This is in reply to the "victimized by the Feingold Diet" posting and the "Description" of the diet later posted by Jillio. Both are sourced at Quackwatch.com written mostly by Stephen Barrett, a retired (some say unlicensed) psychiatrist who claims to be an expert on all medical treatments.
I am writing as the research person for the Feingold Association - although I am also a mom who has successfully used the Feingold diet for many years. I began it when my child developed Tourette Syndrome from stimulant meds and other meds just made him worse. The diet was our miracle. I later became a volunteer with the Feingold Association. My son finished college with a degree in chemistry and one in civil engineering; he has a fine job, a wife and baby - and continues to use the Feingold diet without which he would not have made it through high school, for sure.
Jillio, this “victim” who claims to be an attorney is anonymous. As an attorney, this person would know that an unsigned letter has no validity whatsoever. And it is certainly not written the way an attorney normally writes. The only place that this letter is posted is on the Quackwatch site and its clones. And if you read enough of the site, you will get to recognize Stephen Barrett’s writing – and boy, does this victim ever write just like HIM!!! I would venture to say, in the absence of any proof to the contrary, that Barrett made it up himself. Read it together with the “description” of the diet you posted later, and you will see that the writer carefully follows along with everything Barrett says in that article.
By the way, it is so interesting that the writer blames the diet for “FORCING” him or her to cheat on it and lie about it… and then blames the diet equally for not working. Well, if you don’t do a diet properly – any diet – it doesn’t work. That goes for weight loss diets and low sodium diets too. By the way, the writer says she was “grounded for drinking a Pepsi.” Well, what do you know – Pepsi and Coca Cola Classic are okay on the Feingold diet. Guess Mama didn’t know that.
Moving on to the description – please be aware that this is again from Quackwatch. That would be okay if they were actually as interested in the science as they claim to be. Unfortunately, they are not. This is obvious because they quote studies from over 30 years ago, while ignoring studies published in 2007!!
This is what they say:
“In 1983, the review team's co-chairman and another colleague reviewed additional studies and concluded that no more than 2% of children respond adversely to dye additives, and even that statistic was questionable [5]. Since that time, experimental findings have been mixed. Some researchers have reported little or no adverse effect during challenge experiments [6-7] and some have reported worsening behavior during such experiments [8-10]. However, it remains clear that the percentage of children who may become hyperactive in response to food additives is, at best, very small."
Look first at the date: 1983. That is 25 years ago! And the review team was reviewing studies done in the 1970’s – 30 years ago and more!!!! And yes, the statistic of 2% is questionable since not one single study that they reviewed actually proved any such thing. Most of those old studies were very small and were funded by the food additive industry. They tried their best to show that the diet didn’t work. Harley (1978) put 10 kids on 2 diets in a double blind study. 100% -- yes, 100% -- of the mothers reported that the kids on the Feingold diet did better. They did not know which diet was which. And yet Harley managed to conclude that there was no scientific basis for the Feingold diet. I could go on about the various studies because that is what I do – I collect and study the research. But I am sure you don’t want to be deluged with it all. It’s all old anyhow.
Okay – down to the details of the “description” of the Feingold diet by Barrett:
(1) Barrett claims that the Feingold diet requires a "change in family lifestyle and eating patterns"
------- This is NOT TRUE. Why change your eating patterns? Buy anything listed in our 200-page shopping guide and eat when and how you want.
(2) Barrett says that "carefully designed experiments fail to support the idea that additives are responsible for such symptoms in the vast majority of children."
------- Vast majority? The vast majority of children don't have such symptoms (but as additives increase, the percentage is increasing). Those studies were designed and funded by companies that make money from additives. "Carefully designed" studies by Philip Morris may prove that smoking is good for you. Would you believe them?
(3) Barrett says any improvement "appears related to changes in family dynamics, such as paying more attention to the children"
------- He made this up. All mainstream psychopharmacologists and psychiatrists agree that ADHD is NOT caused by poor parenting, and improved parenting or extra attention will not cure it. There is not one single study that claims to prove that this is so.
(4) Barrett claims that the "salicylates" eliminated by the Feingold Association (FAUS) do not match some other list of salicylates organized by weight or quantity.
------- Plants contain many kinds of salicylate, which are mildly toxic chemicals used as protection against insects. There is ethyl salicylate, methyl salicylate, octyl salicylate, acetyl salicylate, sodium salicylate, etc. - and their toxicity per amount is not necessarily the same for all of them. (Think of the difference between ethyl alcohol and methyl alcohol.) The list used for the Feingold Program is based on clinical response. It is a list developed in Germany in the 1930's for aspirin-sensitive asthma. It works, and has stood the test of time with very little change needed. Other lists are based on quantity regardless of type of salicylate compound – that is interesting, but not relevant. FAUS hopes to see some research on the different types of salicylate and their relative toxicities one day.
(5) Barrett quotes results from seven small studies funded and designed by the Nutrition Foundation way back in the 1970's. At an average of only 27 children per study, he adds them up to 190 to sound better, and claims this is proof the diet does not work.
------- These studies are over 30 years old. The now-defunct Nutrition Foundation is a food and additive industry group, including Dow Chemical and Coca Cola.
(6) Barrett footnotes Rowe 1988 study as one that "reported no effect."
------ This is false. 72.7% of children improving on the diet is NOT "no effect." The other study footnoted for this claim was the Gross 1987 study (20 years ago) on 39 kids of which only 18 had ADHD. Of those all but one were on medication (with coloring) throughout the study. The one not on medication was dropped from the study when he reacted to the additives. There was nobody left, then, to study. And Gross used a tasteless (his own opinion) diet with no desserts, but ignored additives in soap, toothpaste, medicine, etc. And the diet lasted only ONE WEEK. It usually takes a week in the best environment for any improvement to begin to show.
(7) Barrett says it is "clear that the percentage of children who may become hyperactive in response to food additives is, at best, very small."
---- Really? Studies using Feingold-type diets report the following percent of children responding to the diet:
Egger 1985 ……….. 81.6%
Swanson 1980 ……. 85%
Rowe 1988 ………… 72.7%
Egger 1989 ………… 80%
Egger 1992 ………… 76%
Carter 1993 ………... 75.6%
Rowe 1994 …………. 75%
Boris 1994 ………….. 73%
Below this email I have pasted more detail on studies that may interest you.
(8) Barrett claims that sugar does not cause ADHD
------- FAUS agrees, but what is the relevance? The Feingold Program does not eliminate sugar.
(9) Barrett thinks it is absurd to think that children and adults may be sensitive to environmental chemicals.
-------- From other articles on his site, Barrett clearly believes that any chemical not strong enough to kill you outright cannot make you ill or produce any neurological impairment. Believe that if you want to. Go ahead. Put a little formaldehyde in your soup. However, considering that the FDA has no authority over fragrances and cannot even force them to do safety studies, although many of these chemicals are known carcinogens and neurotoxins, we do encourage you to pay attention and make sensible choices. Of course, in our opinion, the only sensible choice is to avoid toxic environmental chemicals as much as possible.
(10) Barrett says the diet teaches children that their behavior is related to what they eat rather than what they feel (huh?)
------ No, we teach children what to do to feel better. Of course better behavior is related to feeling better and learning responsibility.
(11) Barrett says the diet makes children feel unhealthy and fragile.
------- He made this up, based on no evidence. On the contrary, the children's health often improves, and they are more in control of their lives.
(12) Barrett says the diet makes the children look peculiar to other children.
------ Really? Is something peculiar about a peanut butter and jelly sandwhich or a Boars Head Turkey sandwhich with whole milk and maybe Swiss Miss Pudding for dessert? Of course, if you try hard enough, you can make your child's lunch peculiar, on or off the diet.
(13) Barrett says the children's "fear of chemicals" would make them look peculiar to others.
------ Whether the problem is behavior, migraine or asthma, if a perfume or an additive makes the child sick, he must be protected, period. If the school cooperates, there is no issue.
(14) Barrett thinks the Feingold Program deprives the children of "appropriate professional help."
-----He means they are deprived of receiving stimulant drugs. If they no longer need drugs, diet IS the appropriate treatment. If they still need drugs, they can use them. They are deprived of nothing. Our members who use diet with medication often report being able to use a lower dose of stimulant medication when on the diet. The diet can be used along with any other required treatment.
SOME STUDIES OF INTEREST, SHOWING HOW MANY KIDS RESPOND TO DIETARY MODIFICATION
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Salamy 1982 - Children were given drinks containing food additives or placebos (double-blind, meaning that nobody knew which were the additive drinks and which were the placebos). Measuring EEG (brain waves) and heart rate, Salamy found that
the additives caused physiological changes in all the children, but the hyperactive children showed greater changes.
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Egger 1983 -
93% of 88 children with severe frequent migraine recovered on an oligoantigenic* diet, and a double-blind study confirmed this in 40 of the children. In addition to headache, other symptoms improved: abdominal pain, behavior disorder, seizures, asthma, and eczema.
* An "oligoantigenic" diet is a "few foods" additive-free and allergen-free diet similar to the Feingold Diet but more restricted.
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Egger 1985 -
81.6% of 76 overactive children improved using the oligoantigenic diet. Other symptoms such as headaches, abdominal pain, and fits, also improved.
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Rowe 1988 -
72.7% of 55 children put on a 6-week trial of the Feingold Diet "... demonstrated improved behaviour."
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Egger 1989 -
80% of 45 children with epilepsy and recurrent headaches, abdominal symptoms, or hyperkinetic behavior improved on an oligoantigenic diet. 55% of these children ceased to have seizures and 11 had fewer seizures during diet therapy. Egger reports, "Headaches, abdominal pains, and hyperkinetic behavior ceased in all those whose seizures ceased, and in some of those whose seizures did not cease." 75% of the children with generalized epilepsy, and 85% of the children with partial epilepsy, recovered or improved. 18 other children, who had epilepsy alone, with no other symptoms, were treated with the same diet, but none improved.
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Kaplan 1989 -
More than half the children put on a Feingold-type diet (but not eliminating salicylates) exhibited "reliable improvement in behavior and negligible placebo effects." In addition, several other problems these children suffered from tended to improve, including halitosis, night awakenings, and latency to sleep onset.
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Egger 1992 - Some children with migraine and/or ADHD also have night-time or daytime wetting problems.
76% of 21 such children whose behavior and headaches had improved on a diet similar to the Feingold Diet, also improved or were cured of their urinary problems.
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Carter 1993 -
75.6% or 78 children referred for "hyperactive behavior" improved on an open trial of an elimination diet similar to the Feingold Diet. 19 of them were studied in a placebo-controlled double-blind challenge protocol.
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Rowe 1994 -
75% of 200 children improved on an open trial of the Feingold Diet, and deteriorated upon introduction of foods containing synthetic colorings. This was followed by double-blind challenge tests, in which 82.5% of "reactors" and 10% of the "control" children (those not expected to react to food dye) reacted to a variety of mild single-item challenges of tartrazine (Yellow #5) - at a maximum of only 50 mg per day. The kind of reaction and length of time the children were affected depended on the dose, as well as their age.
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Boris 1994 -
73% of 26 children responded favorably to an elimination diet similar to the Feingold Diet. 16 of them were challenged, double-blind, and ALL of them reacted to the challenge of 100 mg food dye plus some food ingredients chosen by parents. Placebo effect was carefully ruled out.
The author writes, "Dietary factors may play a significant role in the etiology of the majority of children with ADHD."
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Uhlig 1997 - This is the first investigation to show an association between brain electrical activity and eating "provoking foods" in children with food-induced attention deficit hyperactivity disorder.
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Pelsser 2002 -
80.6% of the 31 children who completed a 2-weeks trial of an elimination diet showed an improvement in behavior of at least 50% on two official rating scales. Authors write, "An elimination diet can lead to a statistically significant decrease in symptoms." Note: This study was done in Holland where a Feingold Foodlist is not available. Their diet was very much more limited than the usual Feingold Diet.
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Then, of course, more recently yet, are the
Bateman and McCann studies in
2004 and 2007 which showed that in the general population in England – normal kids – hyperactivity symptoms increased when they were exposed to a modest amount of food coloring and a preservative. Finally, England and Europe are paying attention. They are putting warning labels on food containing additives, and requiring food aimed at children to be dye-free. Big companies like Kraft and Hersey’s and McDonald’s seem to have no problem providing natural versions of their M&M’s and strawberry milkshakes in England and Europe – but they are not doing it in the United States because they assume we Americans just don’t CARE. Yes – that is what they told Michael Jacobson at the Center for Science in the Public Interest.
Now regardless of whether or not you plan to use the Feingold diet for your family, perhaps it is time to CARE what kind of stuff they put into foods they sell to our kids.
I am giving you the link to the Feingold Association website where you can find more information. At least, I think I am doing that - by putting the URL in the trackback field. I will be happy to answer any questions anyone wants to ask.
Added: I can't find the trackback (?) so I'll try it this way -- for more information, see
The Feingold Diet Program for ADHD where you will find as much science as you want to read ... and if you want even more, see
Diet and Health: PDF documents ... if you have other symptoms besides ADHD that you are wondering if diet can help, see the studies divided by symptom at
Diet & Symptoms: Research