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i still show him stuff, and he does seem interested. so its a good sign!

its pretty damn amazing..i figured people would be falling all over themselves to help a disabled child/person, but some people act as if its a special treat or something. at any rate, we saw the neurologist and he also thinks he is autistic and mentally retarded..he says that he doesnt have...

with frankie, they might have, i honestly dont remember. at any rate, it was just an unlikely guess..i just want something to fall in my lap and say "look, this is whats wrong!".

nope, no blood transfusions here..nothing at all.

well, the dr says that its highly unlikely, because he wouldve had coagulation problems at birth..good point i suppose! i guess i am just grasping at anything that seems like a remote possibility at this point. he DID tell me though that it is perfectly fine for him to cry it out at night..so...

if he can gain the mental capacity, sure he can! but even if he cant, i know he can/will adapt somehow.

i think in frankies case, being deaf IS disabling to him..it is definitely making things more challenging for him. if he just had hearing issues though, pff..this wouldnt even be an issue.

hey, it beats the "dickface" sign i made for him a couple of years ago...(my husband made me take it down though)

they didnt even test me with frank, or my last 2 before him...i am definitely asking tomorrow because at least this would make some sense. because i cant find a single thing that could be the cause of this..i have researched this for months now and we have had tons of tests..and nothing. i know...

it DOES make me feel better! it beats throwing stuff at my idiot neighbor! well, not really but its legal! :D

i hope to god it does because to be honest, i am in the absolute depths of despair..i worry about what will happen when i am gone.. i have worked in nursing homes, and homes for people like frank, and its not pretty. it kills me to think that someone could be mean to my francis, but its a...

just a bit..and they are all dying to know the cause of this as well, i found out. i called about something or other last week and a nurse that i have never even talked to asked if we had heard back from genetics, because she and the other nurses were wondering if that was what was wrong with...

on tuesday, he has 3 appointments alone, and the he has some on friday...it never ends it seems!

again, frank has a TON of professionals trying to help his cute little butt..he has his regular dr, his referral nurse, who makes sure he gets all the appointments/prescriptions he needs, his feeding therapist, his nutritionist, his occupational therapist and his soon to be neurologist, and he...

right, i am O negative, and he is B positive. we had that confirmed with the first children. they tested both of us. were blood tests less reliable in the early to mid 90s?

also, i am lucky enough not to be going alone at this..my husband works all day, and then helps me with frankie as much as possible..we talk endlessly about ways to help him and things we can do for him..if i didnt have my husband, i would absolutely lose it.

yeah, he had to be under one of those lights after he was born..damn, wouldnt this be something if this is why he is like this? hes not got heart problems though, except for the murmur, and they said its harmless. how can they test him for this i wonder? and i wonder if you are rh negative, if...

he LOVES occupational therapy..they have a big swing that they sit on together and he really enjoys it. he gets frustrated when they try to get him to balance himself, but other than that he loves it.feeding therapy? that is a different story. he is also going to the neurologist this week...

oh trust me, he is in feeding therapy, occupational therapy, physical therapy, and god knows what else i cant remember right now..he definitely has an oral aversion, but with the low muscle tone, it is an even bigger challenge, and yes, that is why we got the feeding tube sooner rather than...

if he would eat and not keep falling over, i think i could just go with it..but this feeding tube sucks, and the fact that he is eating barely anything really sucks. hes happy with it but the goal is to get him to eat..and now hes dr is saying that he might be off of it as an adult, and that...