A few personal questions about CI surgery and it's aftermath.

etalton

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Oh, I know that I could ask the doctors or other people involved, but I would prefer to hear the answers from the people that actually were on the operating table, not the ones standing. I know the surgery is usually done on an outpatient basis, but I do have other questions....
How much hair is shaved? How long does your hair have to be to cover the implant? How long were you out of work, if you worked, after the surgery? For those that do/did work, how much down time was there during the first year? How long after activation were you able to understand speech?
Sorry to have so many questions, but I am now at a point where I am being sent to an off base specialist for a consult for a CI and even though he/she could answer these, they are from the point of view of someone that has not gone through it themselves. I am kind of freaking out with wondering, but most websites are all rosy, and that is perhaps due to the success the person feels afterwards.
Thanks in advance for any input....
 
Oh, I know that I could ask the doctors or other people involved, but I would prefer to hear the answers from the people that actually were on the operating table, not the ones standing. I know the surgery is usually done on an outpatient basis, but I do have other questions....
How much hair is shaved? How long does your hair have to be to cover the implant? How long were you out of work, if you worked, after the surgery? For those that do/did work, how much down time was there during the first year? How long after activation were you able to understand speech?
Sorry to have so many questions, but I am now at a point where I am being sent to an off base specialist for a consult for a CI and even though he/she could answer these, they are from the point of view of someone that has not gone through it themselves. I am kind of freaking out with wondering, but most websites are all rosy, and that is perhaps due to the success the person feels afterwards.
Thanks in advance for any input....

Hair - It really depends on the surgeon. I only had about 1 inch area shaved Check my blog. Others had half of their head shaved, even now. Others had none. For males, they tend not to shave too much or cut too much in the hair line because the scars can easily be seen with short hair. It doesn't matter how much hair is over the implant. It grows back. That's what the magnets are for. For thicker hair, there's stronger magnet. It's just how you put the magnet on.

Work - Many people went back to work a week later. Some went a couple days later, others longer. I didn't work, so I can't really answer these question. I got back to 95% normal 1 week post op. As for downtime, it's depends on the person actually.

Speech - Again, it's on invididual basis. If you have wore hearing aids in the ear that you will be implanted, AND you can understand speech (just not clearly, that's different), then you will understand speech quickly. That's why I always insist that people that want to get implant, but using their dead ear for implantation is to at least try to use hearing aid to expose the nerves with sound. They will get a big wake up call at activation. For MY situation, it took about 2 to 3 days for speech to sound okay. Took about 2 weeks for speech to sound clearer. The reason is because I had the capability to understand speech well with my HAs, but I was missing all the high frequencies such as Shh, Z, CH, SH, etc. With CI, I was hearing the lows AND the highs that I didn't have in the first place, so it kind of sounded weird for a little while. Other people it took longer. Average is 3 to 5 weeks for speech to be clearer. 6 to 8 months to have a much higher HINT and sentence discrimination scores. Just because I did well doesn't mean it's the same for you. Just because someone struggled a long long time to understand speech doesn't mean it will happen to you. :)

I'm not going to lie to you. It's going to take WORK. If you NEVER wore hearing aids before, you may struggle longer because you haven't been exposed to sounds. When you get activated, it does not become a miracle right away. "It will sound like crap" - infamous words of my audiologist. After about 5 to 8 months, the CI moments get less and less. I still get CI moments here and there, but not as frequent.

Training will help you along - listen to TV shows without CC on, watch YouTube, listen to music (I have over 2500 songs, so I can give you a few choices), listen to audiobooks. Etc. You do what works for you, not what other people say will work. You can try them, but don't expect to have the same results.

Remember - Low expectations and High hopes. :)
Sorry for going on and on and on...:giggle:
 
Hair, that depends on Surgeon, Mine took ALOT off!! but lucky i have long hair and it covers really well, it's barely noticeable. Check my blog below. This is in UK.
No need to worry about length of hair post op.
I was lucky with my job as i work flexible hours and took nearly 2 weeks off I wanted to go back earlier but my job is very physical, i was pretty much very tired for 2 weeks due to the drugs they gave me post op. Also it's water based job, I am not allowed to get my wound wet for 2 weeks so i waited until my Post op check up (2 weeks after) to make sure everything is ok and the strips removed . My boss is brilliant about this and really wanted whats best for me.
I had few days off for the post activication, i used this as holiday as my brother were staying with me (good excuse as i haven' t seen him for 6 months) But as for mapping sessions i just take the day off. I have 6 scheduled mapping (after switch on) spread over 1 year (1 done already) But as i was doing so well the sounds keeps getting quieter i needed to go back for unscheduled mappings (i had that once and is going back today) also i had problem with the processor in the 2nd week! therefore i need to go back to have it replaced. I am on my 4th week post activication so pretty alot of appts, good job i live very near to the centre.

Speech depends on the individuals, I was born profoundly deaf, I had my good ear implanted, so far i cannot understand speech in everyday life but can follow speech without lipreading on TV with captions and i DO know if they miss word out! I was told it will take MONTHS, in some cases can hear straight away at activication but they are late deafen and were implanted within few months/years, and their brain still remembers speech/sounds whereas in my case my brain DOESN'T know the speech/sounds.
Like LadySekhmet says, it takes alot of work, patience and I am being very honest it sounds crap at first, I Like (not love yet) it now because i am picking sounds i never heard before. There will be love and hate relationship at the start!!

Lady had given me list of easy songs to listen to (thank you) so when i get to Youtube and will learn to listen them. I never really heard music before so this will be interesting!

All the best of luck, keep the expectations low....
 
There will be love and hate relationship at the start!!

LOL! I love this statement! That's so perfect!


Lady had given me list of easy songs to listen to (thank you) so when i get to Youtube and will learn to listen them. I never really heard music before so this will be interesting!

All the best of luck, keep the expectations low....

Oh yeah, forgot to add - if you (speaking to etalton) want to listen to music - Do not expect that music will sound the same within the first days to weeks post op. Music is pretty much the last thing to kind of discriminate because of all the complexity of sounds. IF you have listened to music for many years, it will come easier for you. If you have not listened to music (and I mean by listening to lyrics, not just bopping your head to the beat), start slow songs, and work your way up. It will take a while. I believe Vivie, who went bilateral, listened to songs over and over and over. This is how she went through the training.

I have listened to music for 20 years and it took roughly about 2 months to have it sound okay. 6 months for it to sound WONDERFUL (that's because I had the damn Mr. Twelve electrode turned off that caused issues with sounds and the fact I'm so picky with sounds when it comes to music). That's why I gave Overthepond some easy music with low complex instruments. If I gave her a Metallica song, she'll go crazy.
 
LOL! I love this statement! That's so perfect!




Oh yeah, forgot to add - if you (speaking to etalton) want to listen to music - Do not expect that music will sound the same within the first days to weeks post op. Music is pretty much the last thing to kind of discriminate because of all the complexity of sounds. IF you have listened to music for many years, it will come easier for you. If you have not listened to music (and I mean by listening to lyrics, not just bopping your head to the beat), start slow songs, and work your way up. It will take a while. I believe Vivie, who went bilateral, listened to songs over and over and over. This is how she went through the training.

I have listened to music for 20 years and it took roughly about 2 months to have it sound okay. 6 months for it to sound WONDERFUL (that's because I had the damn Mr. Twelve electrode turned off that caused issues with sounds and the fact I'm so picky with sounds when it comes to music). That's why I gave Overthepond some easy music with low complex instruments. If I gave her a Metallica song, she'll go crazy.

Lady - Just wanted to tell you that I love reading your posts! You're so informative and yet so witty and funny at the same time. You crack me up!
 
This is an interesting thread. I have worn my HA for around 30yrs now. I have severe hearing loss and wear Sumo BTE aids. Every once in a while may audi (who has been my audi for those 30yrs) will mention CI. I am afraid though. I can hear with my aids, I can speak perfectly. I am an expert lipreader but I do rely on my captions for the TV. I have a terrible time on the telephone since I can't see the person on the other end so I can't lipread. I work a regular job, I am a school teacher. In fact when you first meet me you probably wouldn't know that I am HOH. But the fact is I would love to be able to hear more. I would love to be able to talk on the telephone. I would love to be able to go to the movies and watch a movie and be able to understand everything that is being said. Do you think I should consider a CI? Since I can't decode words that well without looking at the person I am talking too after having a CI would I probably still have the same problem?
Sometimes I feel that since I do very well with my HE that if I had a CI maybe it would be worse instead of better. Is that even possible? Sorry for so many questions. This is new to me. :)
 
I would love to be able to go to the movies and watch a movie and be able to understand everything that is being said. Do you think I should consider a CI? Since I can't decode words that well without looking at the person I am talking too after having a CI would I probably still have the same problem?
Sometimes I feel that since I do very well with my HE that if I had a CI maybe it would be worse instead of better. Is that even possible? Sorry for so many questions. This is new to me. :)


There is NO harm into trying to consider a CI. Many of these people with CI have been in the same situation. Research, Research, Research. Find a CI audiologist, ask them questions.

CI is NOT the same as hearing aids. HA just amplifies sound.

To me - wearing Hearing Aids is like going into a foreign country. I can hear all the environmental sounds, sans crickets, and hear people talking. BUT I cannot UNDERSTAND them. With the CI, it feels like I have learned the language and can pick up a lot of words here and there and can understand them and can hear crickets.

I find myself not lipreading as hard, intensively watching a movie, TV or whatever as hard. I haven't watched a movie in the movie theater, I'm not THAT good. :)

CI is not for everyone. If you're curious, I suggest you to find a CI audiologist in your area that does at least two companies from Cochlear, AB, and Med El., so you are exposed to different brands.

Good luck
 
This is an interesting thread. I have worn my HA for around 30yrs now. I have severe hearing loss and wear Sumo BTE aids. Every once in a while may audi (who has been my audi for those 30yrs) will mention CI. I am afraid though. I can hear with my aids, I can speak perfectly. I am an expert lipreader but I do rely on my captions for the TV. I have a terrible time on the telephone since I can't see the person on the other end so I can't lipread. I work a regular job, I am a school teacher. In fact when you first meet me you probably wouldn't know that I am HOH. But the fact is I would love to be able to hear more. I would love to be able to talk on the telephone. I would love to be able to go to the movies and watch a movie and be able to understand everything that is being said. Do you think I should consider a CI? Since I can't decode words that well without looking at the person I am talking too after having a CI would I probably still have the same problem?
Sometimes I feel that since I do very well with my HE that if I had a CI maybe it would be worse instead of better. Is that even possible? Sorry for so many questions. This is new to me. :)

This is exactly where I am too. I speak so well now, I live life the best I can and I think I have done extremely well at that considering how profound my hearing loss is. But I would love to be able to hear more. Be able to talk on the phone without a Relay, be able to actually understand the lyrics to music without having to memorize them first, etc. I worry I may be trying to "fix what isn't broken" in my case (Yes, my ears are "broken", but for all intents and purposes as to how well I've adjusted with "broken ears" .. well, you get the point.) Good luck with your decision -- I'm still trying to decide too!
 
This is exactly where I am too. I speak so well now, I live life the best I can and I think I have done extremely well at that considering how profound my hearing loss is. But I would love to be able to hear more. Be able to talk on the phone without a Relay, be able to actually understand the lyrics to music without having to memorize them first, etc. I worry I may be trying to "fix what isn't broken" in my case (Yes, my ears are "broken", but for all intents and purposes as to how well I've adjusted with "broken ears" .. well, you get the point.) Good luck with your decision -- I'm still trying to decide too!

I was in your shoes pre-CI. I had 7 friends that had CI. They could hear well with their CI as well as I could with my hearing aids. ONe girl never heard a vacuum pre CI. I was able to with my HAs. I dismissed on having a CI because I could already hear so well. I was wrong.

It will take work to listen on the phone with CI as well as music. Even now, i still have to have the lyrics, but I can pick up the words a lot more easier this time around. So when i hear it again without looking at the lyrics, I can hear some words. You can't just turn on the CI and expect to be able to hear everything clearly from Day 1. It doesn't work that way.

If you're not too sure, go ahead and find a CI audiologist in your area and go through the qualification process. You may be surprised. I know I was. I was so shocked on how "bad" I did for words and sentences scores. I was 6% on my left pre-CI. Now, it's 56%.
 
Hair : in Greece had a large shave..but my hair grew back so quickly that doc was amazed..I had long hair , but when he removed the head bra I already had a buzz of hair that ITCHED! Alcohol resolved that quickly though

Implant site : I was quite sore (still am and I suspect it's due to early activation..few days after post op), but I expected that , as any bruise I have takes weeks to get away , so I wasn't surprised..Scar itched for long time..and it was accompanied from my other scars ( one in right eyebrow , another crossing the first , and another in my foot..LOL I'm a clumsy one! ) so I was driven crazy! Still itches in fact if I wear my tortoiseshell glasses for a long time..I had heard that friends with CI were scared to sleep on it , in order not to dislodge it..well I had no qualms after the initial pain went off!

About getting time off : I am a college student and got the semester off..and I was operated in late may..took 2 full weeks before I felt strong enough to leave the couch..and another 3 to be my old self! that varies from person to person..and I had an rather shitty summer with a lot of problems regarding CI ..

It's still in the love/hate phase..but I don't regret and I am positive , and I at least try to be patient..( I 'm not renowed for my patience..rather the opposite!! )

I had implanted my good ear too so at first I felt very depressive..I had also another depressing issues more personal ,and the CI topped all of them off..

But it's your decision alone etalton..you should try...my surgeon supported both Cochlear and Med el...I Chose cochlear..

Since starting AVT I feel there is progress..although I still loathe music..for that music that Lady says..I'd like to know more in a pm ..I have to try some progress..
 
Thank you all for the helpful hints, info both generic and personal. This is all good to know and takes some of the scariness out of a CI. It is not that I don't want one, believe me I do. After 50 out of 52 years of normal hearing, not being able to understand others is driving me bonkers. ANY improvement has to be better than what I hear now. Music has sounded like crap for well over a year, and normal speech sounds that way now too. If I can't see your lips move, I have no idea what you are saying.. and even when you do look at me I have problems as I am more of a lip guesser than a lip reader. Same goes for the TV, I can manage with the CC and some lip movement but they keep looking away from the camera..how inconsiderate.
I love music, always have so I miss it a lot..and I have two Zunes and an ipod gathering dust to back that story up. About the only thing I can still listen to is Daughtry..Fell in love with Chris on American Idol and bought the CD instead of dl'ing off the internet. I know it all by heart so I can still sing it in my head when the CD is playing. I know that is one that I will listen to over and over again after the implantation.
As for the idea of wearing an aid in that ear, I had never thought of it and don't have one as I was never able to understand speech since it started going deaf. But, I came up with a compromise. I have one of those el cheapo amplifiers that I used in between hearing aids in the other ear and I am going to wear that around the house. It's way to bulky and floppy to wear outside, but in here, it will do. I can't understand a darned word, but I can make out the sounds of my fingers clicking the keyboard and snapping fingers and other louder sounds. So, I will try and stimulate the ear nerves a bit between now and my visit with the new specialist, if ever Tricare gets rid of the red tape and gets the ball rolling. I suppose if they shave too much off, I can always buy a wig or extensions for a while..or wear a hat.
Sorry this has been so long winded..but I am starting to get excited about all this new technology and, yes, high hopes, but not high expectations....
:ty:

(P.S. I have seven cats indoors and can't hear any of them purr...I really miss that.)
 
And with CI, Finally after 30 years, I could hear cat purring..... I do feel for you as it's wonderful calming sound! I heard it for the first time few days ago when I picked my cat, Misty, up and put her on my shoulder, she gave out loud purr. It was so special and got me in tears....!
 
And with CI, Finally after 30 years, I could hear cat purring..... I do feel for you as it's wonderful calming sound! I heard it for the first time few days ago when I picked my cat, Misty, up and put her on my shoulder, she gave out loud purr. It was so special and got me in tears....!

Awwwwwwww :D That's so sweet!
 
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