Now I can hear Daddy..

Coupled with continued therapy sessions in Oxfordshire over the next year, it means that Daisy should be able to communicate normally.

Statements like this doesnt not help with the stereotyping of deaf people espeically those who are ASL users. Another audist article. :roll:
 
Good Luck to Daisy......I hope it works out for her.
 
"To have someone telling you that Daisy will be able to listen and will be able to speak the same as any other child means everything to us."

Will the misperception and unrealistic expectations ever stop? Will the CI surgeons and audis ever stop lying to these parents?

**jillio shaking head sadly**
 
shel90 said:
Coupled with continued therapy sessions in Oxfordshire over the next year, it means that Daisy should be able to communicate normally.

Statements like this doesnt not help with the stereotyping of deaf people espeically those who are ASL users. Another audist article. :roll:
Click to expand...

They seem to be coming out of the woodwork lately.
 
Audist!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
"When we found out she had severe hearing loss, it was devastating, as you want your child to be perfect. All parents do."
Click to expand...

:shock:
When I found out my son was profoundly deaf, I felt scared, overwhelmed, helpless, doubtful and many other things. Would never use a word like "devastated", since my son was healthy and lovely just like before dx.

For tha fact that all parents wants perfect kids... BRRRRRRRRRRRRRRR. That's scaring! I'm glad my parents never worried about perfection when it comes to love me. And so do many, many parents out there, thanks to God. So they're wrong on this side.

But after all, what do I know?? My son indeed IS perfect :cool2:
 
messymama said:
:shock:
When I found out my son was profoundly deaf, I felt scared, overwhelmed, helpless, doubtful and many other things. Would never use a word like "devastated", since my son was healthy and lovely just like before dx.

For tha fact that all parents wants perfect kids... BRRRRRRRRRRRRRRR. That's scaring! I'm glad my parents never worried about perfection when it comes to love me. And so do many, many parents out there, thanks to God. So they're wrong on this side.

But after all, what do I know?? My son indeed IS perfect :cool2:
Click to expand...

I do so agree with you on this! I've heard so many describe their reactions in such terms as 'grief-stricken' and 'devastated' and so I believe for many that's the case and it must be a terrible thing to experience and work through. But I too never felt that way myself about my amazing child or thought of her in terms of some not perfect vs. perfect thing -- whatever that might be.
 
Well, to tell the truth, to me there was a grieving indeed - for the child I imagined to have and wasn't there, for the future I imagined for him and now I don't know any more what will it be... But wasn't bad really, it was like when they are born and all the images in your head fly away and you finally SEE them (I think is the same with adoption - letting go an imagined child to welcome the real one. Sometimes it's easy, sometimes not, but you always gain in that change!). I never had to grieve for my son, just for my own fantasies about him, you know what I mean?
When we realized he was deaf, I remember one of the very things I told was "Well, it fits him like a glove". It was always there. Couldn't be any different, it's part of him. A cochlear implant doesn't change that at all, and I'm sorry that those parents seem to believe it does. But who knows? That child's life could be more happy and "perfect" with her implant AND deafness, despite what her parents want to believe. I wish her so.
 
messymama said:
Well, to tell the truth, to me there was a grieving indeed - for the child I imagined to have and wasn't there, for the future I imagined for him and now I don't know any more what will it be... But wasn't bad really, it was like when they are born and all the images in your head fly away and you finally SEE them (I think is the same with adoption - letting go an imagined child to welcome the real one. Sometimes it's easy, sometimes not, but you always gain in that change!). I never had to grieve for my son, just for my own fantasies about him, you know what I mean?
When we realized he was deaf, I remember one of the very things I told was "Well, it fits him like a glove". It was always there. Couldn't be any different, it's part of him. A cochlear implant doesn't change that at all, and I'm sorry that those parents seem to believe it does. But who knows? That child's life could be more happy and "perfect" with her implant AND deafness, despite what her parents want to believe. I wish her so.
Click to expand...

Thank you for sharing that, messymama. We have discussed this "grief issue" here prior. Some seem to have difficulty understanding that what one grieves is not their child, it is the loss of the image of that particular child they held in their mind.:ty: Your insight and honesty are refreshing.
 
jillio said:
Thank you for sharing that, messymama. We have discussed this "grief issue" here prior. Some seem to have difficulty understanding that what one grieves is not their child, it is the loss of the image of that particular child they held in their mind.:ty: Your insight and honesty are refreshing.
Click to expand...

I second that, Jillio! :thumb:
 
Well, thanks! I guess we are all different anyway. Also, we may give different values to the world "grieving", someone may find it too strong you know... that's why I say it's like when the child is born, all mothers have different reactions... Some bond with child immediately, some need time, some are so shocked by the whole experience they can't even say what they're feeling... Some find it easy to let go the "fantasy child" in their head, some does that job without even being conscious of it, some grieve for that loss, some miss pregnancy... Depends on so many things.

But I must tell you, I get angry when I hear or read about CI children in terms like the ones in that article. It's a smack in the face for the ones, like us, who refused it, just like we don't want the best for our child or are denying him a "normal" life... Meaning he'll be not only "less" than hearing children but also "less" than CI ones.
They all say "It's a parents choice" and then, any choice you make, it never seems "right" :roll:

It's an everyday fight against ignorance and the more time passes, the more my patience slips away...
 
Another article uses words make being deaf sounds bad, nothing new here. I suppose writer is trying make bigger impact and those words supposely make impact. *sigh*
 
I've heard so many describe their reactions in such terms as 'grief-stricken' and 'devastated' and so I believe for many that's the case and it must be a terrible thing to experience and work through. But I too never felt that way myself about my amazing child or thought of her in terms of some not perfect vs. perfect thing -- whatever that might be
Click to expand...
.
I can and do understand that type of reaction when talking about say mental disabilty or severe multihandicaps.(ie like the type of kid who lives at a pedatric nursing home) Those are definitly life limiting conditions.
But just dhh or blind/low vision or CP or any other mild (but low incidence) disabilty....that just boggles the mind, that a person would be grief stricken or devastated over something like that.
I hate it when I hear parents going " Oh I just hate being a part of a "special club":roll: or " I wish I had a healthy and normal kid" Your kid IS healthy and normal. You know I think a BIG part of the reason why parents chose oral only is b/c they are still grieving about not having a "normal" kid.
 
Oh, how I hate that silly word "normal". What's "normal"??? Seems so desirable to some people. i think that we could extend the concept of "audism" to "normalism" :roll:
 
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