Desperate to avoid being Deaf

Miss-Delectable

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Tumour victim: `I'll drill into my own head' Local Gold Coast News | goldcoast.com.au | Gold Coast, Queensland, Australia

A GOLD Coast man says he will take a drill to his head in a desperate attempt to get brain surgery through the public health system.

Mark Black, of Merrimac, has two acoustic neuroma tumours situated on either side of his head.

He was diagnosed six months ago.

But the 52-year-old had waited two years to get the MRI scan that finally confirmed what was wrong with him.

Mr Black is now slowly losing his hearing and developing facial paralysis because the tumours are touching his nerves.

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Still with no answer on a surgery date and the grim possibility he might go deaf waiting, Mr Black plans to stand outside the Gold Coast Hospital on December 7 and drill into his head to receive emergency care if he does not get the response he is after the day before.

Mr Black has a follow-up appointment with an ear, nose and throat surgeon on December 6 but believes he is being shifted through a system that will put him back to where he started.

The father of three and grandfather of one said he had been back and forth to ENTs over the years but without any answers.

''I'm not blaming the doctors in this, I'm blaming the bureaucrats who don't fund the hospital enough to do the surgery that's needed,'' he said.

''My main concern now is to have this first lot of surgery because the end result is I'll end up totally deaf and have facial paralysis. The longer I let it go the worse the outcome.''

Mr Black said he woke every day feeling off balance, had ringing in the ears, facial spasms and dizziness.

The former inventor and coffee shop owner said he could not work any more because of his condition.

''There's no light at the end of the tunnel,'' he said. ''They're (the hospital) using delaying tactics so they don't have to do it and in the meantime I'm sitting here suffering.

''I don't want to push in front of someone else. I just want to be put on the list and dealt with fairly.''

Gold Coast Health Service District acting chief executive Michael Allsopp said Mr Black was receiving the most appropriate treatment for his condition.

''Mr Black has a small tumour, known as an intracanalicular acoustic neuroma,'' he said.

''It is not growing and standard clinical treatment for this condition is observation, not surgical intervention.

''Clinicians from both specialties, ENT and neurosurgery, have discussed this case and agreed that surgery is not required at this time.''
 
Stupid anyway. THe surgery would almost certainly deafen him if that is what he is afraid of.
My husband's cousin, also has this and elected to shrink the acoustic neuromas through radiation because he wanted to retain hearing.
 
Mr Black said he woke every day feeling off balance, had ringing in the ears, facial spasms and dizziness.

I am not sure that deafness is the issue here. I think these symptoms are making him desperate and I cant blame him.
 
At the age of 52 years old being late deafend, it is not the bureaucrats and because of his condition he need to listen to the doctors of his diagnose. He can not cure his hearing at all. He need to live with it. Also it is silly and dangerous for him to say that he is going to "drill" his head to get the service he wants from the hospital.

I remembered there was a oral deaf student (not interest in ASL) who desperately wanted to regained his hearing again, but after surgery he did not take care of his ear (I think) as it became infected and lost his hearing. He was very upset and probably sued the doctor or doctors. I had not heard from him after he got upset with losing his hearing became deaf instead of hard of hearing. Shame that it happened like that. That was back in late 1970 (74 or 75). Yep, surgery can damage the hearing all right. :(
 
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