Mother of a Deaf 13 Month Old

momtotoes

momtotoes

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Hi, Everyone...

I just found this site and I am so excited!

I am a Hearing Mother of a Deaf 13 month old little girl that we call Toes.

Toes was officially diagnosed at 7 months, although I had accepted her hearing impairment long before the medical world did. ;-)

Toes failed her newborn screening (OAE) at birth, and failed another OAE at 6 weeks.

The ABR we had performed at 2 months showed normal hearing. Over the next several months, we spent a lot of time trying to convince ourselves that she was in fact hearing... but just chose not to show any signs of it. :fingersx:

We were delusional.

After a couple of "inconclusive" behavioral tests starting at 6 months, Toes was subjected to another ABR where she was diagnosed with a severe to profound hearing loss.

She was aided at 10 months.
IMG_2255.jpg


Here we are at 13 months and have decided to go ahead with the CI.

(NO bashing, please....)

We are now in the Big Insurance Delay... hoping to get our surgery date when we see the ENT on the 29th.

I look forward to learning a lot from all of you in the months and years ahead.

:ty:
 
Welcome!!!! As you might see the CI is getting to be a lot more accepted then it used to be! I know that more and more the Deaf world is slowly accepting it. We do have a lot of parents hanging out here.....it's a great fun place here! Is your daughter hooked up with your state's Early Intervention system? What have you decided on for commuication?
Are you hooked up with the American Society for Deaf Children and or Hands and Voices yet?
 
:wave: :welcome: to Alldeaf momtotoes! Toes is such a beautiful, happy baby! Helping your precious child along to make sure her future will be a good one, is one of the signs of a loving parent. You will find that our members are very supportive and encouraging to each other. I know you will find that here too. So, have fun posting, and welcome aboard!
 
Hello and welcome to Alldeaf! The photo of your daughter is very cute and adorable. Wishes you, daughter, family all the very best! Also, enjoy your stay here in AD as well!


Have a great day! :wave:






~RR
 
MomToToes,

Welcome to AD! :wave: I agree with the others on the photo of Toes!

From what I've already seen as a newb myself, great bunch of caring folks here that have a wealth of information.

My best to you all!

Dave
 
Welcome to AD. I hope you will enjoy the stay with us and happy posting away.. the pic of your adorable lil one is so CUTE! :) I am a candidate for CI and I am so happy! I am 33. I am going to get one but not know for sure as I am going thru process right now. So I already have been evaluated then had ct-scan.. Now I will go back this thursday to see the ENT again. I will pray for everything to go smooth. Good luck!
 
:welcome: To All Deaf momtotoes!! My wife just recently had CI surgery & she can't wait till they turn it on later next month. She's waited 23 years for this. I wish your daughter the best of luck on it. She is so cute & adorable:)
 
Hello Momtotoes :welcome: to AD!

Your child is SO adorable, and she has beautiful eyes!

I hope you and Toes has a lot of good luck with the CIs...and that the surgery date comes soon!

I am starting the process to see if I can get CIs myself, my first appointment is on Sept 5th. :)
 
to mom of toes

welcome!!! my son also failed newborn tests... had mild-moderate hearing loss. aided at 6 weeks.found he has a progressive hearing loss due to a sydrome called EVA. at 14 months he went to a severe-profound loss. had his first cochlear implant at 16 months. Our insurance went pretty fast. What a miracle it is... My son is hearing at 20-25 dbd. right now and is talking up a storm. He reveived the nuchleas freedom. Good luck with your daughter. You will be amazed at what the ci can bring her.he is now 22 months old!! our shining star!! congrats on ci decision.. try to get early intervention it really is useful,also city is required to put deaf child sign in area sighn in your neigborhood, no extra charge.there is so much info!!! but take it all in slowly!! You are in my prayers that everything goes well!!!:hug:
 
You will be amazed at what the ci can bring her. congrats on ci decision..
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Samantha, it really does depend on a lot of things. The CI is really good for some kids, but for others it's essentially like hearing aids were for the last generation of deaf kids. Like some deaf kids were hoh with aids, but others just got enviomental sounds/ awarness of speech etc. That's the same as with the CI. Some deaf kids are functionally hoh, but others get quite different hearing
try to get early intervention it really is useful,
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Oh agreed! I actually think that EI is a gotta-must have. Make sure it's EI that's specificly for dhh kids. General EI (like where the speech therapist only knows a handful of signs) usually won't work for most dhh kids. We need dhh specific early intervention.
 
:welcome: Hi and welcome. YOur daughter is beautiful!! I am also hearing with a deaf child with a CI. She's 5 years old now and she received her CI at 2. I know sometimes ins companies like to drag but good luck with everything. If you have any questions, feel free to pm me.
 
Oh and here are some good links for you : American Society for Deaf Children, and
Hands & Voices These are two very good, very neutral on methodology organizations.
What state are you in? Contact your state's Deaf school for help. Have you decided on what Toe's first language is going to be? Are you shooting for spoken English or TC or what?
 
Welcome to Alldeaf! I am also the mother of a deaf child. Please check out the links deafdyke has provided for you. The more information you have, the better decisions you will be able to make for your child. There is so much more to consider than simply trying to correct a hearing loss. Hope you will find many friends here.
 
There is so much more to consider than simply trying to correct a hearing loss.
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Yes, indeedy! Most of us here, have been there and done that. We can give you advice, such as even if you choose oral education, Toes can still learn sign, and self esteem issues and all those issues that the experts don't really tell you about.
 
WElcome to Alldeaf. Your baby is so cute. good luck with the CI. I don't know anything about CI's. I was born deaf and wear hearing aids. Never crossed my mind to have a CI but hope all goes well with your baby. Maybe I'm just an old-fashion... :dunno:

but enjoy your stay!!!! and let us know how it goes with the CI.
 
Welcome to All Deaf, Momoftoes! The photo of your daughter is so cute!! Do at least try make yourself home at here where you can gather some enriching informations. ;)
 
Welcome to AD!! Toes is soooo sweet and adorable!

You're welcome to come and join us at the cochlear implant sub-forum here on this site. There is a growing number of parents there and it's great to have this going on a website for deaf adults so that people can exchange viewpoints and information so as to understand the range of feelings that your child may experience as she grows up.

I got my CI activated 9 weeks ago (I was born deaf and wore hearing aids until adulthood) and have been very happy with my progress for this short time. Of course, as others have mentioned there are no guarantees with CIs but for those of us with big hearing losses they work a fair bit better than hearing aids.
 
hello

Hello..what a cute baby!!! U are blessed! Welcome to the AD. The nearby deaf school just implemented a CI program since more and more children are being implanted. I am not against it or anything but just one thing that concerns me is pychosocial issues as far as having the deaf identity. I was born profoundly deaf and wore hearing aids growing up. I was placed in an oral school as the only deaf child in my class. My earlier years were fine but it was when I entered middle school when things became very difficult. Most of my classmates treated me as I was an alien and didnt want to give me the time of the day. I did speak well and read lips well but it was hard for me to be in a large or small group of people chatting away. I was lost and couldnt catch everything that was being said so I just would sit there quietly and pretended to know what everyone was saying. I felt very left out and slowly my self-esteem was being damaged. High school was a little better but the same issues of being lost or confused still continued to my adulthood. Then I went to the state college and started taking ASL classes. I learned about the deaf community and Gallaudet. I was shocked that there was a community out there so I went to Gallaudet for my master's. It was like a dream come true to be in a signing enviornoment and be able to participate 100% without having to work so hard. Since then, my self-esteem has shot up and now I am a happy 30 year old woman as opposed to the miserable woman in her 20s before learning sign language.

Just a thought and something to consider for your daughter...I am not against learning how to speak and read lips but just wanted to give you a heads up about self-esteem issues and being able to fit in with her peers later on. :):ty:
 
deafdyke said:
Welcome!!!! As you might see the CI is getting to be a lot more accepted then it used to be! I know that more and more the Deaf world is slowly accepting it. We do have a lot of parents hanging out here.....it's a great fun place here! Is your daughter hooked up with your state's Early Intervention system? What have you decided on for commuication?
Are you hooked up with the American Society for Deaf Children and or Hands and Voices yet?
Click to expand...

I would NEVER accept this medical society. I do respect for the adult who make their own decision but not the babies or toddlers.
 
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