Why - Why the Medical Society constantly pressure on the Parents?

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Angel said:
I'm replying this to Kalista as she stated up to 13 years old. I suppose you did not read my first line on my post about babies.

different opportunities for deaf,hoh,ci - such as technology, different educational programs, oral/speech, sign languages, cued speech, etc.
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Thanks for clarifying..
 
shel90 said:
What different opportunities?

My concern is that the critera for the age to get implanted is being lowered and lowered.
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Exactly. It has already been reduced to 12 months for the limit, and a doctor can petition the FDA to allow implantation in any child between birth and 12 months. My concern is the innacuracies in audiological testing at these ages, and the lack of knowing how well a child at this age will respond to HA.
 
jillio said:
Exactly. It has already been reduced to 12 months for the limit, and a doctor can petition the FDA to allow implantation in any child between birth and 12 months. My concern is the innacuracies in audiological testing at these ages, and the lack of knowing how well a child at this age will respond to HA.
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I know...*sighs*

Can u imagine them accidentally implanting hearing kids. Oooops!
 
shel90 said:
I know...*sighs*

Can u imagine them accidentally implanting hearing kids. Oooops!
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There have been a number of babies that have failed not just one newborn screening, but follow up screenings, as well. Plus, it is difficult, without response testing, to know where the hearing loss lies in terms of frequency and dB. Likewise, an infant this age cannot respond to word discrimination testing, and that is an extremely important variable when determing benefit from HA.

I mean, would you put a kid under surgery to cure an illness that antibiotics would treat without giving the antibiotics time to do their job first?
 
jillio said:
There have been a number of babies that have failed not just one newborn screening, but follow up screenings, as well. Plus, it is difficult, without response testing, to know where the hearing loss lies in terms of frequency and dB. Likewise, an infant this age cannot respond to word discrimination testing, and that is an extremely important variable when determing bnefit from HA.
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So, to go back to Kalista's question and a valid one, in my opinion. Why is the medical community so quick and eager to implant children?

Is it because of the theory that the earlier the implantion, the child has more success with developing speech skills? In my opinion, I dont think that's true because many deaf people without implants were able to develop speech skills using HAs.
 
shel90 said:
So, to go back to Kalista's question and a valid one, in my opinion. Why is the medical community so quick and eager to implant children?

Is it because of the theory that the earlier the implantion, the child has more success with developing speech skills? In my opinion, I dont think that's true because many deaf people without implants were able to develop speech skills using HAs.
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Go ahead and shoot me...but it still all goes back to money. The medical community sees CI as a cost effective way to treat deafness. They claim millions in dollars saved in educational services, etc. that will not need to be provided to CI users. I don't know what world they live it, but their claims simply do not hold up.
 
jillio said:
Go ahead and shoot me...but it still all goes back to money. The medical community sees CI as a cost effective way to treat deafness. They claim millions in dollars saved in educational services, etc. that will not need to be provided to CI users. I don't know what world they live it, but their claims simply do not hold up.
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There was a Vlog about it...I will have to find it again and post it here.
 
This does not answer the question......

originally posted by rick48
So, please answer the very simple question: give us the name of someone, anyone who is a doctor or a professional who says a person receiving a cochlear implant is no longer deaf?
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originaly posted by jillio

This technology has the promise to actually cure hearing impairment and allow people to hear sounds and tones that were previously impossible to duplicate.
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Semantics again, as well as another out of context statement. :roll:
 
Angel said:
I'm replying this to Kalista as she stated up to 13 years old. I suppose you did not read my first line on my post about babies.

different opportunities for deaf,hoh,ci - such as technology, different educational programs, oral/speech, sign languages, cued speech, etc.
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It is a tragedy that the Hearing parents look at their Deaf as purely "broken ears". They need to realize that deafness is not cancer, and it not a broken leg. It is a many dimensional issue, that requires understanding of educational, sociological, language and emotional issues, not just "how do I fix a broken ear?" Cochlear Implants are not emergency surgery for the Deaf children, we can survive Deaf rest of our life. Why should get any metal inner the skull head as bionic child? We did not ask for this. God does not make any machine. God makes beautiful, healthy and Deaf babies then parents do not accept those children. They are not like them, therefore; the parents want their Deaf children to be normal like them.

The fact that only Medical PHD's (mostly ear specialists)were on the commitee shows the poor preperation they had for dealing with the issue of infant cochlear implant approval. Dr Harlan Lane thinks, teenagers should make the decision instead of the parents because it is their bodies. As for 6 months babies can't speak up for themselves. Teenagers can think more careful what they really want to do about cochlear implants if they use their hearing aids alot to listen every moments.

If they had only consulted the deaf community, they may have understood of the topic they were dealing with. But they did not. And that is reason enough for a halt on infant implantation until these issues are considered and given a proper "hearing". This is the lives of children at sake, and they deserve better.

Many parents are afraid to approach into the Deaf world ! They can't deny themselves. What a sad !
 
loml said:
originally posted by rick48


originaly posted by jillio



Semantics again, as well as another out of context statement. :roll:
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Then what does the word "cure" mean? Is there another definition? To me cure is the effective treatment of a disease.
 
shel90 said:
Fount it!

This lady has a series of Vlogs so it is the first one about the Comparision is where she discusses the financial interests.

Deaf Progressivism: Jane K. Fernandes Is Out Of Touch!
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Cool, thanks. I haven't got time to read it right now, but will shortly. I'm also going through some of my research to post the medical published opinions on the cost effectiveness in "managing deafness" and CI.
 
loml said:
originally posted by rick48


originaly posted by jillio



Semantics again, as well as another out of context statement. :roll:
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You are grasping at straws, loml. The sentence is very clear. It is not a a matter of semantics at all. Very clearly, you can see the statement "potential to cure hearing impairment".
 
Sill not answering the question.....

shel90 said:
Then what does the word "cure" mean? Is there another definition? To me cure is the effective treatment of a disease.
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shel90- It is out of context. The fact is you do not have the entire presentation to read. You are not aware of content of the entire presentation. It is one sentence from a presentation that was never been published. You nor I were there.

Want to focus on the words
hearing impairment
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or
has the promise?
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I am meeting with three sets of parents who have deaf children next week, they want to ask me questions both about my experience growing up deaf, and how my CI works, the process of getting it, and all that kind of stuff. I don't see this as doctors and audiologists pressuring them -THEY approached the local Deaf support office and asked if they knew anybody who they could meet with. Sounds to me like parents being pressured/forced into making a decision without being educated first is not as prevalent as some people here might like to think it is. I'm looking forward to the opportunity to talk to these parents and meet their children.
 
Kalista said:
It is a tragedy that the Hearing parents look at their Deaf as purely "broken ears". They need to realize that deafness is not cancer, and it not a broken leg.
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Who said deafness is a cancer or a broken leg?


It is a many dimensional issue, that requires understanding of educational, sociological, language and emotional issues, not just "how do I fix a broken ear?"
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Just because I prefer to wear hearing aids doesn't mean I'm trying to fix what is broken. I just want to hear since I enjoy listening to music and hear my children's voices and their laughters just like others prefer cochlear implants if hearing aids does not benefit enough for them.

Cochlear Implants are not emergency surgery for the Deaf children, we can survive Deaf rest of our life. Why should get any metal inner the skull head as bionic child? We did not ask for this. God does not make any machine. God makes beautiful, healthy and Deaf babies then parents do not accept those children. They are not like them, therefore; the parents want their Deaf children to be normal like them.
Click to expand...

They have a reason to choose cochlear implants not because of emergency needed.


The fact that only Medical PHD's (mostly ear specialists)were on the commitee shows the poor preperation they had for dealing with the issue of infant cochlear implant approval. Dr Harlan Lane thinks, teenagers should make the decision instead of the parents because it is their bodies. As for 6 months babies can't speak up for themselves. Teenagers can think more careful what they really want to do about cochlear implants if they use their hearing aids alot to listen every moments.
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Dr. Harlan Lane is entitled to his opinion but I disagree however I do agree on the part about babies because I feel they're way too young to be implanted but that's just my opinion here.


Many parents are afraid to approach into the Deaf world !
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I'm sorry to say this but I do not blame them at all, I mean look around, I still see some deaf people opposed to cochlear implants in deaf children and yes that what makes me sad. but hey everyone is entitled to their opinion and I respect that. :)
 
jillio said:
The cochlear implant is one of the more intriguing technologies that the FDA regulates. It terms of its medical effectiveness, the device is truly revolutionary. Before this technology hearing impaired individuals were consigned to amplification devices that ameliorated only some of the symptoms of deafness, and did nothing towards the actual causes. This technology has the promise to actually cure hearing impairment and allow people to hear sounds and tones that were previously impossible to duplicate.
There you go. From a paper presented at Harvard University.
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Maybe doctors in the US have a different perspective on "cure"....when I applied for my CI it was stressed to me that although it would be much better than a H/A it still would not give me "normal" sound. I was told that CI was first invented in the hope of helping the deaf to lipread more efficiently, not as a "cure". I was also told it would not be much good for hearing music as it was not programmed for that purpose.

However going by the success of several friends who have already been implanted I cant wait to get my CI, hopefully this year. "Cured" or not it seems I will have a much broader scope of sound, and in my view anything is better than nothing. Of course at my advanced age I can make whatever choice I want for myself.....lol
 
Should we really be blaming the doctors?

It's the parents that mold the children's future.

If the parents don't want their children to get cochlear implants, all they have to do is say... "no".

If the parents do allow their children to get cochlear implants, but still want their deaf children to maintain their deaf identitiy... then they simply ensure that their children are well taught on deaf culture. :)
 
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