I have worked with Hellen Keller in sands point Long Island, I had training with gen O&M we learned so and he used asl . Was a wonderful experience with cooking as so on. They Got me a tutor who was fully blind , communication not the best as he only learned palm finger spelling and .. I just...
Aww man that must be so hard not be able to get around like before. I never learned to drive I live in the city so the train is what I use to get around . One day you will get used to the way things are and start enjoying life again .
I had to learn to be proud on the other hand being Deaf for me was excepting the things . That god has allowed to happen to me in this life all my Deaf friends helped me understand it all .. if not I wouldn't be deaf I would just be a deaf person audiologicly but with no culture of the deaf...
So true I pray one day it will happen cure for both of us . I hate pred it makes me have a bad sweet tooth craving sugar that's what I don't like .yeah but I still love to bake all the time and yup you don't want to more surgery and mess up your vision more .
True about ushers that grate I know your side vision is gone so you can read print that great . I can't read regular print but zoom text helps a lot .. I can go fully blind one day I hope not I also have nystagmus shaky eyes . I'm on 30 mg prednisone , and monthly infusions called ivig .
Good to know Im not the only deafblind here , usher type one . Oh okay I know many DeafBlind with ushers. I'm profoundly deaf progressive from mild now profound my vision loss is from optic atrophy and myasthenia gravis and autoimmune condition.