First appointment - Page 2

Tousi · 08-27-2006, 03:35 PM

Also, I think it'd be cool, too, IF you have some or a lot of auditory memory to discern speech. I assume that's what your'e after, right?

LuciaDisturbed · 08-27-2006, 03:44 PM

Quote:

Originally Posted by deafdyke

Oh.....another good question......what hearing levels are you hoping to acheive? Have you really really thought it over? Are you positive that you're not falling for the hype that some people have? These are basicily just rhetorical questions........I hope you get implanted, and I hope you get some hearing.....that would be cool!

I won't be expecting a lot..probably just enviromental noises and possibly music (I know I won't understand speech or words, though). I've been thinking about this for like 5 years now. I have just recently decided that it is time to get the ball rolling and hopefully make it a reality.

deafdyke · 08-27-2006, 04:36 PM

AWESOME!!!!!! AWESOME.....sounds like you've got a really realistic handle on this!!! WOOHOO......for once we don't have a Hearing Exchanger or a "I gotta upgrade b/c it's the latest thing! Hearing aids are so 20th Century!" type.

Oceanbreeze · 08-27-2006, 04:55 PM

Quote:

Originally Posted by LuciaDisturbed

I won't be expecting a lot..probably just enviromental noises and possibly music (I know I won't understand speech or words, though). I've been thinking about this for like 5 years now. I have just recently decided that it is time to get the ball rolling and hopefully make it a reality.

Be hopeful, though. With training, you could learn to understand speech. I think it's worth doing!

Good luck!

Oceanbreeze · 08-27-2006, 04:59 PM

Quote:

Originally Posted by deafdyke

AWESOME!!!!!! AWESOME.....sounds like you've got a really realistic handle on this!!! WOOHOO......for once we don't have a Hearing Exchanger or a "I gotta upgrade b/c it's the latest thing! Hearing aids are so 20th Century!" type.

DD, I've chatted with her, and I feel comfortable in speaking about this. She has a very profound loss and HAs don't work for her anymore. She just wants to be able to hear what she can hear since the HAs are useless to her now. If she can get even the slightest benefit from it, I think it's worth doing.

She is hardly the militant, you're making her out to be.

Cloggy · 08-27-2006, 05:14 PM

Quote:

Originally Posted by LuciaDisturbed

I won't be expecting a lot..probably just enviromental noises and possibly music (I know I won't understand speech or words, though). I've been thinking about this for like 5 years now. I have just recently decided that it is time to get the ball rolling and hopefully make it a reality.

Congrats on your decision. On your "CI" journey you will feel more and more if this is the way to go for you or not.
Main thing is to start the journey and you just did just that!!.

Regarding the first steps, that will probably be registering how bad you actually hear, condition of your sensory nerves and codition of the cochlea (using scnning).
But then, you allreqady mentioned that you were a candidate, so I guess that it's more a formal "checkup ".
Enjoy the attention!

lilylover72 · 08-27-2006, 05:32 PM

I wish you a best! Smile!

R2D2 · 08-27-2006, 06:43 PM

Quote:

Originally Posted by deafdyke

for once we don't have a Hearing Exchanger or a "I gotta upgrade b/c it's the latest thing! Hearing aids are so 20th Century!" type.

"For once"....is that just hyperbole or do you really believe that the majority of people only get CIs to be trendy?

And what is a "Hearing Exchanger?"

Boult · 08-27-2006, 07:26 PM

Quote:

Originally Posted by R2D2

"For once"....is that just hyperbole or do you really believe that the majority of people only get CIs to be trendy?

And what is a "Hearing Exchanger?"

"Hearing Exchanger" (to describe a member of Hearing Exchange at hearingexchange.com ) like we call those member of AD as "ADer"

Yes I agree it is hyberbole to blah blah this stuff... this is because she was kicked out of HE and banned. so you can say she has grudge against those...

I find HE harmless... I would agree with the owner of HE that DD knows nothing because she does not have one or experience one. I do, the owner do and you do.

R2D2 · 08-27-2006, 07:42 PM

Ohhhhh! Okay. I was beginning to think a "Hearing Exchanger" was someone who exchanged one form of hearing for another in order to be trendy

I'm glad I asked.

LuciaDisturbed · 08-27-2006, 08:34 PM

Quote:

Originally Posted by Cloggy

Congrats on your decision. On your "CI" journey you will feel more and more if this is the way to go for you or not.
Main thing is to start the journey and you just did just that!!.

Regarding the first steps, that will probably be registering how bad you actually hear, condition of your sensory nerves and codition of the cochlea (using scnning).
But then, you allreqady mentioned that you were a candidate, so I guess that it's more a formal "checkup ".
Enjoy the attention!

Yeah. I know I was told I was a possible candidate when I was 10 (never went through the whole battery of tests) so...I feel I owe it to myself to find out for sure and to get the ball rolling, at least.

Fragmenter · 08-27-2006, 09:35 PM

Quote:

Originally Posted by Seattle.guy

I would not want to get a CI for a reason. I enjoy being deaf....

*golf clap* Good for you.

Anyway, Lucia, ask your surgeon how many CI operations he has under his belt.

Good luck!

LuciaDisturbed · 08-27-2006, 09:36 PM

Quote:

Originally Posted by Fragmenter

*golf clap* Good for you.

Anyway, Lucia, ask your surgeon how many CI operations he has under his belt.

Good luck!

Thanks!

Foxrac · 08-27-2006, 09:37 PM

Good luck for get CI... It wasn't too longer to make all approve with CI and get surgery date.

08-27-2006, 10:26 PM

Hey thats great!! Good Luck to you LuciaDisturbed. When you go, you'll get a full blown hearing tests of many kinds & a Cat Scan. When I took my wife there. They pretty much explained everything to you. Once again good luck to you

Quote:

Originally Posted by LuciaDisturbed

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?

Damn, I'm anxious!

No anti-CI bullshit, please.

deafdyke · 08-28-2006, 12:43 AM

Quote:

If she can get even the slightest benefit from it, I think it's worth doing.

She is hardly the militant, you're making her out to be

I never said she was a militant. It's just that I have seen some posts and people that almost sound like they are selling it. Especially now that the've loosened the canidancy requirments.
Boult..........I don't have a CI yes, but you know what? I AM hoh....I have been hoh my entire life. I'm not anti-CI......I just think people should be highly skeptical of CIs, just the way that they should be highly skeptical of anything!

Malfoyish · 08-28-2006, 10:24 AM

DO make sure you have your meningitis immunizations, and ensure that they do not use any spacers of any kind in your surgery...

Otherwise, I can't think of anything that no one has covered already in this thread...do make sure that this is what you want though - no straddling the fence on this one.

Best of luck to you, Lucia and feel free to ask me anything you'd like...I have mine since early 2002.

LuciaDisturbed · 08-28-2006, 10:27 AM

Quote:

Originally Posted by Malfoyish

DO make sure you have your meningitis immunizations, and ensure that they do not use any spacers of any kind in your surgery...

Otherwise, I can't think of anything that no one has covered already in this thread...do make sure that this is what you want though - no straddling the fence on this one.

Best of luck to you, Lucia and feel free to ask me anything you'd like...I have mine since early 2002.

I don't wanna sound stupid, but what are spacers?

Nope, I am not straddling on the fence.

Thanks!

Oceanbreeze · 08-28-2006, 11:17 AM

Quote:

Originally Posted by deafdyke

I never said she was a militant. It's just that I have seen some posts and people that almost sound like they are selling it. Especially now that the've loosened the canidancy requirments.
Boult..........I don't have a CI yes, but you know what? I AM hoh....I have been hoh my entire life. I'm not anti-CI......I just think people should be highly skeptical of CIs, just the way that they should be highly skeptical of anything!

Eh, you have your opinion. But, Lucia has done her homework. She is aware of what she is getting into. She pretty much has made up her mind this is what she wants. Therefore, no amount of "skeptism" from us is gonna change her mind.

I don't always disagree with you, DD. You know that. However, I'm for CHOICE. She's made her choice, so I really think she is better served if she is supported; rather than have people tell her a bunch of crap she probably already knows.

Y · 08-28-2006, 11:27 AM

Quote:

Originally Posted by Tousi

Also, I think it'd be cool, too, IF you have some or a lot of auditory memory to discern speech. I assume that's what your'e after, right?

That's a Very Good Question here.

Freaky Cat · 08-28-2006, 12:10 PM

yeah the audiologist said high frequency transponder wont work for me as mine is progessive loss so cant use that..

i remmy at my first appt- i had the audiogram then talk to the dr and he said prolly will implant on the left as there is no useable hearing then i had the ct-scan as they were not busy so i was lucky to get in same day! wow! but i had to wait 3 weeks then come in for balance tests then within few days i got the results in mail. i have to come back to DR this thurs and we will talk more about how I am doing iwth the treatment and did it help any?? i know we will talk about CI again cuz my hearing still go then come back.. its so damn frustrating.. i cant stand not be able to hear one day then next day i can hear? wtf? this is annoying, im serious.. then after that i dont know what will happen?? will find out..

but be sure to ask alot of questions if you want to know more.. research online and write down any questions so you can ask the ENT.. all i can say is GOOD LUCK!

Freaky Cat · 08-28-2006, 12:26 PM

Quote:

Originally Posted by Y

That's a Very Good Question here.

http://www.alldeaf.com/hearing-aids-...surgery-2.html

Quote:
Originally Posted by Cloggy
News to me!!
Where, when.... need info

DO you have some papers / studies you can send me about that?

Here is one link I found...Cochlear implants' performance not affected by amount of hearing loss in the implanted earhttp://www.medicalnewstoday.com/medicalnews.php?newsid=30040

Y · 08-28-2006, 01:23 PM

Quote:

Originally Posted by Tousi

Also, I think it'd be cool, too, IF you have some or a lot of auditory memory to discern speech. I assume that's what your'e after, right?

That's a Good Question (And I would like to see
Lucia's response to Tousi about this. Thank you)

LuciaDisturbed · 08-28-2006, 01:25 PM

Quote:

Originally Posted by Tousi

Also, I think it'd be cool, too, IF you have some or a lot of auditory memory to discern speech. I assume that's what your'e after, right?

I don't expect to understand speech. I am keeping my expectations low. I do hope, though, to hear enviromental noises and possibly music, but not words or speech.

Hondu · 08-28-2006, 02:02 PM

Lucia:

I just started the process that you are about to go thru. My first appointment was with the audiologist Monday of last week. She did the normal tones test in each ear, with and without hearing aids. Then she tried words but I could not repeat any, so that part came to an end very quickly. Then she did a couple of other test which I don't recall the names of. One of them involved air pressure in the ears. From there we went into her office and she explained the results and then one by one she explained each of the 3 CIs. I got to see and handle these items. I put the processors on my ear just to see how they feel so that I could make a decision on which one I want. The whole visit was about 2 hours. By the way, it was requested, and I did send in prior to my appointment, all my audigrams for the past 26 years. Well, at least those that I could find. They are help to the audi in looking at the history of one's hearing loss.

Next day, I met with the ENT surgeon and he checked my ears, nose and thoat. Asked me many questions and I had my list of questions that he answered thoroughly. My hearing loss is progressive over the last 26 years and now hearing aids help me about 2%. I have progressive, profound, sensorineural loss. The surgeon explained how the surgery works and one thing that was of interest to me is that they do not use gas to put a patient out. The anesthesia is administered intraveniously. By the way, I got my meningitis shot the same time.

That completed PHASE 1.

For PHASE 2
This week I am going to a auditory-verbal therapist. This auditory/verbal evaluation assesses (a) the affects of hearing loss on a patient's listening skills at home, work, and educational setting (b) possible benefits of a CI, and(c) the need for hearing therapy or hearing and speech therapy after the CI is activated.

Next week, I go back to the audiologist for a videonystagmography which is basically balance testing.

Later in September, I have an appointment with a neuropsychologist. This evaluation is to obtain info regarding overall cognitive, adaptive, vocational and emotional functioning relevant to pre-operative concerns.

The last part of phase 2 is the MRI

Hope this info help.

LuciaDisturbed · 08-28-2006, 02:07 PM

Thanks, Hondu!

MilitaryGirl83 · 08-28-2006, 02:52 PM

Congrats Luica!!! i will be here for you all the way!

LuciaDisturbed · 08-28-2006, 03:03 PM

Quote:

Originally Posted by FelixKat930

Congrats Luica!!! i will be here for you all the way!

deafdyke · 08-28-2006, 05:23 PM

Quote:

But, Lucia has done her homework. She is aware of what she is getting into. She pretty much has made up her mind this is what she wants. Therefore, no amount of "skeptism" from us is gonna change her mind.

I know that.....and it wasn't my intention to change her mind. She does sound like a perfect canidate. I totally support her....and she's got realistic expectations etc......I'm not bashing her. I think this is a great choice for her!
Lucia.......did you have any speech perception with hearing aids when you were younger? Or was it mostly enviormental sounds etc?

LuciaDisturbed · 08-28-2006, 05:28 PM

Quote:

Originally Posted by deafdyke

I know that.....and it wasn't my intention to change her mind. She does sound like a perfect canidate. I totally support her....and she's got realistic expectations etc......I'm not bashing her. I think this is a great choice for her!
Lucia.......did you have any speech perception with hearing aids when you were younger? Or was it mostly enviormental sounds etc?

I would have to say mostly enviromental sounds. Occassionally I could hear my mother's voice but I never understood speech. I can readlip a little and speak some, but only people who know me well will understand me. If you never met me IRL, you will NOT understand my speech unless it's something like "bathroom" or "thank you" which I can say very well.

08-27-2006, 07:42 PM	#40 (permalink)
R2D2 Retired from All Deaf! Join Date: Dec 2005 Location: Australia Posts: 2,605	Ohhhhh! Okay. I was beginning to think a "Hearing Exchanger" was someone who exchanged one form of hearing for another in order to be trendy I'm glad I asked. __________________ Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths

08-27-2006, 09:37 PM	#44 (permalink)
Foxrac DOMESTIC DISSENT HUNTER Join Date: Mar 2005 Posts: 18,158	Good luck for get CI... It wasn't too longer to make all approve with CI and get surgery date. __________________

08-28-2006, 12:10 PM	#51 (permalink)
Freaky Cat Happy Spring :) Join Date: Apr 2003 Location: ArKaNsAs Posts: 10,215	yeah the audiologist said high frequency transponder wont work for me as mine is progessive loss so cant use that.. i remmy at my first appt- i had the audiogram then talk to the dr and he said prolly will implant on the left as there is no useable hearing then i had the ct-scan as they were not busy so i was lucky to get in same day! wow! but i had to wait 3 weeks then come in for balance tests then within few days i got the results in mail. i have to come back to DR this thurs and we will talk more about how I am doing iwth the treatment and did it help any?? i know we will talk about CI again cuz my hearing still go then come back.. its so damn frustrating.. i cant stand not be able to hear one day then next day i can hear? wtf? this is annoying, im serious.. then after that i dont know what will happen?? will find out.. but be sure to ask alot of questions if you want to know more.. research online and write down any questions so you can ask the ENT.. all i can say is GOOD LUCK! __________________ When you miss me just look up to the night sky and remember, I'm like a star; sometimes you can't see me, but I'm always there! Freaky Cat's Blog

08-28-2006, 02:07 PM	#56 (permalink)
LuciaDisturbed Amateur Psychiatrist Join Date: May 2006 Location: San Antonio, Texas Posts: 6,658	Thanks, Hondu! __________________ "Those who cannot remember the past are condemned to repeat it." - Philosopher George Santayana. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom My own CI experience, my views on CI and ASL and Deaf Culture and Society DeviantArt

08-28-2006, 02:52 PM	#57 (permalink)
MilitaryGirl83 ~I support our troops~ Join Date: Jun 2003 Location: My heart belongs to the beach~ Posts: 3,548	Congrats Luica!!! i will be here for you all the way! __________________ ~My Heart is taken by a soldier~ <3 <3 <3

08-27-2006, 03:35 PM	#31 (permalink)
Tousi Registered User Join Date: Apr 2003 Posts: 9,574	Also, I think it'd be cool, too, IF you have some or a lot of auditory memory to discern speech. I assume that's what your'e after, right?

Today
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08-27-2006, 04:36 PM	#33 (permalink)
deafdyke So NOT a Princess! Join Date: Mar 2003 Location: Trebekistan Posts: 7,495	AWESOME!!!!!! AWESOME.....sounds like you've got a really realistic handle on this!!! WOOHOO......for once we don't have a Hearing Exchanger or a "I gotta upgrade b/c it's the latest thing! Hearing aids are so 20th Century!" type.

08-27-2006, 05:32 PM	#37 (permalink)
lilylover72 I love purple! Join Date: Mar 2006 Location: USA Posts: 2,939	I wish you a best! Smile!

08-28-2006, 10:24 AM	#47 (permalink)
Malfoyish Keepin' it real... Join Date: Jan 2004 Location: New York Posts: 2,657	DO make sure you have your meningitis immunizations, and ensure that they do not use any spacers of any kind in your surgery... Otherwise, I can't think of anything that no one has covered already in this thread...do make sure that this is what you want though - no straddling the fence on this one. Best of luck to you, Lucia and feel free to ask me anything you'd like...I have mine since early 2002.

08-28-2006, 02:02 PM	#55 (permalink)
Hondu Registered User Join Date: Aug 2006 Posts: 14	Lucia: I just started the process that you are about to go thru. My first appointment was with the audiologist Monday of last week. She did the normal tones test in each ear, with and without hearing aids. Then she tried words but I could not repeat any, so that part came to an end very quickly. Then she did a couple of other test which I don't recall the names of. One of them involved air pressure in the ears. From there we went into her office and she explained the results and then one by one she explained each of the 3 CIs. I got to see and handle these items. I put the processors on my ear just to see how they feel so that I could make a decision on which one I want. The whole visit was about 2 hours. By the way, it was requested, and I did send in prior to my appointment, all my audigrams for the past 26 years. Well, at least those that I could find. They are help to the audi in looking at the history of one's hearing loss. Next day, I met with the ENT surgeon and he checked my ears, nose and thoat. Asked me many questions and I had my list of questions that he answered thoroughly. My hearing loss is progressive over the last 26 years and now hearing aids help me about 2%. I have progressive, profound, sensorineural loss. The surgeon explained how the surgery works and one thing that was of interest to me is that they do not use gas to put a patient out. The anesthesia is administered intraveniously. By the way, I got my meningitis shot the same time. That completed PHASE 1. For PHASE 2 This week I am going to a auditory-verbal therapist. This auditory/verbal evaluation assesses (a) the affects of hearing loss on a patient's listening skills at home, work, and educational setting (b) possible benefits of a CI, and(c) the need for hearing therapy or hearing and speech therapy after the CI is activated. Next week, I go back to the audiologist for a videonystagmography which is basically balance testing. Later in September, I have an appointment with a neuropsychologist. This evaluation is to obtain info regarding overall cognitive, adaptive, vocational and emotional functioning relevant to pre-operative concerns. The last part of phase 2 is the MRI Hope this info help.

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