LoveMyLife8414
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- Nov 21, 2014
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I have found myself in an interesting predicament, and I want to apologize in advance if I offend anyone with the misuse of terminology, and sharing my truth on emotions.
We realized a few months ago my now 9 month old was not responding to things she previously would have. My fears escalated and I demanded a hearing test at her 9 month well baby check up. At that time we found out most of her hearing was gone in her right ear, and she was below 50% in her left ear. Forgive my ignorance here, I truly thought that meant she could only hear 50% of what was presented to her. Turns out that that percentage is based on different sounds she can hear all together... Turns out my voice is not one she can hear (my heart broke). My first reactions were what did I do wrong during my pregnancy, then turned to 'was God getting me back for something I had done in my past'. I admit with sadness, I was angry, thought her life was going to be one of solitude, she would never learn, etc. I am even more sad to admit I still feel this way late at night when I am processing it alone. I have never met in any form, anyone hard of hearing or deaf, it is again a strong case of ignorance why I feel this way (I pray).
Today we found out (1 month later) that her hearing is deteriorating, and the loss is permanent. Her original audiologist was so hesitant it really gave us hope, her and the ENT pushed it off as a 'stiff ear drum' resulting from a cold/flu we some how missed her having. Today's audiologist made everything crystal clear; as of now we do not know why, all we know is she will never hear me tell her I love her...
I am so sorry if I hurt anyone's feelings. I am reaching out for someone who can tell me where to start! I am my childs only advocate, I just need to know where to start the fight! We are enrolled with ECI (early child intervention), but I am looking for first hand experience. Let her know from the beginning she is not alone or disabled. Where I can learn sign language, along with her. And just all around become educated. We live in North Dallas, TX.
If I am missing any important information, please ask. She had one minor ear infection (caught at a check up before she had any symptoms, right ear), born three weeks early and had a blood and lung infection at birth (required 4 antibiotics and a short NICU stay). We are meeting with a neurologist and an oral pathologist, she has a major GI birth defect that is to lengthy to explain unless of course it is again important...
Thank you all for any input you can offer, in advance.
We realized a few months ago my now 9 month old was not responding to things she previously would have. My fears escalated and I demanded a hearing test at her 9 month well baby check up. At that time we found out most of her hearing was gone in her right ear, and she was below 50% in her left ear. Forgive my ignorance here, I truly thought that meant she could only hear 50% of what was presented to her. Turns out that that percentage is based on different sounds she can hear all together... Turns out my voice is not one she can hear (my heart broke). My first reactions were what did I do wrong during my pregnancy, then turned to 'was God getting me back for something I had done in my past'. I admit with sadness, I was angry, thought her life was going to be one of solitude, she would never learn, etc. I am even more sad to admit I still feel this way late at night when I am processing it alone. I have never met in any form, anyone hard of hearing or deaf, it is again a strong case of ignorance why I feel this way (I pray).
Today we found out (1 month later) that her hearing is deteriorating, and the loss is permanent. Her original audiologist was so hesitant it really gave us hope, her and the ENT pushed it off as a 'stiff ear drum' resulting from a cold/flu we some how missed her having. Today's audiologist made everything crystal clear; as of now we do not know why, all we know is she will never hear me tell her I love her...
I am so sorry if I hurt anyone's feelings. I am reaching out for someone who can tell me where to start! I am my childs only advocate, I just need to know where to start the fight! We are enrolled with ECI (early child intervention), but I am looking for first hand experience. Let her know from the beginning she is not alone or disabled. Where I can learn sign language, along with her. And just all around become educated. We live in North Dallas, TX.
If I am missing any important information, please ask. She had one minor ear infection (caught at a check up before she had any symptoms, right ear), born three weeks early and had a blood and lung infection at birth (required 4 antibiotics and a short NICU stay). We are meeting with a neurologist and an oral pathologist, she has a major GI birth defect that is to lengthy to explain unless of course it is again important...
Thank you all for any input you can offer, in advance.