Adam Woerlein

I'm hard of hearing and this is my first time involving myself with others who share the similar condition. I don't know how to word any of these introductions, so I apologize if I say anything ableist.

Deafness

__________________
This advertising will not be shown in this way to registered members.
Register your free account today and become a member on AllDeaf.com

Bottesini

Hello, Adam.

__________________

rockin'robin

Adam Woerlein

Thanks for being inviting

Bottesini

What do you want to tell us about yourself?

Were you always hard of hearing?
How old are you?

How much hearing loss do you have?

All these are good things to talk about to help us get to know you.

__________________

Smithtr

Hello welcome to alldeaf Adam

__________________

Adam Woerlein

I was born 27 years ago with this syndrome called charge which affects all of your senses. In addition, it makes your school and social life a complete challenge. This disorder involved hearing problems from birth.

I can hear people from my right ear, but my left may as well be stuffed with cotton.

Adam Woerlein

I don't know if anyone would like to talk about internalized ableisim, or the school system.

Bottesini

Interesting.

Do you also have coloboma of your eyes?

I am deaf and also legally blind, and I have Asperger's syndrome, so I am not a stranger to the challenges of social life.

What kind of school did you attend?

__________________

Adam Woerlein

Nope. Be honest, I'm not going to be ostracized because I do not relate to a level of hearing loss that requires interpreters?

Bottesini

Of course not! Everyone who wants to be here is welcome.

__________________

deafdyke

Nope. We have a TON of folks here who are functionally HOH or HOH and didn't grow up with ASL or deaf schools.

deafdyke

I am familair with CHARGE. There are a lot of Charge kids at Perkins....I am also familiar with the school and social life issues....and A LOT of mainstreamed and oral kids deal with those...not just Charge kids.

Adam Woerlein

I've never actually had anyone who has been familiar with the disorder. I was set up with someone else who had it. I never heard back from them it's common from things like this.

deafdyke

Charge can be severe to mild right? And you're misunderstanding.......social and school stuff is common among MANY MANY oral and mainstreamed kids.....sigh.....if only we could get rid of the myth that the Perfect Placement is a Minimal Accomondations Inclusion setting....we would have kids REALLY thriving!
And just to add, I most likely went through a lot of the same stuff you did....

Sarfarigirl2011

welcome to Alldeaf, I'm HOH here

__________________
18 yr old girl with a moderate loss in the right and moderate/profound on the left.
currently wearing purple Oticon Safari P 600s

Adam Woerlein

I do want to apologize for the assumptions before. I miss out on a lot of conventions of respect.
I'm really happy to know that mainstream people have the same issues as people with disabilities.

Cylly1

I'd like to practice ASL ^^ in case anyone's interested...just throwing that out there

CSign

I'm pretty sure there is a Separate thread for that...

Cylly1

pretty sure there is too, but i meant with them so....

Bottesini

These people have not offered to practice with you. The ASL student's thread is there so hopefully people won't clutter up other people's threads with these types of posts.

__________________

deafdyke

No, what I meant is that the social emotional issues are NOT just a "Charge Syndrome" sort of thing. They're not exclusive to Charge. Many mainstreamed and oral kids ALSO deal with social emotional issues.

Adam Woerlein

I misinterpreted. I've never met another person who had the same diagnosis. Getting labelled with a rare syndrome makes you feel like all problems can be linked to that syndrome. It's quite isolating.

Cylly1

Um sorry post police... but i didn't see where they said they would or they wouldn't. *honestly I can't understand why some people are rude to other who just want to learn, I'm new to this site and you expect me to be an expert and know what and where I'm suppose to post... I thought it was a site where you could meet new people and practice with them or just talk.

Bottesini

Well, hopefully now you see the error of your ways.

__________________

Cylly1

Well hopefully now you can understand that I'll post what I want where I want

deafdyke

Cylly, yes you're new to posting, but it's just like having a conversation in real time. If we were talking about Charge syndrome in real life, you wouldn't jump in and go " Oh I'll pratice sign language with you!" Make sense now? If you want to meet new people and practice with them, start a new thread, so it doesn't get lost in a completely unrelated thread."

Bottesini

Not for long...

__________________

deafdyke

Oh so you were solotaire (only dhh kid in the entire school?) Oh trust me....I've been there and I've done that. I thought I was the ONLY HOH kid with social emotional issues....it is so freaking common.

deafdyke

And remind me to kill the person who decided it would be an AWESOME idea for dhh or other low incidence kids to be isolated in the mainstream.