Deaf children not being diagnosed 'until it's too late'

Miss-Delectable

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Deaf children not being diagnosed 'until it's too late' - National News, Frontpage - Independent.ie

Up to 10,000 adults and children are on waiting lists for a hearing test

MANY profoundly deaf children are not being diagnosed as suffering from the condition until they are two years old -- leaving them with life-long problems, a major report has revealed.

The lack of a screening programme for newborns means many children are losing out compared to their counterparts in the UK, who are diagnosed at three months old.

And children in Ireland with moderate hearing loss can wait up to 60 months before they get a vital assessment, the review found.

The Health Service Executive-commissioned report, which was chaired by Prof John Bamford, an expert in audiology at the University of Manchester, said up to 10,000 adults and children were on waiting lists for a hearing test -- some of them for seven years.

It warned that the delays were "unacceptably long".

The report was published as the HSE announced that it was to begin the phased rollout of a newborn screening programme, beginning with the babies born annually at Cork University Hospital, which number around 8,000.

However, it will be another two years before all children are offered the screening.

There are 104 children born with a permanent, moderate or profound hearing impairment annually. Around 19 have profound hearing loss, 19 severe loss and 36 a moderate degree of hearing loss.

One of the reasons behind the delay in diagnosing is the failure to attract audiologists to Ireland. Prof Bamford said it was necessary to set up specialist training here to ensure a proper supply of experts.

The report called for the doubling of audiology staff, who currently number less than 70.

The professor said that if deafness was diagnosed too late, it was not possible for a child to "catch up" and they risked having problems into adulthood, including social, educational and employment difficulties.

Children needing cochlear implants are also having to wait longer than they should for surgery, and earmould services are "often slow, inadequate and non-existent in some areas," the report found.

In addition, access to good authoritative audiological assessment and intervention is "patchy at best and non-existent in some areas", it stated.

Meanwhile, an additional €3.7m has been allocated to the HSE this year to implement some of the report's recommendations.

This includes the hiring of a national clinical lead, a specialist who would oversee the service, and four regional clinical leads.
 
It's sad that it's still happening even in developed countries such as the UK. I wasn't diagnosed until I was 4, almost 5. I was labeled up until that point as 'special needs'. When it was revealed I was d/hh, by then I had several delays in development but I later 'caught up' on things. I still have difficulty with my speech sometimes but other than that I think I'm fine. I did struggle academically due to a lack of access to the information being presented, I wish I had some sort of long term support services during my school years. An FM system helped and sadly it was taken away in grade 3 because the other students were jealous that I got all this attention and they didn't. Because of this I very nearly failed grade 3. My parents did nothing to even go to the school and demand support services. I wish I would have had access to ASL at a young age - that might have benefitted me but my parents don't even want to learn ASL or to meet me halfway yet I must bend over for them.
 
MANY profoundly deaf children are not being diagnosed as suffering from the condition until they are two years old -- leaving them with life-long problems, a major report has revealed.
.....
It warned that the delays were "unacceptably long".
.....
The professor said that if deafness was diagnosed too late, it was not possible for a child to "catch up" and they risked having problems into adulthood, including social, educational and employment difficulties.

I agree that the delays are unacceptable. I know that they are thinking about cochlear implants but I am thinking about sign language. Sigh! All the hearing people need to change their viewpoints on deafness.
 
I agree that the delays are unacceptable. I know that they are thinking about cochlear implants but I am thinking about sign language. Sigh! All the hearing people need to change their viewpoints on deafness.

I completely agree about such delays being unacceptable, regardless of whether or not CIs are then considered. That window for language acquisition applies to both modalities, and it's horrible to consider a child going for up to 7 years without appropriate intervention, without access to language, whether it be BSL or English!

(Not sure why you then say that hearing people in particular need to change their views on deafness, though. Seems that -- based on the dearth of audiologists cited in the article, Ireland needs to train more local audis, and compensate audis more competitively to attract them from elsewhere. Do you think it's true that it's specifically hearies that don't value and won't teach audiologists?)
 
I completely agree about such delays being unacceptable, regardless of whether or not CIs are then considered. That window for language acquisition applies to both modalities, and it's horrible to consider a child going for up to 7 years without appropriate intervention, without access to language, whether it be BSL or English!

(Not sure why you then say that hearing people in particular need to change their views on deafness, though. Seems that -- based on the dearth of audiologists cited in the article, Ireland needs to train more local audis, and compensate audis more competitively to attract them from elsewhere. Do you think it's true that it's specifically hearies that don't value and won't teach audiologists?)

It is just that parents, audiologists and doctors think there is only one solution - CI. I am tired of seeing hearing people making their living off the deaf kids via CI, speech therapy, hearing aids, etc. I won't be surprised to hear that the health insurance premiums increased due to CI, reimplants and other stuff. The innocent deaf kids might get blamed for that. (I know that people can be irrational.)

If we go back in time and change the people's view of deafness as in pro-ASL instead of pro-oral. More deaf people today would have better education and jobs. More jobs equal more revenue for the states and Medicare/Medicaid (as less deaf people on them).

It is like if I refused to use my voice and force you guys to lipread. Then we came up with lipreading implant to help you with lipreading. Expensive and not the best and cheapest solution. That is why I see AGB and his kind went off in the wrong direction and still is making big negative impact on the Deaf community nowadays.
 
I agree that the delays are unacceptable. I know that they are thinking about cochlear implants but I am thinking about sign language. Sigh! All the hearing people need to change their viewpoints on deafness.

Agreed. When I think of late diagnosis, I think of the loss of opportunity to provide a language rich environment for that child through ASL. After all, it is not the lack of hearing that creates the problems referred to...it is the lack of language.
 
I was 4 years old before they found out about my deafness. The Doctor originally dianosed me as Autistic.
 
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