Profoundly Deaf and tinnitus both sides

I am severely close inching towards profoundly deaf and have very bad tinnitus..on both sides
 
Profound deaf and musical tennitus, both sides along with the roaring, etc. All the time....hard to get to sleep, so I take short naps during the day....dunno if ear infections cause this, but I've suffereed with them for a very long time and have my ears cleaned/drained every 4-6 months, drops...and something new from the doctor last Friday.....no more ear plugs when I shower/bathe! He said the least little drop of water could cause infections, so he suggested putting vaseline into my ears, then plugging them up with cotton balls when I wash my hair! I started that today, and go back in a month to see if this will help....hoping it works!
 
:welcome: to AllDeaf forum. You are not the only one, as for me, I too have mild or bad tinnitus. I think that is the reason why we are wearing hearing aid or CI. And for late deafend, they are used to hearing sounds that when they go deaf, they hear tinnitus. Weird and crazy, eh? :hmm: Now that you are here, have fun reading and posting all the threads here. See you around here. :wave:
 
rockin'robin said:
Profound deaf and musical tennitus, both sides along with the roaring, etc. All the time....hard to get to sleep, so I take short naps during the day....dunno if ear infections cause this, but I've suffereed with them for a very long time and have my ears cleaned/drained every 4-6 months, drops...and something new from the doctor last Friday.....no more ear plugs when I shower/bathe! He said the least little drop of water could cause infections, so he suggested putting vaseline into my ears, then plugging them up with cotton balls when I wash my hair! I started that today, and go back in a month to see if this will help....hoping it works!
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sorry - :topic:
How do you then clean the Vaseline out of your ears? I want to try this.
 
As Bebonang so nicely mentioned. late-deafened people get bad tinnitus due to having hearing then going to silence. That is me. I was hoh for my whole life with it getting steadily worse. Now, I am total deaf and the tinnitus is very bad. Constant roaring, music and everything in between. I have to remember some classical music and start "hearing" it in my head before I can fall asleep, but if I wake during the night, then it's "hell on wheels" to get me back to sleep.
 
KristinaB said:
sorry - :topic:
How do you then clean the Vaseline out of your ears? I want to try this.
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I asked the doctor the same question....he said just "wipe it out"....along with the sides of ur hair around the ears (as vaseline is very oily).....Just take a cotton ball and rim it into the vaseline jar, stick it into ur ear(s)....or just take some vaseline onto ur fingertip, smooth it into ur ear canal and stick the cotton ball in....either way should work. Vaseline won't hurt ur ears.....I wash my hair 2-3 times a week (shower) and take baths on the other days, so it's not a daily thing.
 
Actually tinnitus can affect born deaf people too. It is just the sound of a dying and damaged auditory nerve.
 
Bottesini said:
Actually tinnitus can affect born deaf people too. It is just the sound of a dying and damaged auditory nerve.
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Very true, very true. Thank you for mentioning that as I tend to forget.
 
rockin'robin said:
I asked the doctor the same question....he said just "wipe it out"....along with the sides of ur hair around the ears (as vaseline is very oily).....Just take a cotton ball and rim it into the vaseline jar, stick it into ur ear(s)....or just take some vaseline onto ur fingertip, smooth it into ur ear canal and stick the cotton ball in....either way should work. Vaseline won't hurt ur ears.....I wash my hair 2-3 times a week (shower) and take baths on the other days, so it's not a daily thing.
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:ty:
 
Wow...

Seriously, anyone with tinnitus has both my profound respect and empathy. I cherish those times when I don't need to wear my hearing aids (my girlfriend knows I'll just lip-read her) and am terrified of suffering from this problem.

I've been extraordinarily lucky in my life that there is only one extremely rare nightmare that I've ever actually suffered from, and it always involves an excruciatingly loud sound that makes me feel like my head will eventually explode - genuinely terrifying.

Concentrating on a different sound or thought usually solves the problem, but I've also heard that meditation is an excellent way to control it. Bottesini's suggestion that this may also be a physical, rather than mental problem, is both fascinating and not just a little disturbing.

Question to those of you who have experienced this first hand: Do you just have to ride it out or can you actually defeat it mentally?
 
Hearing people too?

And another question, especially to Bottesini, who first introduced this idea: Do hearing people suffer from dying/ damaged auditory nerves? And if so, do they just suffer less because they are used to sound or can compensate with sound from different sources, e.g. loud music?

Not for nothing, but tinnitus is precisely the reason why someone could offer me the cure to my deafness and I would recoil in horror - I cherish the silence like an addiction.
 
interesting book

Recently, I ran across a very interesting book: Musicophilia (by Oliver Sacks). He is a neurologist who has written several books on various "disabling" conditions. He is very empathetic, and writes about people AS people. Most books I have read about "disabilities" are somewhere between depressing to downright INSULTING. His book has a chapter or two about hearing loss, tinnitus, and "musical ear syndrome." He has also written a book (several years ago) about his experiences with Deaf people, called Seeing Voices. I also enjoyed an essay entitled An Anthropologist On Mars (about HFA: high functioning autism).
 
Profoundly deaf both ears, bad tinnitus only on one side. odd...
 
Kiweagle said:
And another question, especially to Bottesini, who first introduced this idea: Do hearing people suffer from dying/ damaged auditory nerves? And if so, do they just suffer less because they are used to sound or can compensate with sound from different sources, e.g. loud music?

Not for nothing, but tinnitus is precisely the reason why someone could offer me the cure to my deafness and I would recoil in horror - I cherish the silence like an addiction.
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Sorry, I just saw this. I don't really know about hearing people. I would think if they have tinnitus, that would make them soon to be deaf or hard of hearing people.

However someone else may know a different reason for it. I know aspirin will cause it as it is in the process of damaging hearing.
 
Bottesini said:
I don't really know about hearing people. I would think if they have tinnitus, that would make them soon to be deaf or hard of hearing people.
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Hi, everybody! I'm Antoinette, I'm new and while checking out the site I came across this treat. I cannot help to comment!

I am hard of hearing, for at least 40 years (probably a birth injury). Currently profoundly deaf for high frequencies ONLY. I get along "lip"-reading those sounds; sometimes without hearing aids to keep my performance sharp. But I have difficulty calling myself deaf and I find it difficult to mingle with people physically, even deaf people.

I wondered about the sun beetles I was hearing in class when I was 12 years old. Only many years later I learnt to call it tinnitis. Ever since discovering it is for keeps, I tried not to put emotions to it, even when it prevented me from hearing properly (I thought). I would not say I require sympathy for this constant companion. I know it is quiet when it is the only sound I hear. Wearing hearing aids makes it softer, or less noticible at least.

The audiologist one day told me that it is the way the remaining parts of the hearing system compensates for the lack of input they receive - to make up for the lost sound. Intriguingly, its frequency-contents is exactly that along the fast sloping part on my audiogram.

My theory thus: tinnitis is NOT dying nerve cells, but a sign of alive nerve cells hypersensitised to sound so that I can still try to hear those sounds! Even though it may take 110dB to start to hear it! And you cannot imagine how easily those real sounds can hurt. It is probably then also why these cells can get damaged from "volume", and eventually die. But it remains the sound of living nerve cells for me!
 
an2net said:
Hi, everybody! I'm Antoinette, I'm new and while checking out the site I came across this treat. I cannot help to comment!

I am hard of hearing, for at least 40 years (probably a birth injury). Currently profoundly deaf for high frequencies ONLY. I get along "lip"-reading those sounds; sometimes without hearing aids to keep my performance sharp. But I have difficulty calling myself deaf and I find it difficult to mingle with people physically, even deaf people.

I wondered about the sun beetles I was hearing in class when I was 12 years old. Only many years later I learnt to call it tinnitis. Ever since discovering it is for keeps, I tried not to put emotions to it, even when it prevented me from hearing properly (I thought). I would not say I require sympathy for this constant companion. I know it is quiet when it is the only sound I hear. Wearing hearing aids makes it softer, or less noticible at least.

The audiologist one day told me that it is the way the remaining parts of the hearing system compensates for the lack of input they receive - to make up for the lost sound. Intriguingly, its frequency-contents is exactly that along the fast sloping part on my audiogram.

My theory thus: tinnitis is NOT dying nerve cells, but a sign of alive nerve cells hypersensitised to sound so that I can still try to hear those sounds! Even though it may take 110dB to start to hear it! And you cannot imagine how easily those real sounds can hurt. It is probably then also why these cells can get damaged from "volume", and eventually die. But it remains the sound of living nerve cells for me!
Click to expand...

A common cause of tinnitus is inner ear cell damage. Tiny, delicate hairs in your inner ear move in relation to the pressure of sound waves. This triggers ear cells to release an electrical signal through a nerve from your ear (auditory nerve) to your brain. Your brain interprets these signals as sound. If the hairs inside your inner ear are bent or broken, they can "leak" random electrical impulses to your brain, causing tinnitus.
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Tinnitus: Causes - MayoClinic.com

Here is an explanation from the Mayo clinic, which can be considered a good source.

It is from damage.
 
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