HOH33stars
New Member
- Joined
- Jul 26, 2008
- Messages
- 134
- Reaction score
- 0
Hey all!
So...last week I went to an ENT...who didn't even see me because he reviewed my audiograms and said he wasn't specialized enough to help me. SO I had an emergency appointment set up with an Otologist who I just saw today (4 hours from my college...gotta love insurance politics anyway...)
Went in and I was there from 8:45-12! Went through a crap load of testing had a TON of blood drawn (over 10 vials...i was shocked I had any left to give!)...and walked out finding out that I have to return again in two weeks.
It was a confirmed sensorineural bilateral loss (which we already kinda knew...we thought that it was mixed though before...anyway)...and it's quite concerning though that I've lost another 20db within a few months. I'm now in the moderate-severe range whereas before I was mild-moderate...then to moderate. SO ANYWAY...
They're thinking that this is an autoimmune disorder? Has anyone experienced this or have any insight to shed some light...I'm rather scared to be honest. They're talking about putting me on steroids...heck i'm a 22 young healthy female in college...this freaks me out. I guess we'll find out the results of the tests soon...
He did say that i should give my hearing aids back since they're still on trial and go with a set of loaners from my audi until we get this figured out. Basically my audi said that the ones i have now were good for my previous loss, but if it goes down any further she can't max them out anymore (which pisses me off because i had specifically asked that if these ones would be able to be adjusted for future loss)...
He said i HAVE to wear my hearing aids all the time so i'll definitely be able to tell if my hearing has changed any...there's a big concern that i'll lose quite a bit to where i'm deaf by december...
i seriously just want all of this to calm down so i can deal with it!
So...last week I went to an ENT...who didn't even see me because he reviewed my audiograms and said he wasn't specialized enough to help me. SO I had an emergency appointment set up with an Otologist who I just saw today (4 hours from my college...gotta love insurance politics anyway...)
Went in and I was there from 8:45-12! Went through a crap load of testing had a TON of blood drawn (over 10 vials...i was shocked I had any left to give!)...and walked out finding out that I have to return again in two weeks.
It was a confirmed sensorineural bilateral loss (which we already kinda knew...we thought that it was mixed though before...anyway)...and it's quite concerning though that I've lost another 20db within a few months. I'm now in the moderate-severe range whereas before I was mild-moderate...then to moderate. SO ANYWAY...
They're thinking that this is an autoimmune disorder? Has anyone experienced this or have any insight to shed some light...I'm rather scared to be honest. They're talking about putting me on steroids...heck i'm a 22 young healthy female in college...this freaks me out. I guess we'll find out the results of the tests soon...
He did say that i should give my hearing aids back since they're still on trial and go with a set of loaners from my audi until we get this figured out. Basically my audi said that the ones i have now were good for my previous loss, but if it goes down any further she can't max them out anymore (which pisses me off because i had specifically asked that if these ones would be able to be adjusted for future loss)...
He said i HAVE to wear my hearing aids all the time so i'll definitely be able to tell if my hearing has changed any...there's a big concern that i'll lose quite a bit to where i'm deaf by december...
i seriously just want all of this to calm down so i can deal with it!