First appointment

LuciaDisturbed · 08-26-2006, 05:37 PM

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?

Damn, I'm anxious!

No anti-CI bullshit, please.

deafdyke · 08-26-2006, 05:55 PM

Quote:

are there questions that I should be asking?

Ask if you think the audi thinks maybe there might be other options that might serve you a little better. Not being anti-CI.......but I do think that the gross majority of potentional implantees should experiment with things like body worn aids and those high frequncy transponder things BEFORE. I say that b/c of my own experiance. I know I don't have a severe or profound loss, but I can remember back in jr high switching from BTEs to ITEs. While wearing the BTEs, I thought I could hear........and I could......but not as well as with my BTEs. If you're just looking for an increase in your spoken word reception, please experiment with alternatives FIRST......

Seattle.guy · 08-26-2006, 05:56 PM

Oh really! That's your choice. I would not want to get a CI for a reason. I enjoy being deaf.... Do you have any insurance that cover CIs?

**highlands** · 08-26-2006, 06:01 PM

Good luck, Disturbedgirl

Quote:

Originally Posted by deafdyke

... worn aids and those high frequncy transponder things BEFORE......

What is high frequency transponder , deafdyke ?

To me, I will be experiencing digitals on monday

. I dislike my analog aid. I want to hear from both sides so I would like to get two digital hearing aids.

Yes, CI must be the last choice , I suppose.. because it requires to 'kill' all the residual hearing of a person with hearing loss. Really a serious issue.

LuciaDisturbed · 08-26-2006, 06:01 PM

Quote:

Originally Posted by deafdyke

Ask if you think the audi thinks maybe there might be other options that might serve you a little better. Not being anti-CI.......but I do think that the gross majority of potentional implantees should experiment with things like body worn aids and those high frequncy transponder things BEFORE. I say that b/c of my own experiance. I know I don't have a severe or profound loss, but I can remember back in jr high switching from BTEs to ITEs. While wearing the BTEs, I thought I could hear........and I could......but not as well as with my BTEs. If you're just looking for an increase in your spoken word reception, please experiment with alternatives FIRST......

I wore HAs up til I was 10 or so, and then I no longer had enough hearing to benefit from HAs anymore. I was told I could get CIs when I was around 10, but we never went through with it because my dad did not want to pursue it, saying he didn't want to shell out the money for it (he does have the money). I dunno what high frequency transponder things are...my hearing loss is VERY profound now, I have not heard a sound since my last year of high school.

I know you mean well, and thank you. I like that you can discuss this subject in a mature way, so I do appreciate it.

LuciaDisturbed · 08-26-2006, 06:02 PM

Quote:

Originally Posted by Seattle.guy

Oh really! That's your choice. I would not want to get a CI for a reason. I enjoy being deaf.... Do you have any insurance that cover CIs?

Medicare and Medicaid along with VR.

**Foxrac** · 08-26-2006, 06:03 PM

Quote:

Originally Posted by LuciaDisturbed

I wore HAs up til I was 10 or so, and then I no longer had enough hearing to benefit from HAs anymore. I was told I could get CIs when I was around 10, but we never went through with it because my dad did not want to pursue it, saying he didn't want to shell out the money for it (he does have the money). I dunno what high frequency transponder things are...my hearing loss is VERY profound now, I have not heard a sound since my last year of high school.

I know you mean well, and thank you. I like that you can discuss this subject in a mature way, so I do appreciate it.

True, I agree with you.

LuciaDisturbed · 08-26-2006, 06:03 PM

Quote:

Originally Posted by Highlands

Good luck, Disturbedgirl

Yes, CI must be the last choice , I suppose.. because it requires to 'kill' all the residual hearing of a person with hearing loss. Really a serious issue.

Thanks!

I have basically no hearing left at all now, so it won't really matter, I really have nothing to lose.

SxyPorkie · 08-26-2006, 06:04 PM

Quote:

Originally Posted by LuciaDisturbed

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?

Damn, I'm anxious!

No anti-CI bullshit, please.

Wow.. thats what you always want CI... I wish you bestest luck..
SxyPorkie

LuciaDisturbed · 08-26-2006, 06:06 PM

Quote:

Originally Posted by SxyPorkie

Wow.. thats what you always want CI... I wish you bestest luck..
SxyPorkie

Thank you, SxyPorkie.

Oceanbreeze · 08-26-2006, 06:13 PM

Quote:

Originally Posted by LuciaDisturbed

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?

Damn, I'm anxious!

No anti-CI bullshit, please.

I wish you the best, Lucia. Unfortunately, I can't answer your questions that intelligently, but I hope it goes well for you.

LakeTahoe · 08-26-2006, 06:34 PM

For 1st appt you'll have hearing tests. I am not sure what else. I don't remember! It has been while since I had the tests! OH GOSH! I am sure you'll be just fine!

also they'll set up an appt for cat scan to check your cochelar and see if it is ok to get CI or not. Then after that I think 3 or 4 appt before surgery. SOOOO GOOD LUCK!!!

LuciaDisturbed · 08-26-2006, 06:39 PM

Quote:

Originally Posted by LakeTahoe

For 1st appt you'll have hearing tests. I am not sure what else. I don't remember! It has been while since I had the tests! OH GOSH! I am sure you'll be just fine!

also they'll set up an appt for cat scan to check your cochelar and see if it is ok to get CI or not. Then after that I think 3 or 4 appt before surgery. SOOOO GOOD LUCK!!!

Thanks LakeTahoe. I already have an audiogram from my audie from a couple months ago, I guess I should bring it...

LakeTahoe · 08-26-2006, 06:43 PM

Ya can but they'll give you test such as listen to speech, sound etc. I hated it when they gave me test when I have to LISTEN to a MAN voice. BOY! It was HARD to understand. But I did well though.

Quote:

Originally Posted by LuciaDisturbed

Thanks LakeTahoe. I already have an audiogram from my audie from a couple months ago, I guess I should bring it...

Tousi · 08-26-2006, 06:48 PM

All the best to you on this journey, Lucia....are you wanting 2 of them like you said in your initial post?

LuciaDisturbed · 08-26-2006, 06:52 PM

Quote:

Originally Posted by Tousi

All the best to you on this journey, Lucia....are you wanting 2 of them like you said in your initial post?

Thanks!

I do want 2 but I highly doubt that Medicare and Medicaid will cover 2...I will see if I can find out at my appointment. If I can only have 1 I will accept that.

Tousi · 08-26-2006, 07:04 PM

Quote:

Originally Posted by LuciaDisturbed

Thanks!

I do want 2 but I highly doubt that Medicare and Medicaid will cover 2...I will see if I can find out at my appointment. If I can only have 1 I will accept that.

Yeah, if'n ya kin git two, well, then, I reckon y'all have stereo! LOL!

LuciaDisturbed · 08-26-2006, 07:05 PM

Quote:

Originally Posted by Tousi

Yeah, if'n ya kin git two, well, then, I reckon y'all have stereo! LOL!

Hee hee!

deafdyke · 08-26-2006, 09:03 PM

Quote:

What is high frequency transponder

They are hearing aids that somehow only amplfy the high frequncies....not really sure how they do it, and I don't have too much info on it....just heard about it a few years ago.
Lucia........do you have a progressive loss? Were you able to hear well (ie some speech) with hearing aids when you had them?
I'd definitly go for it..........CIs are supposed to be very very very good for those with progressive loss.
And yeah, you'll only get one CI for now, if you're depending on public funding. There's very little evidence that a second CI really improves things all that much (basicly just localizing sound and better hearing in noise)

LuciaDisturbed · 08-26-2006, 09:10 PM

Quote:

Originally Posted by deafdyke

They are hearing aids that somehow only amplfy the high frequncies....not really sure how they do it, and I don't have too much info on it....just heard about it a few years ago.
Lucia........do you have a progressive loss? Were you able to hear well (ie some speech) with hearing aids when you had them?
I'd definitly go for it..........CIs are supposed to be very very very good for those with progressive loss.
And yeah, you'll only get one CI for now, if you're depending on public funding. There's very little evidence that a second CI really improves things all that much (basicly just localizing sound and better hearing in noise)

Well I don't think the high frequency transponder will work for me. I think my loss was progressive, because I was wearing hearing aids up until I was 10 years old.

sr171soars · 08-26-2006, 09:11 PM

Quote:

Originally Posted by LuciaDisturbed

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?
...

Best success on your visit.

If I recall from my visit a while ago, it is mostly a battery of hearing tests and determining your hearing background.

**TweetyBird** · 08-26-2006, 09:20 PM

ahh good lucky!

LuciaDisturbed · 08-26-2006, 09:24 PM

Quote:

Originally Posted by TweetyBird

ahh good lucky!

Thanks, Tweety!

moonflower · 08-26-2006, 09:24 PM

good luck with things with progress smile

greema · 08-26-2006, 09:39 PM

whoo hoo! go, lucia, go! and I wish you the best!

LuciaDisturbed · 08-26-2006, 09:41 PM

Quote:

Originally Posted by greema

whoo hoo! go, lucia, go! and I wish you the best!

Thanks Greema and Moonflower!

Yeah, I'm anxious!

deafdyke · 08-27-2006, 12:09 AM

Yeah, I know from your descritpion that a high frequncy transponder prolly wouldn't work. It does work in cases where there is residual hearing......but seeing as you have none, I'd think that you're a perfect shoo-in. I know some implant centers refuse to implant adults who've been deaf for a wicked long time, but you do have the fact that you had a progressive loss on your side. Definitly good luck!

R2D2 · 08-27-2006, 12:26 AM

Quote:

Originally Posted by LuciaDisturbed

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?

Damn, I'm anxious!

No anti-CI bullshit, please.

Congrats on getting the ball rolling! Yes it's basically a battery of tests and you may also be advised as to realistic expectations of the process etc. My audie told me to remember that it would sound terrible to begin with and then it would improve from there and this has exactly been the case.

Let us know how you get on - it's only next week!!!

LuciaDisturbed · 08-27-2006, 08:57 AM

Quote:

Originally Posted by deafdyke

Yeah, I know from your descritpion that a high frequncy transponder prolly wouldn't work. It does work in cases where there is residual hearing......but seeing as you have none, I'd think that you're a perfect shoo-in. I know some implant centers refuse to implant adults who've been deaf for a wicked long time, but you do have the fact that you had a progressive loss on your side. Definitly good luck!

Thanks, DD!

deafdyke · 08-27-2006, 02:22 PM

Oh.....another good question......what hearing levels are you hoping to acheive? Have you really really thought it over? Are you positive that you're not falling for the hype that some people have? These are basicily just rhetorical questions........I hope you get implanted, and I hope you get some hearing.....that would be cool!

08-26-2006, 05:37 PM	#1 (permalink)
LuciaDisturbed Registered User Join Date: May 2006 Location: San Antonio, Texas Posts: 7,733	First appointment I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking? Damn, I'm anxious! No anti-CI bullshit, please. __________________ "Those who cannot remember the past are condemned to repeat it." - Philosopher George Santayana. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom My own CI experience, my views on CI and ASL and Deaf Culture and Society DeviantArt

08-26-2006, 06:34 PM	#12 (permalink)
LakeTahoe Registered User Join Date: Mar 2004 Location: Lost somewhere in the outer space!! Help me to find my way back home to earth!! Posts: 14,205	For 1st appt you'll have hearing tests. I am not sure what else. I don't remember! It has been while since I had the tests! OH GOSH! I am sure you'll be just fine! also they'll set up an appt for cat scan to check your cochelar and see if it is ok to get CI or not. Then after that I think 3 or 4 appt before surgery. SOOOO GOOD LUCK!!! __________________

08-26-2006, 09:20 PM	#22 (permalink)
TweetyBird ... Join Date: Dec 2003 Posts: 21,496	ahh good lucky! __________________ If you interesting order Scentsy and Pls click my website here www.scentsy.com/FaithLove.. thanks

08-26-2006, 09:39 PM	#25 (permalink)
greema Registered User Join Date: May 2006 Posts: 605	whoo hoo! go, lucia, go! and I wish you the best! __________________ The highest result of education is tolerance. -- Helen Keller

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08-26-2006, 05:56 PM	#3 (permalink)
Seattle.guy Registered User Join Date: Mar 2006 Location: West Coast Posts: 1,367	Oh really! That's your choice. I would not want to get a CI for a reason. I enjoy being deaf.... Do you have any insurance that cover CIs?

08-26-2006, 06:48 PM	#15 (permalink)
Tousi Registered User Join Date: Apr 2003 Posts: 15,731	All the best to you on this journey, Lucia....are you wanting 2 of them like you said in your initial post?

08-26-2006, 09:24 PM	#24 (permalink)
moonflower Registered User Join Date: Jul 2005 Location: Washtenaw County, Michigan Posts: 5,762	good luck with things with progress smile

08-27-2006, 12:09 AM	#27 (permalink)
deafdyke Registered User Join Date: Mar 2003 Location: Trebekistan Posts: 13,078	Yeah, I know from your descritpion that a high frequncy transponder prolly wouldn't work. It does work in cases where there is residual hearing......but seeing as you have none, I'd think that you're a perfect shoo-in. I know some implant centers refuse to implant adults who've been deaf for a wicked long time, but you do have the fact that you had a progressive loss on your side. Definitly good luck!

08-27-2006, 02:22 PM	#30 (permalink)
deafdyke Registered User Join Date: Mar 2003 Location: Trebekistan Posts: 13,078	Oh.....another good question......what hearing levels are you hoping to acheive? Have you really really thought it over? Are you positive that you're not falling for the hype that some people have? These are basicily just rhetorical questions........I hope you get implanted, and I hope you get some hearing.....that would be cool!