We have a surgery date !!!!

deafdyke said:
Lucia we agree. I'm not being obtuse. I'm just saying what I'm saying due to some audi experts who seem to think that dhh kids need to be amplified to the max from the very second of diaganosis. That's all............
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That's not the case here and and it's not always the case. BTW, CIs aren't amplified like HAs. Goes to show how much you really know about CIs. You don't know everything.
 
Deafdyke, I want to emphasize that ashley is Deaf and Blind and also her mother didn't bilateral implanted her very second she was diagnosed she waited for a year before getting 2nd pair of ci implanted to see how well she did with one and she came so far with ci when ha she didnt. So she made decision to get other ear implanted to help localize sound and its critical for Deaf and Blind to be able to localize sound.
 
Lucia, I know that CIs don't work like HAs. I'm just using the term "amplification" as a catchall for both CIs and HAs. I've heard audis use that expression before, that's all.
And I definitly think that it's awesome and vital for deaf-blind or deaf and other multiple handicapped kids to get the max intervention possible.
A second CI will really really help her.
 
Best wishes to you, your family and most of all to Ashley. Please let us know how it goes.
 
Thanks for all of the support. We are getting excited. We had her left ear tested to make sure there was no change in her hearing. It was the same. She can get 80 to 90 db all low tones. She had no response to high tones at all. We will be getting the new inside and new processor from Med-El. Only one week to go!! Thanks again for the support and encouragement.
 
Well, we go to the audi tomorrow. She will be doing a re-map for her first implant and checking Ashley's ears to make sure they look good. We had new programs put on her implant and when we got home I discovered a short in her coil wire. She hated the new map. Her audi wants to check it just to be sure the short didn't mess with the new map. Only 3 days to surgery. I hope this one goes as smooth as the first one. She will be getting the Med-El Sonata and the Opus 1 processor.
 
Ashleysmommy,

I'm so excited for you and Ashley and can't wait to "hear" all about Ashley's experiences with bilateral CIs. I will be thinking of you both over the next several days. :)
 
Surgery went very well. We have had a few bumpy spots to overcome. Ashley has refused to drink anything from a bottle. The bottle was her best friend. She will not take anything from a sippy cup. I have to make her take sips of juice. Milk is a real no no. She was sick after from the anesthesia and pain meds. I think she is associating the bottle and milk with making her sick. She is eating tons of baby food. This is good but I worry about the drinking. She is playing and running around outside like her old self. Her doc was very pleased with the surgery. We have a post op on Tuesday. I guess she has to figure out that now her sippy cup is her friend. I let her play with it in hopes that will help. Did anyone else have issues eating or getting the little ones to eat after surgery? Thanks for the well wishes.
 
That's great to hear the surgery went well :)

With the water issue, what about giving her food with high water content such as watermelon or icecubes to suck? Or even an ice pole? I remember you said that she has food sensory issues related to her prematurity so that could be an issue?
 
She is sooooo picky. I have been giving her all kinds of foods. Lot of fruits for the water. She is staying hydrated so far. Surgery went great. She was just sick afterward. I think that is what turned her off to her bottle. She was under for 4 hours. She didn't get her reflux meds the morning of or evening after surgery. Meds upset her tummy too. She is fine now all but the drinking thing. It too will pass I am sure.
 
ashleysmommy said:
Just wanted to share the great news. Ashley has been found a candidate for her second implant. Her doc called this morning to set a date. We are scheduled for Feb. 13. We still need to go to the audi appointment tomorrow. This is more for my benefit than theirs. I requested another test to be absolutely sure her hearing has not changed in her left ear. I don't fell that it has but I like to see it on paper. I am confident that this will help her so much in school and at home. She has such a hard time with localization because of her eyesight. This will keep her from having to work so hard to find the sounds. She has grown so much. Sorry just wanted to share.
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wow
 
Ashley is doing great. She was up playing the day after we got home from the hospital. She still refuses to drink anything. I am keeping her hydrated with fruits and foods with high water content. She is eating very good now. She is taking in 850 to 1000 calories a day. Developmental specialist said to keep it at 850 or better. We need her to gain some weight. She is a skinny mini for her age. She gets part of that from daddy. Activation is on March the 12th. We went to have her left implant fine tuned so we can focus on the new one. That went very well. She was kinda all over the place in her booth test. She did hear the audi's voice at 10 and 15 db consistently she said. She showed some improvements from a month ago so that was good news too. Sorry to ramble. Can't wait to see what she thinks of her new implant!! She has surprised all of us with the first one.
 
It has had it's bumps. She bounces back pretty fast. Sometimes literally. She is going almost 24/7. She hates to sleep. I guess she is scared she will miss something. Thanks for the well wishes.
 
We found out that a rep from Med-El is supposed to be at Ashley's activation. We had a scare the other day. Her old coil accidentally made it to the new implant. I found out the hard way that it will talk to the new implant as well as the old one. She got 100% full volume in her new ear. OUCH!!! She was so scared. It only stayed there for a couple of seconds but that was enough. The way I understand is when we upgrade to the new processor we will not have this problem. They only talk to the implant they are paired with I guess. I hope so any way. That was not fun for her. I tested her a while later with the implant off. I put the coil on the new implant to see if she would have a bad reaction and she didn't mind it being there. I hope all goes well on Wednesday for her activation. She retains so much now.
 
ashleysmommy said:
We found out that a rep from Med-El is supposed to be at Ashley's activation. We had a scare the other day. Her old coil accidentally made it to the new implant. I found out the hard way that it will talk to the new implant as well as the old one. She got 100% full volume in her new ear. OUCH!!! She was so scared. It only stayed there for a couple of seconds but that was enough. The way I understand is when we upgrade to the new processor we will not have this problem. They only talk to the implant they are paired with I guess. I hope so any way. That was not fun for her. I tested her a while later with the implant off. I put the coil on the new implant to see if she would have a bad reaction and she didn't mind it being there. I hope all goes well on Wednesday for her activation. She retains so much now.
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I would hope so too. Let us know how it goes on Wednesday. We'd like to hear about it. :)
 
ashleysmommy said:
We found out that a rep from Med-El is supposed to be at Ashley's activation. We had a scare the other day. Her old coil accidentally made it to the new implant. I found out the hard way that it will talk to the new implant as well as the old one. She got 100% full volume in her new ear. OUCH!!! She was so scared. It only stayed there for a couple of seconds but that was enough. The way I understand is when we upgrade to the new processor we will not have this problem. They only talk to the implant they are paired with I guess. I hope so any way. That was not fun for her. I tested her a while later with the implant off. I put the coil on the new implant to see if she would have a bad reaction and she didn't mind it being there. I hope all goes well on Wednesday for her activation. She retains so much now.
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Hmmm I'm going to talk to my audie about whether my CI can be paired exclusively with the particular implant. I've put the wrong CI on twice now and boy, oh boy! It doesn't matter if I put the first speech processor on the new implant, just sounds a bit quiet but if I put the second speech processor on the first implant ouch! It literally feels like a hot potatoe and I have to tear it off! It's amazing how two ears can be so different. Usually, I am good about checking the LED screen to ensure I have the right processor for the right ear (there is an indicator showing which ear it's for) but those two times I put on my CIs in a hurry.
 
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