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Just a note to the few people I've met on all deaf. Meggy had her surgery and ABR today. The results showed nothing at 90 dbls. My ENT said the because of the severity of the hearing loss, it's safe to say that it is nerve damage. I still don't know if there is anything they can do, (our next...

I have heard there is a member who is a parent of a CHARGE child. I am new to all deaf, and have an 8 month old with CHARGE. I am interested in talking.

Hi. I am new to this. I just had twins 8 months ago, and was devastaed to find out that one twin would need heart and esophagus surgery. Six surgeries, therapies 3 times a week, and a diagnosis of CHARGE Association later, now we are facing the possibility of her being deaf. She lived in the...