach because I am so clumsy and famous for losing things. hahaha!
 
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