Babyblue

I agree..I do not think it would work either. I also think lugging him around may set you both up for some head injuries from the Frankie throwing his head.

My daughter used to do that.. out of the blue she would fling. She has busted my nose and lips a couple of times. No... she did not do it out of a fit. She also head banged a lot when she was tired. The doctor told me it was soothing to her.

Deafness

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frankiesmom

he does it whenever i go to get him out of bed..or whenever. it drives me crazy because you never know when hes going to do it.
he can do it all he wants in this bed though, i am so glad that he has one now!

whatdidyousay!

That is a very good sign as long as long he it not obsess with the item.
I took care of my niece that has aspergers, I was going take her on the
swan boat with my daughter and I brought both girls a balloon before going on
the ride and my niece became so obsess with her balloon I could not interest her in anything else and we where not able to take ride on the swan boat.
My sister has not accepted the fact that her daughter needed help. The doctor said her daughter was just very 'shy' and that was why she did not made any eyes contact with her own parents! My niece also has low muscle tone , she was not able to sit up as a baby, she would fall to one side and , was not able to nurse very good. She can sit up now and her muscle tone has gotten better.
The doctors said she should send a to group home for kids that will never be able care for themselves and live there her whole life!

frankiesmom

Babyblue

Sawweeet!! That is the most awesome bed, evah!!

The kid in it is just as awesome! What a cutie!

frankiesmom

nope, hes never obsessed over anything and he makes really good eye contact with us, luckily!

whatdidyousay!

I am sooo Happy to hear that!! I know my niece has a really hard time making eyes contact. She was so worried about going to the airport because of this . She thought TSA would think she was a up to something bad for not being able to look them in the eyes!


Frankie's bed is great! It is huge , he looks very cute in it , he is very cute !!

frankiesmom

aww that is sad! no, frankie LOVES attention from anyone, and lots of hugs. his bed is pretty large, its a twin size, but with the frame and all..i love the wireless remote it came with, that is really nice!!!

Babyblue

What is the remote for? To raise and lower the guard rails?

frankiesmom

nope, to raise the head and foot..the top rail you just unclasp and fold down..its really nice and convenient.

inmate23

30lbs is nothing dad used the pack till i 80lbs

but your made up your mind

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Bottesini

You keep saying how much you hate your parents for everything they did for you anyway.

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frankiesmom

well, maybe your dad enjoyed hauling a kid around on his back. i would not.

AlleyCat

Easier said than done. And in a homemade canvas backpack? Everyone has their limitations.

inmate23

So I not allowed to point out the 1 thing that they got right

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KristinaB

frankiesmom - I love these pics of Frankie and his new bed. I think it's a great thing for him. Seems like maybe he might sleep a little better so you can get your rest at night as well. Am I right?

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frankiesmom

its what i am hoping! he only got up once last night and it was heaven..except i have been "programmed" to wake up all night long, so i would wake up anyways..but that was ok as i could just go back to sleep.
and as for easier said than done, its more like having the desire to lug around a toddler like that.. i love my frankie doodle more than life itself, but i dont want to be fused to him 24/7. i dont think he would either..i tried the baby wearing thing when he was a little baby and he would get ultrapissed after a while. he is never but a foot away from me during the day anyways, so i think we have covered the whole bonding thing anyways.

Sarfarigirl2011

I love the cute pictures of Frankie and his new bed! just 2 cute and that's why everybody loves a curlyhead especially me!

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Oceanbreeze

I would strongly advise against this and go with the stroller. As Frankie ages, a stroller would be much more practical than lugging him around.

I don't know if he'll eventually learn to walk (my guess is probably), so a wheelchair might not be necessary, but if it is, I'd get one. You have to factor in a lot of things besides your own health. Once Frankie nears puberty, he will gain weight. He is also likely to grow taller. It will be very difficult to carry him everywhere at that point.

Besides which, HE will appreciate the ability to have moblity on his own. Hopefully, he will learn to walk, but if he doesn't, it would much more rewarding for him to be able to push himself from place to place than have someone carrying him everywhere he wants to go.

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Oceanbreeze

Not to mention, not very rewarding for him. He will appreciate whatever independance he will eventually have. If he is able to learn to walk, that would be awesome, but for some reason, he isn't, the stroller (and eventual wheelchair), is much more practical. It also would be a self esteem booster for HIM to be able to move himself from place to place than to have MOM or Dad doing it FOR HIM.

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"There comes a time in your life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad, and focus on the good. Love the people who treat you right, pray for the ones who don't. Life is too short to be anything but happy. Falling down is a part of life, getting back up is living."

Oceanbreeze

And, for good reason. It's not practical.

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"There comes a time in your life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad, and focus on the good. Love the people who treat you right, pray for the ones who don't. Life is too short to be anything but happy. Falling down is a part of life, getting back up is living."

frankiesmom

oh no. frankie can walk but he cant walk very far, and he is unable to follow directions or have any idea of where he wants to go..its definitely better for him to be in a stroller. that and he cant drink his bottle sitting up and has to be flat.

Oceanbreeze

Thank you for clarifying that. It certainly is much better for him (and you) than for you to carry him everywhere. Especially, as he gets older and heavier.

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"There comes a time in your life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad, and focus on the good. Love the people who treat you right, pray for the ones who don't. Life is too short to be anything but happy. Falling down is a part of life, getting back up is living."

frankiesmom

well yeah, and i dont want him to expect me to carry him all the time..i have seen people carrying school kids in a pack and that is a bit much to me. maybe if i had 1 kid it would be different but im always surrounded by them it seems!

inmate23

Sorry but way im reading this thread

Is you that will never accept he needs a chair and that you will use the stroller (larger ones that will need to purchased as he grows)as long possible

Please tell im wrong

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Oceanbreeze

I think you're wrong. She can clarify, too. But, keep in mind, Frankie is a baby/toddler. He walks somewhat, but as she clarified for short distances. Expecting her to carry him is just not practical. It's hoped (if one is being optimistic and this Mother sure seems to be), that he WILL eventually walk! But, for RIGHT NOW, the best way for her to manage him is with a stroller. It's really no different than any other parent with a baby or toddler who use strollers; except this one is designed to fit Frankie's needs.

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"There comes a time in your life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad, and focus on the good. Love the people who treat you right, pray for the ones who don't. Life is too short to be anything but happy. Falling down is a part of life, getting back up is living."

frankiesmom

he just fell asleep after an afternoon of chasing the dog through the living room, and running all over the place with his toys. he totally doesnt need a wheel chair. he needs something to keep him safe and contained when we go places. if he were crippled, of course i would get him what he needs, but hes not. he just has some safety issues that i am hoping he grows out of.
and besides if he needed a wheelchair..what would be wrong if i decided to use a stroller in the mean time? luckily, he can walk so he doesnt.

frankiesmom

exactly! he just needs a little extra restraint because he enjoys flopping around with abandon, and well, thats not too good when you are rounding a corner.

Oceanbreeze

And, forgive me for assuming that Frankie was NOT ambulatory. I had assumed that since you ordered the special stroller he wasn't, but that was my mistake. It sounds like with a lot of therapy and patience, he'll go a long way. I'm so glad that you did get him this stroller, because you're right, safety comes first.

I should note that I am disabled and wheelchair bound. When I was young I walked with the aid of braces and crutches, but that soon went by the wayside. Once that happened, I used a chair. I can tell you that from experience, it's a heck of a lot better for everyone than having someone carry me! And, as I mentioned, once I reached a certain age, being carried was virtually impossible as I gained weight and it became impossible.

What we're after here is for Frankie to be mobile AND safe. The stroller is the answer!

Btw, I've seen these strollers, and they are NEAT!!!

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"There comes a time in your life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad, and focus on the good. Love the people who treat you right, pray for the ones who don't. Life is too short to be anything but happy. Falling down is a part of life, getting back up is living."

deafdyke

Precisely, the key with kids with disabilties is that you need to give them special needs stuff and see if they can benifit from it. Just b/c you hated the special needs stroller, it doesn't mean that Frankie won't....Besides, Frankie will prolly only need it for a bit.