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You must be so frustrated and exhausted! I hope this new Dr will refer you! I'm praying for relief and answers for you soon!
Miracle Mineral Solution (MMS)
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Sounds like an idiopathic angioedema.
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No. I've been trying some of the home remedies in addition to the prescribed pills but no improvement.
My next doctor's appointment isn't until July 30. Maybe I'll get some news then.
In the meantime, I stay home a lot, scratch a lot, and sleep little. The heat and sun make me feel worse, so I can't even do my beloved yard and garden work.
In the previous three days I had a total of three hours sleep. Last night I finally got almost seven hours sleep with only getting up twice during the night.
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Update:
I finally got an appointment at the VA clinic. July 23 I go to the lab to get blood drawn for testing. July 30 is my appointment with my primary care physician. I hope that she will then refer me to a specialist. We shall see.
Good ol' government health care.
During the past two days I've had one hour of sleep. I'll try to go to bed soon but I'm not really sleepy. Poor Hubby has been so tolerant of me and my emotional crying jags and forgetfulness. Sigh....
if worse comes to worst.... have you considered a private medical care?
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The problem with food allergies that's it's not just the processing and chemicals that could be the culprit. It could be the food itself, no matter how pure and organic it is.
I kind of doubt that it's a food in my situation because of the timing pattern of the hives. There were many years between the two longest prolonged attacks, with sporadic outbreaks. But I can't say for sure.
I also used to get really bad migraine headaches on a regular basis but they went away by themselves. I haven't had one in many years. Don't know why.
yes that's what I mean. Just gotta find the food that's bad for you and good for you. Lately - I'm noticing that my body is not processing brown rice well. Let's just say it isn't exiting my body as properly as it should be
I guess I have to stick with white rice
anyway - from what I know... eating the food that has adverse effect on you would take years to manifest. Then when it does... you will be prone to whatever such as headache on daily basis or frequent itchy skin or getting sick more often or whatever. When you switch to certain diet that has favorable effect on you - it'll take quite a while for your body to adjust.
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Only if they offer something different from VA.
if worse comes to worst.... have you considered a private medical care?
VA did send me once to Dr. Finn at the National Allergy, Asthma, and Urticaria Centers of Charleston, P.A.
National Allergy, Asthma, & Urticaria Centers of Charleston, P.A.
He prescribed Allegra, ordered lab tests, and gave me an appointment after the test results were ready. The VA canceled the second appointment and sent me back to the VA Dermatology Department. The department head told me, "You belong to us." They put me on the Prednisone, which worked for a while but also has lots of long-term bad side effects.
That is very vexing news indeed.
It sounds like a full-blown emergency to me, and I fervently wish you can find relief soon. I am pulling for you.Do you agree with this? Whatever you decide is fine with me, Reba, but it is your life.
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That is very vexing news indeed.
What the VA doctor meant was they had full control of my medical care, and would decide where I would get my treatment. (The "blessings" of government-run medical services.Do you agree with this? Whatever you decide is fine with me, Reba, but it is your life.
)When I see my doctor next week, I'm going to try to get referred to the allergy center again. They seem to have a good national reputation, and take a broader view of the hives problem then the VA Dermatology clinic.
I would really like to be set up on a program where I could be weaned off the meds, "flushed out", and slowly introduce foods just to be sure that it's not something I'm ingesting. But I would want to do that under a doctor's supervision. It's not safe to stop meds cold turkey without supervision.
I hope to know something in a couple weeks.
I had a good morning. I made it thru Sunday school and church comfortably. Now I'm home and my chin, lips, and under my eyes are swelling. I guess I'll go eat lunch while my mouth still functions. After my lips swell, it's hard to drink fluids without drooling (lovely).
Oceanbreeze
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What the VA doctor meant was they had full control of my medical care, and would decide where I would get my treatment. (The "blessings" of government-run medical services.
When I see my doctor next week, I'm going to try to get referred to the allergy center again. They seem to have a good national reputation, and take a broader view of the hives problem then the VA Dermatology clinic.
I would really like to be set up on a program where I could be weaned off the meds, "flushed out", and slowly introduce foods just to be sure that it's not something I'm ingesting. But I would want to do that under a doctor's supervision. It's not safe to stop meds cold turkey without supervision.
I hope to know something in a couple weeks.
I had a good morning. I made it thru Sunday school and church comfortably. Now I'm home and my chin, lips, and under my eyes are swelling. I guess I'll go eat lunch while my mouth still functions. After my lips swell, it's hard to drink fluids without drooling (lovely).
I would also get really exotic and not just think food allergy. I would also consider environmental things such as the laundry detergent you use and whatever other chemicals you use to clean the house with. In short, if you can get out from under the VA, and find a good Dr who is willing to think outside the box, I would definitely do that!
Hang in there, Reba. We're all pulling for you!
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I would also get really exotic and not just think food allergy. I would also consider environmental things such as the laundry detergent you use and whatever other chemicals you use to clean the house with. In short, if you can get out from under the VA, and find a good Dr who is willing to think outside the box, I would definitely do that!
Hang in there, Reba. We're all pulling for you!
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I went to the VA doctor yesterday.
She told me that VA no longer pays for outside specialists, so no referrals to the allergy center.
She said that my hives are probably a result of stress. :roll: She asked if I wanted a prescription for something to relieve my stress. I told her no. I don't want anything that will dull my mind or reflexes. I need to stay sharp.
She prescribed me Zantac for my reflux and heartburn. She said that my esophagus is getting scarred, and that's why I have a rough throat and problems swallowing.
I asked if any of my other meds could be causing me problems, and she said no.
So, I guess that's it.
She told me that VA no longer pays for outside specialists, so no referrals to the allergy center.
She said that my hives are probably a result of stress. :roll: She asked if I wanted a prescription for something to relieve my stress. I told her no. I don't want anything that will dull my mind or reflexes. I need to stay sharp.
She prescribed me Zantac for my reflux and heartburn. She said that my esophagus is getting scarred, and that's why I have a rough throat and problems swallowing.
I asked if any of my other meds could be causing me problems, and she said no.
So, I guess that's it.