"Fixing" the child or not?

faire_jour said:
But are you talking about what happened when you were growing up, or parents today? have parents told you that they get sad and depressed when their child can't wear their processor, or are you just assuming?
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Just read whenever a child's CI get broken or lost, can't be used in sports, etc. .. What's their reaction to it? Maybe I'm misunderstanding them, but it does seem like it bother them alot.
 
A said:
Just read whenever a child's CI get broken or lost, can't be used in sports, etc. .. What's their reaction to it? Maybe I'm misunderstanding them, but it does seem like it bother them alot.
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If it gets lost or broken, yeah I'd be upset, that is a $7000 piece of equipment (just the processor, not the battery or headpiece), it is a big deal! It can be used in most sports, but in the ones that can't, who exactly is complaining, I don't understand.
 
faire_jour said:
If it gets lost or broken, yeah I'd be upset, that is a $7000 piece of equipment (just the processor, not the battery or headpiece), it is a big deal! It can be used in most sports, but in the ones that can't, who exactly is complaining, I don't understand.
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no, it is not the money they are worrying about. It's their child. At least that's what I reading from them.
 
F_J, let me ask you this,say your daughter processor have to be repaired and that mean a few days without her CI... and you don't know Sign Language.. How would you feel concerning your daughter lack of access to spoken language?
 
A said:
F_J, let me ask you this,say your daughter processor have to be repaired and that mean a few days without her CI... and you don't know Sign Language.. How would you feel concerning your daughter lack of access to spoken language?
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I'm going to answer, too, A, even tho' I know you are asking FJ :)

I'd be very frustrated. I honestly don't know how parents and small children (who don't have writing skills) communicate effectively if the CI is out of commission and they don't use ASL or another sign approach. We've been caught on vacation w/ broken processor, no backup, we've had main and backup CIs fail, one after another because of a faulty coil, and have been without for 3 weeks one time. I've been up on skis on a mountain with Li-Li, when her processors slid down under the weight of a helmet, with no way to reposition with frozen hands while cruising down the hill.

And those are extreme, but I'd be frustrated daily if I couldn't communicate to my child while she was in the bath, when we first wake up in the morning, as well as while she's playing in the surf, rolling in sand or snow. I don't want there to be a tiny little battery connecting me and my child.

(But, I'd be able to account for many frustrated moments in which I couldn't communicate with my child if she didn't have a CI, too.)
 
I see it a "fixing", but I also realize that there are some parents who don't know what to do for their child who has the hearing loss and feel that the CI is the best option. Personally, I am glad I never had to make that choice for my kids. They had hearing aids for a while, but after they were 10 or 12, decided that they did not like them. They had them for a good 4-6 years and decided that they weren't happy with them. They are fine now. I had HA's growing up, lost it all and am total deaf. HA's and CI's will not help me at all. For me, it was an easy transition since I was prepared for it. I am mostly happy and well adjusted and don't feel that I need to be "fixed" and I am glad.
 
Wirelessly posted

A said:
F_J, let me ask you this,say your daughter processor have to be repaired and that mean a few days without her CI... and you don't know Sign Language.. How would you feel concerning your daughter lack of access to spoken language?
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That's why there are back ups!

but really, to answer your question, i wouldn't send her to school. i wouldn't want her sitting in school not understanding.
 
Interesting...

I am at home and I havent read the recent posts since my last one so I will go ahead and make this one..

Today, at work my coworker who is Deaf...grew up with ASL and went to Deaf schools was telling us about her brother's long lost children finally contacting him and the family after 20 years of being missing. Long story but one of the children has a 2 year old son making him her grand-nephew who is deaf. Her brother who is hearing told her that his grandson is deaf but got fixed by a CI surgery and is now hearing. My coworker was saying that she got into a little argument with her brother telling him that no, that his son is not fixed and that he is still deaf.

I asked her why did she think that way that her grand nephew wasnt fixed. She said if he was, he would be hearing like a hearing child so he is still deaf so he is NOT fixed.

Just thought to share that with u because while she was talking about it, I was thinking of this thread.
 
Reading the recent posts, it seems like without CIs deaf children cant communicate at all using spoken language.

If so, then how do many of us manage to do it without having CIs at all? I was one of them.
 
shel90 said:
Reading the recent posts, it seems like without CIs deaf children cant communicate at all using spoken language.

If so, then how do many of us manage to do it without having CIs at all? I was one of them.
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I don't know about you, but I did go a whole summer without my hearing aids.. Without it, It is totally silent for me. It was miserable especially when your family couldn't talk to you. My parents were poor so we couldn't afford another right away. Which is why I say it is damaging when you don't help your child cope in silent. It may look like it's no big deal on the outside surface of that child (for some people, but I do think it is great that there are parents who acknowledge this and do everything they can to make sure they have access but these children still need to learn without technologies) , but it is not.
 
shel90 said:
Reading the recent posts, it seems like without CIs deaf children cant communicate at all using spoken language.

If so, then how do many of us manage to do it without having CIs at all? I was one of them.
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:laugh2: Shel - I was thinking the same thing.
 
shel90 said:
Reading the recent posts, it seems like without CIs deaf children cant communicate at all using spoken language.

If so, then how do many of us manage to do it without having CIs at all? I was one of them.
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I was too. And I don't believe the kids with CIs can't.
 
A said:
I don't know about you, but I did go a whole summer without my hearing aids.. Without it, It is totally silent for me. It was miserable especially when your family couldn't talk to you. My parents were poor so we couldn't afford another right away. Which is why I say it is damaging when you don't help your child cope in silent. It may look like it's no big deal on the outside surface of that child (for some people, but I do think it is great that there are parents who acknowledge this and do everything they can to make sure they have access but these children still need to learn without technologies) , but it is not.
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Your parents just didn't try.

My parents would not have let me go a whole summer with no communication.

And I mean they would have communicated in any way they could.

You should probably have been removed from your household if they just let you sit there and rot for a summer.

Has nothing to do with hearing aids of CI. Just lousy parenting.
 
Wirelessly posted

Bottsini's method of communication is her pen. She prefer to write/type over speaking or signing. Trust me, she knows what she's talking about.

Poverty is not an excuse for bad parents.
 
shel90 said:
Reading the recent posts, it seems like without CIs deaf children cant communicate at all using spoken language.

If so, then how do many of us manage to do it without having CIs at all? I was one of them.
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I'm curious, without access to sound or ASL, do you remember how you communicated with family/ teachers before you were old enough to write?
 
souggy said:
Wirelessly posted

Bottsini's method of communication is her pen. She prefer to write/type over speaking or signing. Trust me, she knows what she's talking about.

Poverty is not an excuse for bad parents.
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It has alot to do with it. No money for gas to take ASL classes or anything like that. I am not sure why they didn't bother writing, maybe they felt I was doing ok. But they couldn't afford another hearing aid.
 
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