CI users only

Frisky Feline · 08-30-2011, 11:59 AM

Curious, anyone of you who have CI. Do you not mind if someone touches your head or hair where the scars position were?

Just curious.

bbaseballboy123 · 08-30-2011, 02:38 PM

Well, someones gonna have to cut your hair eventually.

All kidding aside, are you referring to showing someone your implant/processor and the location of the implant ect?

Frisky Feline · 08-30-2011, 02:41 PM

No, for example, like giving you a hug but petting your head or stroking your hair.

bbaseballboy123 · 08-30-2011, 02:48 PM

Quote:

Originally Posted by Frisky Feline

No, for example, like giving you a hug but petting your head or stroking your hair.

Ohhh, nah I dont feel it annoying unless the processor is knocked off. I really dislike it when my processor falls off when im on the couch cuddling lol.

Frisky Feline · 08-30-2011, 02:52 PM

Quote:

Originally Posted by bbaseballboy123

Ohhh, nah I dont feel it annoying unless the processor is knocked off. I really dislike it when my processor falls off when im on the couch cuddling lol.

LOL! yeah that one too. Even my kids often jump on my hubby's back or front him and knock his processor off a lot.

bbaseballboy123 · 08-30-2011, 03:14 PM

Sometimes, on heated days, my scar would itch a little.

Frisky Feline · 08-30-2011, 03:18 PM

Quote:

Originally Posted by bbaseballboy123

Sometimes, on heated days, my scar would itch a little.

yea same for me that i had surgery and left me some scars. Its annoying.
Guess it depends on individual's sensitive if anyone touches the head's scars. i was just curious.

bbaseballboy123 · 08-30-2011, 03:19 PM

Quote:

Originally Posted by Frisky Feline

yea same for me that i had surgery and left me some scars. Its annoying.
Guess it depends on individual's sensitive if anyone touches the head's scars. i was just curious.

Yeah my right is very used to having an processor on the skin, but my left, the skin gets irration after a day of wearing the processor

Frisky Feline · 08-30-2011, 03:23 PM

Quote:

Originally Posted by bbaseballboy123

Yeah my right is very used to having an processor on the skin, but my left, the skin gets irration after a day of wearing the processor

The left one is newer one i mean the recent surgery?

bbaseballboy123 · 08-30-2011, 03:32 PM

Quote:

Originally Posted by Frisky Feline

The left one is newer one i mean the recent surgery?

No, my right is the more recent surgery i had. But my right has had an implant since i was 2. my left was implanted about 3 years ago

Frisky Feline · 08-30-2011, 03:34 PM

The recent one should be more sensitive than the older one. Thats interesting.

bbaseballboy123 · 08-30-2011, 03:38 PM

Quote:

Originally Posted by Frisky Feline

The recent one should be more sensitive than the older one. Thats interesting.

It make sense its not as sensitive as my left cause I had a processor on the ear for so many years that its like I dont even have a processor on my ear (even though I would).

My left is not used to having a processor on the ear therefore the ear gets sore.

But from scar point of view, my scar on my right has little amount of feeling compare to my left*

Frisky Feline · 08-30-2011, 03:48 PM

What if N5 is better on your left, will it be better and less sore??? N5 looks lighter to me. FYI I dont have a CI but my hub is. He got it when he was around 33 yrs old. He has a long history of vertigo, dizziness and nausea so he dislikes it when i touch his sensitve area even though he didnt have CI before. After He had a CI and still dislikes it if i touch his scar.

LOL He is working on getting N5 somehow.

bbaseballboy123 · 08-30-2011, 03:54 PM

Nah, it doesnt matter what company or processor it is i dont think. I actually think the AB harmony is lighter? It is larger but I think its lighter than the N5
Everyones sensitivity is different so yeah it could brother him a lot while it doesnt for me.

overthepond · 08-30-2011, 04:35 PM

If i am rough housing its fine as we are playing, the ci tends to fall off anyway or my head gets brushed/hitted (not intentionally)

Kids being curious and asks me if they can feel it, its fine

Adults rudely touches my hair to look at my CI, that's not fine...

Shoshana · 08-30-2011, 06:28 PM

Even know im not using my implant I like that area rubbed, It feels really good to have my head there rubbed and my boyfriend is nice to do it

**deafskeptic** · 08-30-2011, 07:35 PM

I would certainly mind if people touched my CI out of the blue. I won't mind as much if they ask.

drphil · 08-30-2011, 09:35 PM

From reading the above: no itching - left side, no one has tried to take my processor yet. Not bothered yet. Just crossed 4 years. Lucky-so far!

Implanted A B Harmony activated Aug/07

**Smithtr** · 08-30-2011, 09:44 PM

Quote:

Originally Posted by drphil

From reading the above: no itching - left side, no one has tried to take my processor yet. Not bothered yet. Just crossed 4 years. Lucky-so far!

Implanted A B Harmony activated Aug/07

I Notice your confused! I know you seems on reading careful watch once time!

drphil · 08-31-2011, 09:03 AM

Travis: what am I confused about- my experiences so far?

Implanted A B Harmony activated Aug/07

Jules · 08-31-2011, 09:11 AM

Quote:

Originally Posted by Frisky Feline

Curious, anyone of you who have CI. Do you not mind if someone touches your head or hair where the scars position were?

Just curious.

Not at all! I make people to touch my head where the scar and titanium area

Frisky Feline · 09-01-2011, 02:05 PM

Jules, you are brave... ha

**Daredevel7** · 09-01-2011, 04:25 PM

I'm okay with people touching that area, but I ask the person who washes my hair (in a beauty salon) to back off from that area because she rubs my head really hard (which feels oh so good). I feel like she can somehow push the magnet/internal parts off kilter. But that's just a mental thing.....

Cloggy · 09-01-2011, 04:33 PM

Hope you guys and gals don't mind me answering our experience with Lotte?
I have never seen her "offer" other children to touch her implant-area.
If we want to show it to someone who's interested, she has no problem with that. She will patiently wait and have her hair and head touched.
At home, we don't focus on it... We don't go prevent touching it when we stroke her hair, but we won't do it on purpose. .. LOL... will have to ask her how that feels...
In a larger setting she feels embarrassed. Not by the CI or implant but by the focus on her..

How it is with friends... I don't know. I think the CI is not an issue between them, but like I said... I haven't seen her "showing off" her CI.
-------------
Daredevel7: Yes.. we are careful as well when we wash her hair..... But that's us... she never complained...

DeafCaroline · 09-01-2011, 06:02 PM

If she never offered to show her CI, how does she feel when you want to show it to other people and they want to touch and see? You say she doesn't seem to mind but have you asked her privately how she feels when you want to show it to others?

You brought back a memory of a time when my mother was talking about my new ear level hearings (I just graduated from the horrible Third Boob) and she lifted my hair to show someone and while I smiled politely, inside I was really annoyed. At that time, I was maybe 11 or 12. Then when my mother at another time reached over to pull my hair away to show the hearing aid better, I kinda gave her a look and pulled my head away slightly and she got the hint and never did it again.

Cloggy · 09-01-2011, 06:44 PM

Quote:

Originally Posted by DeafCaroline

If she never offered to show her CI, how does she feel when you want to show it to other people and they want to touch and see? You say she doesn't seem to mind but have you asked her privately how she feels when you want to show it to others?

We just asked her if someone can have a look at her CI. She sometimes doesn't have time for it, and so we let it go. But she doesn't mind the 1 on 1 attention. On the contrairy...
But I'll ask her directly some time.. See what she says.....

Quote:

Originally Posted by DeafCaroline

You brought back a memory of a time when my mother was talking about my new ear level hearings (I just graduated from the horrible Third Boob) and she lifted my hair to show someone and while I smiled politely, inside I was really annoyed. At that time, I was maybe 11 or 12. Then when my mother at another time reached over to pull my hair away to show the hearing aid better, I kinda gave her a look and pulled my head away slightly and she got the hint and never did it again.

I can imagine.... Well done.... I can tell you we have never shown it without asking her first... And sure.... sometimes she might have just "gone with the flow".. but I don't think so as she also just said no.. and we respected that..
Lotte is not at that age yet where you were.. She's 9. Those two-three years make a lot of difference in a girl. (Her sister is 12... so... we have experienced it.)
Lotte is taking over the responsibility for the CI more and more, getting more and more aware that she has CI, and others do not have it.

Caroline:
How long do you have CI.. and when did you take the control over the CI?

DeafCaroline · 09-01-2011, 07:01 PM

Never had a CI so technically I don't belong on this thread. Just what you posted about showing your daughter's CI to others made me want to pipe up.

if my mother asked me in front of other people if I minded, I would have said no because I loved her and didn't want to make her look bad. Like you said, went with the flow but inwardly, I wasn't happy about it. Didn't like feeling like an exhibit.

AlleyCat · 09-01-2011, 07:06 PM

Quote:

Originally Posted by DeafCaroline

Never had a CI so technically I don't belong on this thread. Just what you posted about showing your daughter's CI to others made me want to pipe up.

if my mother asked me in front of other people if I minded, I would have said no because I loved her and didn't want to make her look bad. Like you said, went with the flow but inwardly, I wasn't happy about it. Didn't like feeling like an exhibit.

I totally get that part about feeling like an exhibit. Even at 40 (me) today, when my mom introduces me, she makes a point to over-enunciate and say "This is my DEAF daughter".

I don't understand that. And the people she introduces me to either say stuff like "Oh, I'm so sorry!" or "Oh, you can speak?!" etc. I feel like I should be on display. I HATE HATE HATE it.

**deafskeptic** · 09-01-2011, 07:19 PM

Quote:

Originally Posted by AlleyCat

I totally get that part about feeling like an exhibit. Even at 40 (me) today, when my mom introduces me, she makes a point to over-enunciate and say "This is my DEAF daughter".

I don't understand that. And the people she introduces me to either say stuff like "Oh, I'm so sorry!" or "Oh, you can speak?!" etc. I feel like I should be on display. I HATE HATE HATE it.

I hate hate that this when my dad does the same thing. This post is making my blood pressure boil over.

jillio · 09-01-2011, 07:33 PM

Quote:

Originally Posted by DeafCaroline

If she never offered to show her CI, how does she feel when you want to show it to other people and they want to touch and see? You say she doesn't seem to mind but have you asked her privately how she feels when you want to show it to others?

You brought back a memory of a time when my mother was talking about my new ear level hearings (I just graduated from the horrible Third Boob) and she lifted my hair to show someone and while I smiled politely, inside I was really annoyed. At that time, I was maybe 11 or 12. Then when my mother at another time reached over to pull my hair away to show the hearing aid better, I kinda gave her a look and pulled my head away slightly and she got the hint and never did it again.

Kind of like being put on display, isn't it.

08-30-2011, 11:59 AM	#1 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,541	CI users only Curious, anyone of you who have CI. Do you not mind if someone touches your head or hair where the scars position were? Just curious.

08-30-2011, 02:38 PM	#2 (permalink)
bbaseballboy123 Registered User Join Date: Jan 2011 Location: Connecticut, US Posts: 513	Well, someones gonna have to cut your hair eventually. All kidding aside, are you referring to showing someone your implant/processor and the location of the implant ect? __________________ Deaf and Smart. Business Major at RIT. Have Bi-lateral cochlear implants. But know ASL as well. Working on a new project that will benefit deaf peeps

08-30-2011, 03:14 PM	#6 (permalink)
bbaseballboy123 Registered User Join Date: Jan 2011 Location: Connecticut, US Posts: 513	Sometimes, on heated days, my scar would itch a little. __________________ Deaf and Smart. Business Major at RIT. Have Bi-lateral cochlear implants. But know ASL as well. Working on a new project that will benefit deaf peeps

08-30-2011, 03:54 PM	#14 (permalink)
bbaseballboy123 Registered User Join Date: Jan 2011 Location: Connecticut, US Posts: 513	Nah, it doesnt matter what company or processor it is i dont think. I actually think the AB harmony is lighter? It is larger but I think its lighter than the N5 Everyones sensitivity is different so yeah it could brother him a lot while it doesnt for me. __________________ Deaf and Smart. Business Major at RIT. Have Bi-lateral cochlear implants. But know ASL as well. Working on a new project that will benefit deaf peeps

08-30-2011, 04:35 PM	#15 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 2,028	If i am rough housing its fine as we are playing, the ci tends to fall off anyway or my head gets brushed/hitted (not intentionally) Kids being curious and asks me if they can feel it, its fine Adults rudely touches my hair to look at my CI, that's not fine... bbaseballboy123 likes this.

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08-30-2011, 02:41 PM	#3 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,541	No, for example, like giving you a hug but petting your head or stroking your hair.

08-30-2011, 03:34 PM	#11 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,541	The recent one should be more sensitive than the older one. Thats interesting.

08-30-2011, 03:48 PM	#13 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,541	What if N5 is better on your left, will it be better and less sore??? N5 looks lighter to me. FYI I dont have a CI but my hub is. He got it when he was around 33 yrs old. He has a long history of vertigo, dizziness and nausea so he dislikes it when i touch his sensitve area even though he didnt have CI before. After He had a CI and still dislikes it if i touch his scar. LOL He is working on getting N5 somehow.

08-30-2011, 06:28 PM	#16 (permalink)
Shoshana Registered User Join Date: Jun 2011 Location: West Palm Beach, FLORIDA Posts: 397	Even know im not using my implant I like that area rubbed, It feels really good to have my head there rubbed and my boyfriend is nice to do it bbaseballboy123 and ash345 like this. __________________ SHOSHANA

08-30-2011, 07:35 PM	#17 (permalink)
deafskeptic Premium Member Join Date: Sep 2006 Posts: 14,518	I would certainly mind if people touched my CI out of the blue. I won't mind as much if they ask. __________________ Left ear implanted with Med-El on April 24 2007. Activated on May 9th. Upgraded to Opus 2 9/10/2010 Think Pink. FREE JILLIO!

08-30-2011, 09:35 PM	#18 (permalink)
drphil Registered User Join Date: Jul 2010 Location: Toronto Ontario Posts: 4,169	From reading the above: no itching - left side, no one has tried to take my processor yet. Not bothered yet. Just crossed 4 years. Lucky-so far! Implanted A B Harmony activated Aug/07 __________________ Get Real:Implanted Sunnybrook/Toronto -Advanced Bionics-Harmony activated Aug/07

08-31-2011, 09:03 AM	#20 (permalink)
drphil Registered User Join Date: Jul 2010 Location: Toronto Ontario Posts: 4,169	Travis: what am I confused about- my experiences so far? Implanted A B Harmony activated Aug/07 __________________ Get Real:Implanted Sunnybrook/Toronto -Advanced Bionics-Harmony activated Aug/07

09-01-2011, 02:05 PM	#22 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,541	Jules, you are brave... ha

09-01-2011, 04:25 PM	#23 (permalink)
Daredevel7 Adrenaline Junky Join Date: Aug 2008 Location: Huntsville, AL Posts: 4,341	I'm okay with people touching that area, but I ask the person who washes my hair (in a beauty salon) to back off from that area because she rubs my head really hard (which feels oh so good). I feel like she can somehow push the magnet/internal parts off kilter. But that's just a mental thing.....

09-01-2011, 04:33 PM	#24 (permalink)
Cloggy Registered User Join Date: Feb 2005 Location: Norway Posts: 4,710	Hope you guys and gals don't mind me answering our experience with Lotte? I have never seen her "offer" other children to touch her implant-area. If we want to show it to someone who's interested, she has no problem with that. She will patiently wait and have her hair and head touched. At home, we don't focus on it... We don't go prevent touching it when we stroke her hair, but we won't do it on purpose. .. LOL... will have to ask her how that feels... In a larger setting she feels embarrassed. Not by the CI or implant but by the focus on her.. How it is with friends... I don't know. I think the CI is not an issue between them, but like I said... I haven't seen her "showing off" her CI. ------------- Daredevel7: Yes.. we are careful as well when we wash her hair..... But that's us... she never complained... __________________ . The limits of my language mean the limits of my world. . . . Ludwig Wittgenstein (1889 - 1951) Information about . . . . . . . . . Lotte Sofie . . . . . . . . . How the ear works . . . . . . . . . Parents info . . . . . . . . . Nonsense/ Myths about CI here or here.

09-01-2011, 06:02 PM	#25 (permalink)
DeafCaroline Registered User Join Date: Jul 2007 Posts: 4,889	If she never offered to show her CI, how does she feel when you want to show it to other people and they want to touch and see? You say she doesn't seem to mind but have you asked her privately how she feels when you want to show it to others? You brought back a memory of a time when my mother was talking about my new ear level hearings (I just graduated from the horrible Third Boob) and she lifted my hair to show someone and while I smiled politely, inside I was really annoyed. At that time, I was maybe 11 or 12. Then when my mother at another time reached over to pull my hair away to show the hearing aid better, I kinda gave her a look and pulled my head away slightly and she got the hint and never did it again.

09-01-2011, 07:01 PM	#27 (permalink)
DeafCaroline Registered User Join Date: Jul 2007 Posts: 4,889	Never had a CI so technically I don't belong on this thread. Just what you posted about showing your daughter's CI to others made me want to pipe up. if my mother asked me in front of other people if I minded, I would have said no because I loved her and didn't want to make her look bad. Like you said, went with the flow but inwardly, I wasn't happy about it. Didn't like feeling like an exhibit. jillio likes this.

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