Adjustment to late onset deafness

I can relate too. My cousin's two boys were visiting me the last few days and they kept playing with my hearing aids - they were are three and four. I had to take them out so the youngest one would quit trying to grab at them and see what was so interesting with them.

At one point they kept talking and I was so confused trying to understand them. I felt so bad because they just were playing and telling me stories (wild toddler stories) but I just had to keep nodding my head and pretend I knew what they were saying.

Fortunately, I was able to distract them with a walk to the park and it turned out to be a decent stay mostly.

Kids do stuff like that. Anything that is new or shiny or whatever is very interesting to them and they don't have the self-control adults have to not reach out and play with and discover the new thing. (Or tactful ways to ask questions, for that matter!) I do love wild toddler stories though. One of my favorite little kid things! :giggle:
 
Tory and Christine, I understand the isolation you feel, all of us here experience this. My loss began in grade school and I did not meet another my age with HA until i was 26. And yes, my classmates wanted nothing to do with me. ASL is very much worth learning, and as you use it in the Hearing wold you will find that there are Hearing who at least can finger spell, and a few can Sign. You'll never find them if you do not sign yourself, so learn ASL and get in the habit of doing sim, even if there is no one around who signs back. I also find that sim underscores the fact that I am different. If all I do is lipread, there is nothing to suggest that I am HI, much less Deaf. (and being late deafened I have a 'radio voice' with perfect diction - which works against me in terms of what I am telling people about my deafness)

Do what you have to to bring to other's attention that you do not hear as they do.

Like Glickchick I go voice off when hearies wear out my patience. When they ask what the deal is, I tell them that I was speaking for their benefit, I don't need to speak. Sign can be a very blunt weapon.
 
BrittBritt--If you don't mind my saying this, your doctor is an ass. QUOTE]


Don't be sorry. He is an ass. I let him know so. He also got a call from my audiologist telling him that he obviously isn't qualified to deal with patients who have hearing issues, and to always refer them over to her instead of to a mental health department when a patient complains of hearing issues. She wondered how many other hard of hearing people he had sent over there, and who may have been put on Ritalin or some other awful drugs for ADD when they were actually HoH. I don't even want to think about it. He was very arrogant too about it. I had to get angry to get him to change my referral from mental health specialist, to audiological specialist. Not to mention that the man gave me a "hearing test" with an iPhone app in his office. And when I couldn't hear some of the tones, he told me that it didn't matter because he could hardly hear those ones anyways. And he only gave me like 5 "iPhone" tones to listen to for the entire "hearing test." The whole experience was absolutely preposterous! I spoke with a manager at Kaiser and changed PCPs immediately.


sound look likes serious ADHD not health risk I let know you. He is mental is ADHAD medicaion doesn't work cause control behavior cause reason screw up on, I notice one medicatio. that is why conflict

if suppose before mess on terribles not good health wow!
I know ADHD is exactly pretty very serious risk dangerous.

they strictly on handle on him!
 
Hi, I'm Tori. I'm new to AD and this board was recommended to me by another member. I'm 17 years old and was recently diagnosed with progressive hearing loss with an unknown cause.

My diagnosis really scares me. I'd always planned on minoring in music when I went to college, but now I'm scared that is no longer an option for me. Music has always been a very big part of my life (I play piano, guitar, flute, piccolo, I'm in chorus, ect...) and I hate the feeling that I am losing a major part of who I am.

I know I need to learn ASL, but there are no classes or teachers around me and there (to my knowledge) is not really a deaf community in my area. I've tried learning online, but I really don't understand the grammar of ASL just by trying to learn on my own.

I'm so emotionally drained and scared. I feel lost and I'm not really sure what to do at this point. While I can still hear well enough to interact in most day to day activities, I don't know how much longer that will be true.

Little, I'm in the same boat as you, except I grew up with it. I have a unknown progressive hearing loss too. Little, I think you can still play piano and guitar. Maybe not flute&piccolo. You may want to try percussion and be a dummer like me... :) I'm also muddling through ASL by myself. Set up a support group around you, and enjoy what you have now. Stay on here, and get comfort from us. We're here, always. What you need to do now is to get a support group like your family and friends, enjoy what you have. Are you going to get hearing aids? What kind of loss do you have now? (Mild, moderate, severe, etc.)
We're always here. Private message me if you just want to talk.
 
Anyone else experience self-doubt with mild loss?

I'm definitely feeling it. My ASL teacher (also a speech pathologist/ex-terp) says that's really common and that she's heard this from a lot of other people too. I can hear the neighbor practicing his trumpet drills but when my grandmother was talking to me the other day I saw her lips moving, but heard absolutely no sound coming from her. I can hear the clock ticking in quiet rooms but I mistake "poor Kristin" for "f*** my skin" in the car. Sometimes my ears just drop out for 30-45 seconds and I don't hear anything. I'm starting to think I'm just losing my mind instead! *sigh* Next audi appointment on June 24th...

On the positive side of things, she's setting me up with a very knowledgeable woman (who is also hoh and will understand my frustrations, according to my teacher) to tutor me in ASL and push me along a little faster than my class is going. She said it'd be better for me in the long run to get as much as I can as fast as I can instead of working with one of her interns who might not be able to answer the questions I have. I didn't ask for this, she just went ahead and asked for me. Teachers who go the extra mile are such a blessing. :)

If it weren't for her, I probably would have just assumed that I'm going crazy.
 
Anyone else experience self-doubt with mild loss?

I'm definitely feeling it. My ASL teacher (also a speech pathologist/ex-terp) says that's really common and that she's heard this from a lot of other people too. I can hear the neighbor practicing his trumpet drills but when my grandmother was talking to me the other day I saw her lips moving, but heard absolutely no sound coming from her. I can hear the clock ticking in quiet rooms but I mistake "poor Kristin" for "f*** my skin" in the car. Sometimes my ears just drop out for 30-45 seconds and I don't hear anything. I'm starting to think I'm just losing my mind instead! *sigh* Next audi appointment on June 24th...

On the positive side of things, she's setting me up with a very knowledgeable woman (who is also hoh and will understand my frustrations, according to my teacher) to tutor me in ASL and push me along a little faster than my class is going. She said it'd be better for me in the long run to get as much as I can as fast as I can instead of working with one of her interns who might not be able to answer the questions I have. I didn't ask for this, she just went ahead and asked for me. Teachers who go the extra mile are such a blessing. :)

If it weren't for her, I probably would have just assumed that I'm going crazy.

It is a bit strange sometimes. Today I didn't hear an ambulance coming at me till it was 3 car lengths away. It just popped up over the hill. Also noticed I don't hear the dog barking from as far away anymore. His body jerks violently and I hear this muffled sneeze. I'm looking for a school to take ASL classes. Been difficult getting together with the tutor and want to push myself a bit more. Hard to find something in evenings. Planning to see a different audi in August/September.
 
It is a bit strange sometimes. Today I didn't hear an ambulance coming at me till it was 3 car lengths away. It just popped up over the hill. Also noticed I don't hear the dog barking from as far away anymore. His body jerks violently and I hear this muffled sneeze. I'm looking for a school to take ASL classes. Been difficult getting together with the tutor and want to push myself a bit more. Hard to find something in evenings. Planning to see a different audi in August/September.

Have you checked out the colleges in your area? Are you near a city? They usually have more classes than rural areas. I'm studying at my community college. If not, I'd go into NYC which is really close by.
 
Have you checked out the colleges in your area? Are you near a city? They usually have more classes than rural areas. I'm studying at my community college. If not, I'd go into NYC which is really close by.

Yeah, the colleges here don't have late ASL classes, most stuff is day or during rush hour. Looks like there's an option at a community college closer to home so just waiting for them to update their calendar.
 
:wave:needsleep and soulchill-

I'm 41 and hoh and have technically mild hearing loss and likely peripheral audio processing issues. Used to be things were most often much too loud. Born very premature with what doctors said was missing inner ear bones, according to my mother. I've experienced the self-doubt you're discussing. Yesterday after my shower, didn't hear the dripping water from shower nozzle in the bathroom til some time later when I happened to return to the bathroom. There was a time when I could have heard it from the bedroom <bathroom is part of master bedroom area>. Sometimes and some situations I hear better than others.
Then of course, I may hear something but not actually process it at all.
Hubby, who is oral deaf/mainstreamed only and speechreads w/ BTE HA's, says my consonants - which were always different because I have speech difficulties - have gotten much softer, which then does make it even harder for him to hear me.It's more difficult to talk when I'm tired. I'd rather sign; hubby doesn't want to learn. I don't ID as Hearing anymore.
 
Yeah, the colleges here don't have late ASL classes, most stuff is day or during rush hour. Looks like there's an option at a community college closer to home so just waiting for them to update their calendar.

I hope it works out then! Maybe you can find a Skype buddy in the students section on here. You can learn and they can review early signs. Very helpful for everyone involved! The signs you learn might be different from the signs for the same concept in your area though, so be open to adjusting :)

:wave:needsleep and soulchill-

I'm 41 and hoh and have technically mild hearing loss and likely peripheral audio processing issues. Used to be things were most often much too loud. Born very premature with what doctors said was missing inner ear bones, according to my mother. I've experienced the self-doubt you're discussing. Yesterday after my shower, didn't hear the dripping water from shower nozzle in the bathroom til some time later when I happened to return to the bathroom. There was a time when I could have heard it from the bedroom <bathroom is part of master bedroom area>. Sometimes and some situations I hear better than others.
Then of course, I may hear something but not actually process it at all.
Hubby, who is oral deaf/mainstreamed only and speechreads w/ BTE HA's, says my consonants - which were always different because I have speech difficulties - have gotten much softer, which then does make it even harder for him to hear me.It's more difficult to talk when I'm tired. I'd rather sign; hubby doesn't want to learn. I don't ID as Hearing anymore.

I try not to label myself but I am starting to not ID that way anymore either. Not when I'm relying on captions and the patience of my friends and family while I ask them to repeat themselves a million times. I'm fine with that though. If that's who I am then so be it. :)
 
No one seems to believe me. I'm so frustrated. What do you do when no one believes you because you can still function day-to-day? Maybe I really have lost my mind.

:tears:
 
:aw: I'm sorry you're having a hard time. And thanks for your reply in response to my post before.
Guess I'm used to the "disbelief" thing since I have a learning disability - which takes much more time to explain if I even choose to mess with that and people are much more confused with it. In terms of daily communication and understanding - or misunderstanding as the case may be - it's always been a variable with me. I just continue to go about doing things as I always have because that's just always been, well - me. I just thought that's how everyone did it.
Since learning more about Deaf culture and community I feel I've gained something of significance, more than the hearing that has changed.
 
How about if we start off by having participants offer a brief introduction of themselves. . .

I am Chris and I am HoH. A year after high school is when I first noticed hearing loss and over the last 25+ years I am losing what's left of it. The tests done over the years show a progressive loss and the doctors have no explanation for it. I do know some ASL, I have been learning off and on since Jr. high. . . . Someone is saying that doesn't make sense, you learn sign then have loss of hearing. lol . . . When I lived north side Chicago extracurricular activities were required. So when I wasn't doing football and wrestling, I was doing sign. What little did I know that I would be needing it.


. . . and the issue they are currently struggling with?

Only one?


I'm going to try to gear this as much toward the emotional and psychological adjustment as the adjustment to using acccommodations.

psychological adjustment – I am in need of an attitude adjustment, learning acceptance, something.

Egocentric superiority and ignorance of others I'm learning to ignore.

I don't want to be bitter, that is not who I am. I am though having difficulty accepting the lose of my hearing. At first it was just an annoyance but now its an issue. I am finding myself in different situations becoming angry/resentful and I don't like it, but I don't know what to do. I know I have no choice or say in it, its going to happen anyway. Its just frustrating. Any suggestions are welcome.


It's tiring for me trying to read lips all the time. . . .

I’m getting to know that feeling and I'm lucky to make out half of what they are saying. The one person that use to piss me off the most would tell me to read lips but then she would turn her back to me when she talked.
 
I am loosing my hearing and am struggling to get my family to understand. they just keep making fun of me for saying "what?" all the time, and turning the tv up, or not wanting to go places and do things I used to do. I need to find new friends that will actually understand that I cannot hear them completely.
I just got my first pair of hearing aids this past year and although in the audiology booth with zero background noise my auditory understanding is 80%, if you add in background noise(like in any public place) I can barely understand anything. If someone is looking at me I am pretty accurate at speech reading, but people either don't care or don't think to look at me when they talk. It is very frustrating.
My two kids are the only ones who accommodate my hearing loss and they are 4 and 7 years old. We have even been learning sign by watching the signing time DVDs. My 4 year old daughter loves it and signs everything she can, and my 7 year old has figured out that if he asks me something and I say "what", he then signs it. Kids can be so accommodating.
I hope I can meet people that understand what I am going through.
Laura
 
If someone is looking at me I am pretty accurate at speech reading, but people either don't care or don't think to look at me when they talk. It is very frustrating.

There are some that just don't care. The ones that "don't think" I feel it is lack of knowledge, they don't know any better. I truly agree with you, it is frustrating. I have a couple of people around me that know to look at me when speaking, I appreciate the ones that do.
 
I introduced myself in the intro room, but thought I would here, too. I had no hearing loss until I was nearly 29. I woke up one morning with my left ear sounding like it was under water or needed to pop. I didn't think much of it, it was February and my sinuses were stuffy with a winter cold. When a few months went by without any improvement I went to my dr who referred me to an ent. I had an mri to rule out acoustic neuroma and a hearing test. The mri was normal (but hey, I can always say I've had my head examined!) and the hearing test showed some loss but almost no word discrimination. The ent basically said there wasn't anything else to be done and come back if it got any worse. Things stayed the same for some time and I learned to manage. I could hear if someone was on my left side, just not really understand them. Being able to hear them let me know to turn and give them my attention so I could hear them with my good ear. Then in April of this year I woke up unable to hear anything. I went to my dr immediately, and was sent to a new ent the following day. The day after seeing him I had my first steroid injection and began a mega dose of oral steroids. Those have done nothing. I have had a balance test, which was normal. On my last visit to the ent earlier this week he said there wasn't anything else he could do. When I asked about a hearing aid he said I would probably just find it annoying since I can hear out of my right ear just fine. Deciding I would like the opportunity to try for myself if I would find it annoying or helpful I found an audiologist and I have my first appointment Wednesday. I do my best to look at the positive side and find humor wherever possible, but sometimes I struggle. I can hear just fine with the right ear, but in noisy situations or when someone is on my left side I cannot pick up anything. I have 0 word discrimination in my left ear and no hearing under 90 decibels. I feel like my left half belongs in the deaf world and my right half in the hearing world. I am really hoping that the audiologist has some sort of a solution that provides, if not speech, at least sound on the left side. I had learned to deal with just that and would gladly go back to it!
 
I'm a recently new deaf person, who also went through the process or rigors of trying to find out why. While everyone around who I work with have from go, said get implant and have lost patience or just say I don't know to my questions so they don't have to communicate. It feels like I am whipping boy at work everything is my fault now. But, low man or I am the weakest link in their eyes. The hurtful thing is that I gave yrs and yrs of loyalty through the owners personal problems to growing the business on my own time and expense. I was the go to person now I'm the ignored person or better yet blamed for everything person.. One of the people I work with said I'm lucky not to her it. I said I would rather hear it than see body language or frustration in their movements. Now they urn away to talk so I won't read their lips.
There is always down time and so they conversate I used to read. But, in heir eyes if I'm reading I'm not working, so I get all the looks and tap tap tap on the shoulder or counter or pulling of shirt to get attention to do what they want, while they continue to conversation and do nothing. I don't mind it's the way they tell me to do it. Not once have they asked if their was a way to easily communicate instead they start writing then just say " forget it" or this one wave me off like a kid.....it seems my IQ dropped with hearing. I know I've ever treated any of them with that level of disrespect.
The worst part is nt knowing how I lost hearing. They cannot say even tried to say from smoking..... I don't or haven't had a cigarette since I or sick on one in high school. Here is a funny thing.... The dr's I went to were all past friends who I've known and worked with. All said same thing to just an ear infection. And yes, the path was littered with everyone saying oh sorry, get implant, it is black or white with them. They didn't believe me when I said there was still sound at one pt. I would get mad when they would try to push me into getting CI but don't want anything sewed into my head that is not removable. Even the House clinic told me that I should not have sounds the way I did and must be phantom sounds.
During all of this I would get dizzy spells from certain sounds that would get me dizzy, nauseated . I am more patient now than before but it was long road:roll:
 
Then and now didn't want sorry's just plain old fashioned human to human courtesy.... Not a wahhh wahhh person like I've said "there is always a cool side of the pillow" I've been lucky enough to experience sounds for many years hear the voice of my kids and music and oceans and forests etc etc ... On side note my daughter gave me a cat recently and she thought it was a great cat never cried... Well it turns out one day I was washing dishes and stepped on his tail I didn't know he was crying but no sound my daughter said he is mute what a pair we are.
 
I'm a recently new deaf person, who also went through the process or rigors of trying to find out why. While everyone around who I work with have from go, said get implant and have lost patience or just say I don't know to my questions so they don't have to communicate. It feels like I am whipping boy at work everything is my fault now. But, low man or I am the weakest link in their eyes. The hurtful thing is that I gave yrs and yrs of loyalty through the owners personal problems to growing the business on my own time and expense. I was the go to person now I'm the ignored person or better yet blamed for everything person.. One of the people I work with said I'm lucky not to her it. I said I would rather hear it than see body language or frustration in their movements. Now they urn away to talk so I won't read their lips.
There is always down time and so they conversate I used to read. But, in heir eyes if I'm reading I'm not working, so I get all the looks and tap tap tap on the shoulder or counter or pulling of shirt to get attention to do what they want, while they continue to conversation and do nothing. I don't mind it's the way they tell me to do it. Not once have they asked if their was a way to easily communicate instead they start writing then just say " forget it" or this one wave me off like a kid.....it seems my IQ dropped with hearing. I know I've ever treated any of them with that level of disrespect.
The worst part is nt knowing how I lost hearing. They cannot say even tried to say from smoking..... I don't or haven't had a cigarette since I or sick on one in high school. Here is a funny thing.... The dr's I went to were all past friends who I've known and worked with. All said same thing to just an ear infection. And yes, the path was littered with everyone saying oh sorry, get implant, it is black or white with them. They didn't believe me when I said there was still sound at one pt. I would get mad when they would try to push me into getting CI but don't want anything sewed into my head that is not removable. Even the House clinic told me that I should not have sounds the way I did and must be phantom sounds.
During all of this I would get dizzy spells from certain sounds that would get me dizzy, nauseated . I am more patient now than before but it was long road:roll:

I have same problem, except you still have a job. I was self employed since 2005 then lost 100% hearing in November 2011 to ear infection, and work coming in has slid down to zilch, and moving to Fox, Alaska is my only option at this point.

As for "phantom sounds" yes, I would hear hammers, gunshots, voices that weren't there, and other strange sounds. It's like a phantom limb or as if you had accidentally cut off your finger, you would swear that you were able to feel the finger at times. The brain is hard wired to have all these connections and now one of them is gone, and so the brain is trying to figure out what to do with it and keeps trying to connect. In dreams, I have full stereo sound, voices, conversations, keyboard clicking, road noises, engines, dinner sizzling on the stove, everything. Only to awake to silence and tinnitus sound. It was hard at first, but as time went on the going from hearing clearly in my dreams to silence in the day time has gotten somewhat easier, but no lie- it's not easy.

For the people around you treating you like you know nothing, or are suddenly brain-dead, they are uncomfortable. You look around, and you will find someone who is genuine and isn't scared. That person (sorry to stereotype) will likely be the quiet computer person or the outgoing bubbly person who is unfortunately very lonely in life, and they have no fear of you simply because your hearing don't work. That person is someone who you will discover to be a secretly hidden charismatic, funny, and possibly a future best friend.

Don't do what I did during the hard transition to deafness, I got so fed up with the hearies idiotic things that I grouped them all into one box and pissed on them out of frustration. Yes. It's a two way street. It's NOT easy being treated like trash, and it's very easy and understanding to lash out for being disrespected and stepped on. Every creature on this planet will assert their space, and most don't like being told to back the hell off and treat you like a normal person.

If you ever make it to Alaska, perhaps I can show you how to fast educate a hearie in public so you don't look like an ass, and they don't get offended.

However, I find it funny, and still do, that back when my lungs were burned out by diesel exhaust and I had no audible voice (prior to being deaf), I dated a deaf girl, and we would go to restaurant, and I could hear, and she could speak. Really had a lot of fun there! Poor waiter/ waitress people didn't know what to think about that!

-Chris
 
So, I've found myself the past couple days, while I was on vacation... Secluding myself and trying to avoid conversation. Not only from the deaf and HoH around me but from my hearing friends as well. Most of the time I am fine. My hearing friends are 99% of the time very understanding that I can't always hear and understand them.

I am having a problem adjusting though. I really enjoy my HoH and deaf friends but I feel myself pulling away. I get embarrassed and feel like a deer in headlights a lot of the time. I am not the best with ASL and usually use some form of PSE and/or SEE. It's just easier for me right now. But I also find myself getting shaky and nervous. So I will misspell words or sign incorrectly.

So instead of actually trying to form a conversation, and bond or form a friendship...I feel alone and, though I would not admit it in person...scared. Not necessarily becasue I am loosing my hearing. More so because I am loosing my comminication skills with the people around me. It's exhausting for me to read lips, it's also exhausting to ask someone to slow down or speak louder or..even to sign slower. It's like I have to push the repeat button all the time.

[/endrant]
 
Back
Top